“They heard our voice!” patient engagement councils in community-based primary care practices: a participatory action research pilot study
Abstract Background Patient engagement could improve the quality of primary care practices. However, we know little about effective patient engagement strategies. We aimed to assess the acceptability and feasibility of embedding advisory councils of clinicians, managers, patients and caregivers to c...
| Main Authors: | , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2020-09-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s40900-020-00232-3 |
| _version_ | 1818476889811976192 |
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| author | Julie Haesebaert Isabelle Samson Hélène Lee-Gosselin Sabrina Guay-Bélanger Jean-François Proteau Guy Drouin Chantal Guimont Luc Vigneault Annie Poirier Priscille-Nice Sanon Geneviève Roch Marie-Ève Poitras Annie LeBlanc France Légaré |
| author_facet | Julie Haesebaert Isabelle Samson Hélène Lee-Gosselin Sabrina Guay-Bélanger Jean-François Proteau Guy Drouin Chantal Guimont Luc Vigneault Annie Poirier Priscille-Nice Sanon Geneviève Roch Marie-Ève Poitras Annie LeBlanc France Légaré |
| author_sort | Julie Haesebaert |
| collection | DOAJ |
| description | Abstract Background Patient engagement could improve the quality of primary care practices. However, we know little about effective patient engagement strategies. We aimed to assess the acceptability and feasibility of embedding advisory councils of clinicians, managers, patients and caregivers to conduct patient-oriented quality improvement projects in primary care practices. Methods Using a participatory action research approach, we conducted our study in two non-academic primary care practices in Quebec City (Canada). Patient-experts (patients trained in research) were involved in study design, council recruitment and meeting facilitation. Advisory councils were each to include patients and/or caregivers, clinicians and managers. Over six meetings, councils would identify quality improvement priorities and plan projects accordingly. We assessed acceptability and feasibility of the councils using non-participant observations, audio-recordings and self-administered questionnaires. We used descriptive analyses, triangulated qualitative data and performed inductive thematic analysis. Results Between December 2017 and June 2018, two advisory councils were formed, each with 11 patients (36% male, mean age 53.8 years), a nurse and a manager practising as a family physician (25% male, mean age 45 years). The six meetings per practice occurred within the study period with a mean of eight patients per meeting. Councils worked on two projects each: the first council on a new information leaflet about clinic organization and operation, and on communications about local public health programs; the second on methods to further engage patients in the practice, and on improving the appointment scheduling system. Median patient satisfaction was 8/10, and 66.7% perceived councils had an impact on practice operations. They considered involvement of a manager, facilitation by patient-experts, and the fostering of mutual respect as key to this impact. Clinicians and managers liked having patients as facilitators and the respect among members. Limiting factors were difficulty focusing on a single feasible project and time constraints. Managers in both practices were committed to pursuing the councils post-study. Conclusion Our results indicated that embedding advisory councils of clinicians, managers, patients and caregivers to conduct patient-oriented quality improvement projects in primary care practices is both acceptable and feasible. Future research should assess its transferability to other clinical contexts. |
| first_indexed | 2024-12-10T09:31:11Z |
| format | Article |
| id | doaj.art-7e47ac1ab2fc49fe8ebe2453bd95a067 |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-12-10T09:31:11Z |
| publishDate | 2020-09-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-7e47ac1ab2fc49fe8ebe2453bd95a0672022-12-22T01:54:21ZengBMCResearch Involvement and Engagement2056-75292020-09-016111410.1186/s40900-020-00232-3“They heard our voice!” patient engagement councils in community-based primary care practices: a participatory action research pilot studyJulie Haesebaert0Isabelle Samson1Hélène Lee-Gosselin2Sabrina Guay-Bélanger3Jean-François Proteau4Guy Drouin5Chantal Guimont6Luc Vigneault7Annie Poirier8Priscille-Nice Sanon9Geneviève Roch10Marie-Ève Poitras11Annie LeBlanc12France Légaré13VITAM – Centre de recherche en santé durable, CIUSSS de la Capitale-NationaleDepartment of Family Medicine and Emergency Medicine, Faculty of Medicine, Université LavalDepartment of Management, Faculty of Business Administration, Université LavalVITAM – Centre de recherche en santé durable, CIUSSS de la Capitale-NationalePatient partnerClinic ManagerClinic