Sources of variation in estimates of Duchenne and Becker muscular dystrophy prevalence in the United States

Sources of variation in estimates of Duchenne and Becker muscular dystrophy prevalence in the United States

Abstract Background Direct estimates of rare disease prevalence from public health surveillance may only be available in a few catchment areas. Understanding variation among observed prevalence can inform estimates of prevalence in other locations. The Muscular Dystrophy Surveillance, Tracking, and...

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Bibliographic Details
Main Authors: Nedra Whitehead, Stephen W. Erickson, Bo Cai, Suzanne McDermott, Holly Peay, James F. Howard, Lijing Ouyang, the Muscular Dystrophy Surveillance, Tracking and Research Network
Format: Article
Language:English
Published: BMC 2023-03-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Epidemiology
Public health surveillance
Epidemiological monitoring
Epidemiologic methods
Muscular dystrophy Duchenne
Muscular dystrophy Becker
Online Access:https://doi.org/10.1186/s13023-023-02662-0

Internet

https://doi.org/10.1186/s13023-023-02662-0

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