Sexual orientation and gender identity measures and viral suppression for people living with HIV: a protocol for a population-based cohort study
Introduction The measure of sexual orientation and gender identity (SOGI) data in electronic health records (EHR) has been critical for addressing health disparities and inequalities, especially for HIV care. Given that gender and sexual minorities (eg, transgender, men who have sex with men and int...
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| Format: | Article |
| Language: | English |
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BMJ Publishing Group
2024-02-01
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| Series: | BMJ Open |
| Online Access: | https://bmjopen.bmj.com/content/14/2/e076997.full |
| _version_ | 1797269326910193664 |
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| author | Bankole Olatosi Jiajia Zhang Sharon Weissman Xiaoming Li Xueying Yang |
| author_facet | Bankole Olatosi Jiajia Zhang Sharon Weissman Xiaoming Li Xueying Yang |
| author_sort | Bankole Olatosi |
| collection | DOAJ |
| description | Introduction The measure of sexual orientation and gender identity (SOGI) data in electronic health records (EHR) has been critical for addressing health disparities and inequalities, especially for HIV care. Given that gender and sexual minorities (eg, transgender, men who have sex with men and intersex) are key groups in people living with HIV (PLWH), SOGI data can facilitate a more accurate understanding about the HIV outcomes (eg, viral suppression) among this key group and then lead to tailored therapeutic services. The two-step SOGI collection method as an emerging gender measurement can be used to measure SOGI status in medical settings. Using the statewide cohort of PLWH in South Carolina (SC), this project aims to: (1) integrate statewide PLWH cohort data with their birth certificate data to evaluate SOGI measurements from multiple EHR sources; and (2) examine differences in viral suppression based on SOGI measurements.Methods and analysis Our EHR database includes several HIV data sources with patients’ gender information, such as SC Department of Health and Environmental Control Centre (DHEC), Health Sciences South Carolina (HSSC) and Prisma as well as birth certificate data to retrieve the sex at birth. The SC Enhanced HIV/AIDS Reporting System (e-HARS) from DHEC will provide longitudinal viral load information to define a variety of viral suppression status. Datasources like the SC office of Revenue and Fiscal Affairs (RFA) will extract longitudinal EHR clinical data of all PLWH in SC from multiple health systems; obtain data from other state agencies and link the patient-level data with county-level data from multiple publicly available data sources.Ethics and dissemination The study was approved by the Institutional Review Board at the University of South Carolina (Pro00129906) as a Non-Human Subject study. The study’s findings will be published in peer-reviewed journals and disseminated at national and international conferences and through social media. |
| first_indexed | 2024-03-08T04:49:43Z |
| format | Article |
| id | doaj.art-7d68c50de2b64a0fb4e56c29835b95ef |
| institution | Directory Open Access Journal |
| issn | 2044-6055 |
| language | English |
| last_indexed | 2024-04-25T01:46:36Z |
| publishDate | 2024-02-01 |
| publisher | BMJ Publishing Group |
| record_format | Article |
| series | BMJ Open |
| spelling | doaj.art-7d68c50de2b64a0fb4e56c29835b95ef2024-03-07T21:05:08ZengBMJ Publishing GroupBMJ Open2044-60552024-02-0114210.1136/bmjopen-2023-076997Sexual orientation and gender identity measures and viral suppression for people living with HIV: a protocol for a population-based cohort studyBankole Olatosi0Jiajia Zhang1Sharon Weissman2Xiaoming Li3Xueying Yang4Health Services, Policy and Management, University of South Carolina Arnold School of Public Health, Columbia, South Carolina, USADepartment of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, South Carolina, USAInternal Medicine, School of Medicine, University of South Carolina, Columbia, SC, USAHealth Promotion Education and Behavior, Arnold School of Public Health, University of South Carolina, Columbia, South Carolina, USAHealth Promotion Education and Behavior, Arnold School of Public Health, University of South Carolina, Columbia, South Carolina, USAIntroduction The measure of sexual orientation and gender identity (SOGI) data in electronic health records (EHR) has been critical for addressing health disparities and inequalities, especially for HIV care. Given that gender and sexual minorities (eg, transgender, men who have sex with men and intersex) are key groups in people living with HIV (PLWH), SOGI data can facilitate a more accurate understanding about the HIV outcomes (eg, viral suppression) among this key group and then lead to tailored therapeutic services. The two-step SOGI collection method as an emerging gender measurement can be used to measure SOGI status in medical settings. Using the statewide cohort of PLWH in South Carolina (SC), this project aims to: (1) integrate statewide PLWH cohort data with their birth certificate data to evaluate SOGI measurements from multiple EHR sources; and (2) examine differences in viral suppression based on SOGI measurements.Methods and analysis Our EHR database includes several HIV data sources with patients’ gender information, such as SC Department of Health and Environmental Control Centre (DHEC), Health Sciences South Carolina (HSSC) and Prisma as well as birth certificate data to retrieve the sex at birth. The SC Enhanced HIV/AIDS Reporting System (e-HARS) from DHEC will provide longitudinal viral load information to define a variety of viral suppression status. Datasources like the SC office of Revenue and Fiscal Affairs (RFA) will extract longitudinal EHR clinical data of all PLWH in SC from multiple health systems; obtain data from other state agencies and link the patient-level data with county-level data from multiple publicly available data sources.Ethics and dissemination The study was approved by the Institutional Review Board at the University of South Carolina (Pro00129906) as a Non-Human Subject study. The study’s findings will be published in peer-reviewed journals and disseminated at national and international conferences and through social media.https://bmjopen.bmj.com/content/14/2/e076997.full |
| spellingShingle | Bankole Olatosi Jiajia Zhang Sharon Weissman Xiaoming Li Xueying Yang Sexual orientation and gender identity measures and viral suppression for people living with HIV: a protocol for a population-based cohort study BMJ Open |
| title | Sexual orientation and gender identity measures and viral suppression for people living with HIV: a protocol for a population-based cohort study |
| title_full | Sexual orientation and gender identity measures and viral suppression for people living with HIV: a protocol for a population-based cohort study |
| title_fullStr | Sexual orientation and gender identity measures and viral suppression for people living with HIV: a protocol for a population-based cohort study |
| title_full_unstemmed | Sexual orientation and gender identity measures and viral suppression for people living with HIV: a protocol for a population-based cohort study |
| title_short | Sexual orientation and gender identity measures and viral suppression for people living with HIV: a protocol for a population-based cohort study |
| title_sort | sexual orientation and gender identity measures and viral suppression for people living with hiv a protocol for a population based cohort study |
| url | https://bmjopen.bmj.com/content/14/2/e076997.full |
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