ManagerPatient partnerPatient partnerPatient partnerCentre Hospitalier Universitaire de Québec – Université Laval Research Center, Hôpital Saint-François d’AssiseDepartment of Family Medicine, Faculty of Medicine and Health Sciences, Université de SherbrookeVITAM – Centre de recherche en santé durable, CIUSSS de la Capitale-NationaleVITAM – Centre de recherche en santé durable, CIUSSS de la Capitale-NationaleAbstract Background Patient engagement could improve the quality of primary care practices. However, we know little about effective patient engagement strategies. We aimed to assess the acceptability and feasibility of embedding advisory councils of clinicians, managers, patients and caregivers to conduct patient-oriented quality improvement projects in primary care practices. Methods Using a participatory action research approach, we conducted our study in two non-academic primary care practices in Quebec City (Canada). Patient-experts (patients trained in research) were involved in study design, council recruitment and meeting facilitation. Advisory councils were each to include patients and/or caregivers, clinicians and managers. Over six meetings, councils would identify quality improvement priorities and plan projects accordingly. We assessed acceptability and feasibility of the councils using non-participant observations, audio-recordings and self-administered questionnaires. We used descriptive analyses, triangulated qualitative data and performed inductive thematic analysis. Results Between December 2017 and June 2018, two advisory councils were formed, each with 11 patients (36% male, mean age 53.8 years), a nurse and a manager practising as a family physician (25% male, mean age 45 years). The six meetings per practice occurred within the study period with a mean of eight patients per meeting. Councils worked on two projects each: the first council on a new information leaflet about clinic organization and operation, and on communications about local public health programs; the second on methods to further engage patients in the practice, and on improving the appointment scheduling system. Median patient satisfaction was 8/10, and 66.7% perceived councils had an impact on practice operations. They considered involvement of a manager, facilitation by patient-experts, and the fostering of mutual respect as key to this impact. Clinicians and managers liked having patients as facilitators and the respect among members. Limiting factors were difficulty focusing on a single feasible project and time constraints. Managers in both practices were committed to pursuing the councils post-study. Conclusion Our results indicated that embedding advisory councils of clinicians, managers, patients and caregivers to conduct patient-oriented quality improvement projects in primary care practices is both acceptable and feasible. Future research should assess its transferability to other clinical contexts.http://link.springer.com/article/10.1186/s40900-020-00232-3Primary careQuality improvementPatient and public involvementPatient-centerednessPatient advisory councilParticipatory action research |
| spellingShingle | Julie Haesebaert Isabelle Samson Hélène Lee-Gosselin Sabrina Guay-Bélanger Jean-François Proteau Guy Drouin Chantal Guimont Luc Vigneault Annie Poirier Priscille-Nice Sanon Geneviève Roch Marie-Ève Poitras Annie LeBlanc France Légaré “They heard our voice!” patient engagement councils in community-based primary care practices: a participatory action research pilot study Research Involvement and Engagement Primary care Quality improvement Patient and public involvement Patient-centeredness Patient advisory council Participatory action research |
| title | “They heard our voice!” patient engagement councils in community-based primary care practices: a participatory action research pilot study |
| title_full | “They heard our voice!” patient engagement councils in community-based primary care practices: a participatory action research pilot study |
| title_fullStr | “They heard our voice!” patient engagement councils in community-based primary care practices: a participatory action research pilot study |
| title_full_unstemmed | “They heard our voice!” patient engagement councils in community-based primary care practices: a participatory action research pilot study |
| title_short | “They heard our voice!” patient engagement councils in community-based primary care practices: a participatory action research pilot study |
| title_sort | they heard our voice patient engagement councils in community based primary care practices a participatory action research pilot study |
| topic | Primary care Quality improvement Patient and public involvement Patient-centeredness Patient advisory council Participatory action research |
| url | http://link.springer.com/article/10.1186/s40900-020-00232-3 |
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