Perception of Burden and Stress Among Mothers of Autistic Children in Pakistani Cultural Background

Objectives: The study aimed to explore the perceived burden and stress among mothers of autistic children. Methods: This cross-sectional study was conducted at Riphah International University over 4 months, from October 2020 to January 2021. The samples were recruited using non-probability convenien...

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Main Authors: Nazia Mumtaz, Tanveer Fatima, Ghulam Saqulain
Format: Article
Language:English
Published: Negah Institute for Scientific Communication 2022-03-01
Series:Iranian Rehabilitation Journal
Subjects:
Online Access:http://irj.uswr.ac.ir/article-1-1455-en.pdf
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author Nazia Mumtaz
Tanveer Fatima
Ghulam Saqulain
author_facet Nazia Mumtaz
Tanveer Fatima
Ghulam Saqulain
author_sort Nazia Mumtaz
collection DOAJ
description Objectives: The study aimed to explore the perceived burden and stress among mothers of autistic children. Methods: This cross-sectional study was conducted at Riphah International University over 4 months, from October 2020 to January 2021. The samples were recruited using non-probability convenience sampling and comprised 84 mothers (23-60 years old) of children aged 3-16 years with Autism Spectrum Disorder (ASD) from different special education centers in Lahore. A demographic questionnaire, Parental Stress Scale (PSS), and Zarit burden interview (ZBI) were used to collect the study data, which were analyzed in SPSS v. 22 software.  Results: Forty-five Mothers (53.6%) suffered from moderate to severe burden with a high Mean±SD ZBI (41.75±10.62) and Parental Stress Scale (PSS) scores (48.67±8.04). Also, there is a significant positive correlation between the two scores (r=0.585, P=0.000). A significant association was noted between the mother’s stress and the severity of autism (P=0.006) and the child’s medication (P=0.008), also between the mother’s burden and the child’s age (P=0.019). Discussion: According to the current study’s findings, mothers of children with ASD perceived a high level of burden and stress. The association was seen with factors of children’s age, severity level, and child medication.
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spelling doaj.art-7e0a2847f392479ea84da3f3498442fe2023-10-01T07:41:00ZengNegah Institute for Scientific CommunicationIranian Rehabilitation Journal1735-36021735-36102022-03-012014352Perception of Burden and Stress Among Mothers of Autistic Children in Pakistani Cultural BackgroundNazia Mumtaz0Tanveer Fatima1Ghulam Saqulain2 Department of Speech Language Pathology, Faculty of Rehab and Allied Health Sciences,Riphah International University, Lahore, Pakistan. Centre of Mentally and Physically Affected Special Students (COMPASS), Lahore, Pakistan. Department of Otorhinolaryngology Capital Hospital PGMI, Islamabad, Pakistan. Objectives: The study aimed to explore the perceived burden and stress among mothers of autistic children. Methods: This cross-sectional study was conducted at Riphah International University over 4 months, from October 2020 to January 2021. The samples were recruited using non-probability convenience sampling and comprised 84 mothers (23-60 years old) of children aged 3-16 years with Autism Spectrum Disorder (ASD) from different special education centers in Lahore. A demographic questionnaire, Parental Stress Scale (PSS), and Zarit burden interview (ZBI) were used to collect the study data, which were analyzed in SPSS v. 22 software.  Results: Forty-five Mothers (53.6%) suffered from moderate to severe burden with a high Mean±SD ZBI (41.75±10.62) and Parental Stress Scale (PSS) scores (48.67±8.04). Also, there is a significant positive correlation between the two scores (r=0.585, P=0.000). A significant association was noted between the mother’s stress and the severity of autism (P=0.006) and the child’s medication (P=0.008), also between the mother’s burden and the child’s age (P=0.019). Discussion: According to the current study’s findings, mothers of children with ASD perceived a high level of burden and stress. The association was seen with factors of children’s age, severity level, and child medication.http://irj.uswr.ac.ir/article-1-1455-en.pdfautism spectrum disordercaregiver burdenparental stress scale
spellingShingle Nazia Mumtaz
Tanveer Fatima
Ghulam Saqulain
Perception of Burden and Stress Among Mothers of Autistic Children in Pakistani Cultural Background
Iranian Rehabilitation Journal
autism spectrum disorder
caregiver burden
parental stress scale
title Perception of Burden and Stress Among Mothers of Autistic Children in Pakistani Cultural Background
title_full Perception of Burden and Stress Among Mothers of Autistic Children in Pakistani Cultural Background
title_fullStr Perception of Burden and Stress Among Mothers of Autistic Children in Pakistani Cultural Background
title_full_unstemmed Perception of Burden and Stress Among Mothers of Autistic Children in Pakistani Cultural Background
title_short Perception of Burden and Stress Among Mothers of Autistic Children in Pakistani Cultural Background
title_sort perception of burden and stress among mothers of autistic children in pakistani cultural background
topic autism spectrum disorder
caregiver burden
parental stress scale
url http://irj.uswr.ac.ir/article-1-1455-en.pdf
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AT ghulamsaqulain perceptionofburdenandstressamongmothersofautisticchildreninpakistaniculturalbackground