The national economic burden of rare disease in the United States in 2019

The national economic burden of rare disease in the United States in 2019

Abstract Background To provide a comprehensive assessment of the total economic burden of rare diseases (RD) in the United States (U.S.) in 2019. We followed a prevalence-based approach that combined the prevalence of 379 RDs with the per-person direct medical and indirect costs, to derive the natio...

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Bibliographic Details
Main Authors: Grace Yang, Inna Cintina, Anne Pariser, Elisabeth Oehrlein, Jamie Sullivan, Annie Kennedy
Format: Article
Language:English
Published: BMC 2022-04-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Rare disease
Economic burden
Direct cost
Indirect cost
Online Access:https://doi.org/10.1186/s13023-022-02299-5

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