Atrial Fibrillation Health Literacy Questionnaire (AFHLQ): The development of an AF-specific health literacy questionnaire
Background: Health literacy is a key enabler of effective behavioural modification in chronic diseases. While patient reported outcome measures (PROMs) exists for patient with atrial fibrillation (AF), none address risk factors comprehensively. The aim of the study was to develop and qualitatively v...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2024-02-01
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| Series: | International Journal of Cardiology: Heart & Vasculature |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2352906723001537 |
| _version_ | 1827346005513732096 |
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| author | Gai McMichael Lynette Cusack Dian Andina Munawar Mark Boyd Lyle Palmer Han S Lim Rajiv Mahajan |
| author_facet | Gai McMichael Lynette Cusack Dian Andina Munawar Mark Boyd Lyle Palmer Han S Lim Rajiv Mahajan |
| author_sort | Gai McMichael |
| collection | DOAJ |
| description | Background: Health literacy is a key enabler of effective behavioural modification in chronic diseases. While patient reported outcome measures (PROMs) exists for patient with atrial fibrillation (AF), none address risk factors comprehensively. The aim of the study was to develop and qualitatively validate a disease specific PROM that incorporates knowledge on risk factors and assesses interactive and critical health literacy of people living with AF. Methods: The 47-item Atrial Fibrillation Health Literacy Questionnaire (AFHLQ) was developed and validated through a qualitative research design. Expert and Consumer focus groups, each consisting of seven participants provided opinion. Results: The 47-item questionnaire consists of 5 domains: (1) what is AF, (2) what are the symptoms of AF, (3) why do people get AF, (4) management of AF, and (5) what measures can slow or prevent the progression of AF. Recommendations resulted in several changes to the original 47 item list during the qualitative validation process: 13 original items were removed, and 13 new items were added. The response categories were also simplified from a Likert scale to “yes”, “no” or “don't know”. Conclusion: A 47-item AFHLQ instrument was developed and validated with modifications made through clinical expert and consumer opinion. This tool has a potential to be used to evaluate and guide interventions at a clinical and population level to understand and improve AF health literacy and outcomes. |
| first_indexed | 2024-03-07T23:21:55Z |
| format | Article |
| id | doaj.art-7d1529e65f024bc8a47cad3ecc29ec86 |
| institution | Directory Open Access Journal |
| issn | 2352-9067 |
| language | English |
| last_indexed | 2024-03-07T23:21:55Z |
| publishDate | 2024-02-01 |
| publisher | Elsevier |
| record_format | Article |
| series | International Journal of Cardiology: Heart & Vasculature |
| spelling | doaj.art-7d1529e65f024bc8a47cad3ecc29ec862024-02-21T05:28:55ZengElsevierInternational Journal of Cardiology: Heart & Vasculature2352-90672024-02-0150101322Atrial Fibrillation Health Literacy Questionnaire (AFHLQ): The development of an AF-specific health literacy questionnaireGai McMichael0Lynette Cusack1Dian Andina Munawar2Mark Boyd3Lyle Palmer4Han S Lim5Rajiv Mahajan6Adelaide Medical School, University of Adelaide, Adelaide, AustraliaAdelaide Nursing School, University of Adelaide, Adelaide, AustraliaAdelaide Medical School, University of Adelaide, Adelaide, Australia; Lyell McEwin Hospital, Northern Adelaide Local Health Network (NALHN), Elizabeth Vale, South Australia, AustraliaAdelaide Medical School, University of Adelaide, Adelaide, Australia; Lyell McEwin Hospital, Northern Adelaide Local Health Network (NALHN), Elizabeth Vale, South Australia, AustraliaSchool of Public Health, University of Adelaide, Adelaide, AustraliaDepartment of Cardiology, Austin Health and University of Melbourne, Melbourne, AustraliaAdelaide Medical School, University of Adelaide, Adelaide, Australia; Lyell McEwin Hospital, Northern Adelaide Local Health Network (NALHN), Elizabeth Vale, South Australia, Australia; Corresponding author at: University of Adelaide Precinct, Lyell McEwin Hospital, Haydown Road, Elizabeth Vale, SA 5112, Australia.Background: Health literacy is a key enabler of effective behavioural modification in chronic diseases. While patient reported outcome measures (PROMs) exists for patient with atrial fibrillation (AF), none address risk factors comprehensively. The aim of the study was to develop and qualitatively validate a disease specific PROM that incorporates knowledge on risk factors and assesses interactive and critical health literacy of people living with AF. Methods: The 47-item Atrial Fibrillation Health Literacy Questionnaire (AFHLQ) was developed and validated through a qualitative research design. Expert and Consumer focus groups, each consisting of seven participants provided opinion. Results: The 47-item questionnaire consists of 5 domains: (1) what is AF, (2) what are the symptoms of AF, (3) why do people get AF, (4) management of AF, and (5) what measures can slow or prevent the progression of AF. Recommendations resulted in several changes to the original 47 item list during the qualitative validation process: 13 original items were removed, and 13 new items were added. The response categories were also simplified from a Likert scale to “yes”, “no” or “don't know”. Conclusion: A 47-item AFHLQ instrument was developed and validated with modifications made through clinical expert and consumer opinion. This tool has a potential to be used to evaluate and guide interventions at a clinical and population level to understand and improve AF health literacy and outcomes.http://www.sciencedirect.com/science/article/pii/S2352906723001537Qualitative validationHealth literacyAtrial fibrillationPatient reported outcome measureAF knowledge |
| spellingShingle | Gai McMichael Lynette Cusack Dian Andina Munawar Mark Boyd Lyle Palmer Han S Lim Rajiv Mahajan Atrial Fibrillation Health Literacy Questionnaire (AFHLQ): The development of an AF-specific health literacy questionnaire International Journal of Cardiology: Heart & Vasculature Qualitative validation Health literacy Atrial fibrillation Patient reported outcome measure AF knowledge |
| title | Atrial Fibrillation Health Literacy Questionnaire (AFHLQ): The development of an AF-specific health literacy questionnaire |
| title_full | Atrial Fibrillation Health Literacy Questionnaire (AFHLQ): The development of an AF-specific health literacy questionnaire |
| title_fullStr | Atrial Fibrillation Health Literacy Questionnaire (AFHLQ): The development of an AF-specific health literacy questionnaire |
| title_full_unstemmed | Atrial Fibrillation Health Literacy Questionnaire (AFHLQ): The development of an AF-specific health literacy questionnaire |
| title_short | Atrial Fibrillation Health Literacy Questionnaire (AFHLQ): The development of an AF-specific health literacy questionnaire |
| title_sort | atrial fibrillation health literacy questionnaire afhlq the development of an af specific health literacy questionnaire |
| topic | Qualitative validation Health literacy Atrial fibrillation Patient reported outcome measure AF knowledge |
| url | http://www.sciencedirect.com/science/article/pii/S2352906723001537 |
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