A call for global governance of biobanks
The progress in genomic research has led to increased sampling and storage of biological samples in biobanks. Most biobanks are located in high-income countries, but the landscape is rapidly changing as low- and middle-income countries develop their own. When establishing a biobank in any setting, r...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
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The World Health Organization
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| Series: | Bulletin of the World Health Organization |
| Online Access: | http://www.scielosp.org/scielo.php?script=sci_arttext&pid=S0042-96862015000200113&lng=en&tlng=en |
| _version_ | 1797285338885914624 |
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| author | Haidan Chen Tikki Pang |
| author_facet | Haidan Chen Tikki Pang |
| author_sort | Haidan Chen |
| collection | DOAJ |
| description | The progress in genomic research has led to increased sampling and storage of biological samples in biobanks. Most biobanks are located in high-income countries, but the landscape is rapidly changing as low- and middle-income countries develop their own. When establishing a biobank in any setting, researchers have to consider a series of ethical, legal and social issues beyond those in traditional medical research. In addition, many countries may have inadequate legislative structures and governance frameworks to protect research participants and communities from unfair distribution of risks and benefits. International collaborations are frequently being created to support the establishment and proper running of biobanks in low- and middle-income countries. However, these collaborations cause cross-border issues – such as benefit sharing and data access. It is thus necessary to define and implement a fair, equitable and feasible biobank governance framework to ensure a fair balance of risks and benefits among all stakeholders. |
| first_indexed | 2024-03-07T18:01:41Z |
| format | Article |
| id | doaj.art-7e6807889cb74df88a92be69925544cc |
| institution | Directory Open Access Journal |
| issn | 0042-9686 |
| language | English |
| last_indexed | 2024-03-07T18:01:41Z |
| publisher | The World Health Organization |
| record_format | Article |
| series | Bulletin of the World Health Organization |
| spelling | doaj.art-7e6807889cb74df88a92be69925544cc2024-03-02T10:41:17ZengThe World Health OrganizationBulletin of the World Health Organization0042-968693211311710.2471/BLT.14.138420S0042-96862015000200113A call for global governance of biobanksHaidan ChenTikki PangThe progress in genomic research has led to increased sampling and storage of biological samples in biobanks. Most biobanks are located in high-income countries, but the landscape is rapidly changing as low- and middle-income countries develop their own. When establishing a biobank in any setting, researchers have to consider a series of ethical, legal and social issues beyond those in traditional medical research. In addition, many countries may have inadequate legislative structures and governance frameworks to protect research participants and communities from unfair distribution of risks and benefits. International collaborations are frequently being created to support the establishment and proper running of biobanks in low- and middle-income countries. However, these collaborations cause cross-border issues – such as benefit sharing and data access. It is thus necessary to define and implement a fair, equitable and feasible biobank governance framework to ensure a fair balance of risks and benefits among all stakeholders.http://www.scielosp.org/scielo.php?script=sci_arttext&pid=S0042-96862015000200113&lng=en&tlng=en |
| spellingShingle | Haidan Chen Tikki Pang A call for global governance of biobanks Bulletin of the World Health Organization |
| title | A call for global governance of biobanks |
| title_full | A call for global governance of biobanks |
| title_fullStr | A call for global governance of biobanks |
| title_full_unstemmed | A call for global governance of biobanks |
| title_short | A call for global governance of biobanks |
| title_sort | call for global governance of biobanks |
| url | http://www.scielosp.org/scielo.php?script=sci_arttext&pid=S0042-96862015000200113&lng=en&tlng=en |
| work_keys_str_mv | AT haidanchen acallforglobalgovernanceofbiobanks AT tikkipang acallforglobalgovernanceofbiobanks AT haidanchen callforglobalgovernanceofbiobanks AT tikkipang callforglobalgovernanceofbiobanks |