Views and experiences of youth participants in a pediatric advisory board for human subjects research

Views and experiences of youth participants in a pediatric advisory board for human subjects research

Abstract Introduction: Community Advisory Boards (CABs) are typically comprised of adult community members who provide feedback on health-related, adult-focused research. Few, if any, CABs comprised of youth participants exist. In 2019, a Midwest medical center recruited a diverse group of 18 11–1...

Full description

Bibliographic Details
Main Authors:	Karen N. DSouza, Minerva Orellana, Kirsten A. Riggan, Miguel Valdez-Soto, Tabetha A. Brockman, Maria Guadalupe Zavala Rocha, Joyce E. Balls-Berry, Young Juhn, Christi A. Patten, Megan A. Allyse
Format:	Article
Language:	English
Published:	Cambridge University Press 2021-01-01
Series:	Journal of Clinical and Translational Science
Subjects:	Community advisory board pediatric human subjects research recruitment qualitative research community-engaged research workforce development education
Online Access:	https://www.cambridge.org/core/product/identifier/S2059866121000182/type/journal_article

Similar Items

Creating a pediatric advisory board for engaging youth in pediatric health research: A case study
by: Minerva Orellana, et al.
Published: (2021-01-01)

Researchers’ experiences working with community advisory boards: How community member feedback impacted the research
by: Tabetha A. Brockman, et al.
Published: (2021-01-01)

Accelerating diversity in Alzheimer's disease research by partnering with a community advisory board
by: Alex Pena‐Garcia, et al.
Published: (2023-04-01)

Addressing community health needs through community engagement research advisory boards
by: Christi A. Patten, et al.
Published: (2019-06-01)

Developing and sustaining a community advisory committee to support, inform, and translate biomedical research
by: Joseph A. Skelton, et al.
Published: (2023-01-01)

Community Advisory Boards in Community-Based Participatory Research: A Synthesis of Best Processes
by: Susan D. Newman, PhD, RN, CRRN, et al.
Published: (2011-05-01)

Building a pipeline of community-engaged researchers: How interdisciplinary translational research training programs can collaborate with their Community Research Advisory Councils
by: Sarah E. LaFave, et al.
Published: (2021-01-01)

Co-creation and engagement in a DNA integrity cohort study
by: L. Lynette Parker, et al.
Published: (2023-01-01)

Community advisory committee as a facilitator of health and wellbeing: A qualitative study in informal settlements in Nairobi, Kenya
by: Ivy Chumo, et al.
Published: (2023-01-01)

Development, implementation, and evaluation of a Community Engagement Advisory Board: Strategies for maximizing success
by: Alicia K. Matthews, et al.
Published: (2018-02-01)

Public feedback on a proposed statewide virtual translational research community
by: Milton (Mickey) Eder, et al.
Published: (2020-10-01)

Community advisory board members’ perspectives on their contributions to a large multistate cluster RCT: a mixed methods study
by: Julie Bosak, et al.
Published: (2024-01-01)

Community engagement strategies to promote recruitment and participation in clinical research among rural communities: A narrative review
by: Tabetha A. Brockman, et al.
Published: (2023-01-01)

Integrating community voices in the research continuum: Perspectives on a consultation service
by: Crystal D. Evans, et al.
Published: (2023-01-01)

Centering Reciprocity and Accountability in Community-Based Research: How Meaningful Relationships with a Community Advisory Group Impacted Survey Development
by: Rebecca Godderis, et al.
Published: (2023-09-01)

A Community Engagement Advisory Board as a strategy to improve research engagement and build institutional capacity for community-engaged research
by: Alicia K. Matthews, et al.
Published: (2018-04-01)

Ready or not? Observations from a long-standing community engagement advisory board about investigator competencies for community-engaged research
by: Alicia K. Matthews, et al.
Published: (2018-06-01)

Working collaboratively with an online advisory group of people with learning disabilities in covid-times: carrier pigeons, cats and drones
by: Eppie Leishman, et al.
Published: (2023-09-01)

Development of a self-directed, online-learning curriculum to increase community-engaged research in clinical and translational science
by: Joyce E. Balls-Berry, et al.
Published: (2017-04-01)

Fostering diversity and a culture of inclusion in clinical research by training and hiring community members as clinical research assistants
by: Katelyn Collinger, et al.
Published: (2022-01-01)

Diversity among research coordinators in a pediatric emergency medicine research collaborative network
by: Bashar S. Shihabuddin, et al.
Published: (2023-01-01)

The development of a clinical research educational training for community health workers using the joint task force for clinical trial competency framework
by: Amin Yakubov, et al.
Published: (2023-12-01)

“In our community, we normalize pain”: discussions around menstruation and uterine fibroids with Black women and Latinas
by: Minerva Orellana, et al.
Published: (2024-04-01)

Issues for recruitment and retention of clinical research professionals at academic medical centers: Part 1 – collaborative conversations Un-Meeting findings
by: Jacqueline M. Knapke, et al.
Published: (2022-01-01)

Patient Barriers for Weight Management Among African American Women
by: Owen Bowie, et al.
Published: (2018-10-01)

Evaluation of 3 approaches for increasing patient engagement in clinical research: Feedback from a community engagement advisory board
by: Alicia K. Matthews, et al.
Published: (2018-02-01)

Development and initial cognitive testing of the Digital Equity Screening Tool (DEST): Community participatory approach to assessing digital inequality
by: Pravesh Sharma, et al.
Published: (2022-01-01)

“There's not enough studies”: Views of black breast and ovarian cancer patients on research participation
by: Kirsten A. Riggan, et al.
Published: (2023-04-01)

?I Am Interested!?: The Voices of the Community and Their Participation in Health Advisory Boards
by: Sylk Sotto-Santiago, et al.
Published: (2024-01-01)

Equity, diversity, and inclusion in developmental neuroscience: Practical lessons from community-based participatory research
by: Shayna La Scala, et al.
Published: (2023-03-01)

Reviving and Reclaiming Our Native Food System
by: Rhonda Bowers, et al.
Published: (2019-10-01)

Virtual engagement of under-resourced communities: Lessons learned during the COVID-19 pandemic for creating crisis-resistant research infrastructure
by: Andrew D. Plunk, et al.
Published: (2022-01-01)

Community advisory boards: Experiences and common practices of clinical and translational science award programs
by: M. Kathryn Stewart, et al.
Published: (2019-10-01)

A boot camp translation of Alzheimer's disease in Hispanic/Latino communities
by: Luis D. Medina, et al.
Published: (2023-04-01)

Editorial: Examining community-engaged and participatory research programs and projects
by: Milton (Mickey) Eder, et al.
Published: (2023-07-01)

Development and evaluation of a novel training program to build study staff skills in equitable and inclusive engagement, recruitment, and retention of clinical research participants
by: Jessica R. Cranfill, et al.
Published: (2022-01-01)

Arts and Mental Health Co-Research with Youth Advisors: The Role of Emotions, Creating Community, Learning and Growth
by: Laura Helen Virginia Wright, et al.
Published: (2024-01-01)

Attitudes towards diversity, equity, and inclusion across the CTSA Programs: Strong but not uniform support and commitment
by: Jeffrey Duong, et al.
Published: (2023-01-01)

Training in patient-centered outcomes research for specific researcher communities
by: Douglas P. Landsittel, et al.
Published: (2017-10-01)

Community engagement group model in basic and biomedical research: lessons learned from the BEAT-HIV Delaney Collaboratory towards an HIV-1 cure
by: Karine Dubé, et al.
Published: (2023-06-01)