Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability
Daniel Ståhl,1 Ylva Bjereld,1,2 Anna Dunér1 1Department of Social Work, University of Gothenburg, Gothenburg, Sweden; 2Department of Behavioural Sciences and Learning, Linköping University, Linköping, SwedenCorrespondence: Daniel Ståhl, Department of Social Work, University of Gothenburg, Sprängkull...
| Main Authors: | , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Dove Medical Press
2022-02-01
|
| Series: | Journal of Multidisciplinary Healthcare |
| Subjects: | |
| Online Access: | https://www.dovepress.com/disabled-in-society---a-scoping-review-on-persons-living-with-multiple-peer-reviewed-fulltext-article-JMDH |
| _version_ | 1818333196229541888 |
|---|---|
| author | Ståhl D Bjereld Y Dunér A |
| author_facet | Ståhl D Bjereld Y Dunér A |
| author_sort | Ståhl D |
| collection | DOAJ |
| description | Daniel Ståhl,1 Ylva Bjereld,1,2 Anna Dunér1 1Department of Social Work, University of Gothenburg, Gothenburg, Sweden; 2Department of Behavioural Sciences and Learning, Linköping University, Linköping, SwedenCorrespondence: Daniel Ståhl, Department of Social Work, University of Gothenburg, Sprängkullsgatan 23, PO Box 720, Gothenburg, SE 405 30, Sweden, Tel +46 766 186 878, Fax +46 31 786 1888, Email daniel.stahl@gu.seAbstract: Multiple sclerosis (MS) is a chronic neurological disease with an increasing prevalence. As such, most studies are devoted to various medical aspects of the disease. The theoretical framework used in this scoping review was the social model of disability – a perspective focusing on environmental barriers and discrimination that disabled people face in society. The aim was to explore previous research on disabling barriers and discrimination against persons with MS, and to identify research gaps in connection with this population. The scoping review was performed in two steps: (1) a main search in 8 databases, followed by (2) citation and reference searches. The final sample consisted of 96 included articles. The result showed that most studies had been conducted in the US, and the dominant area of research was employment discrimination. Previous research has studied MS related to various areas, such as employment, social welfare and social services, transportation, housing and accessibility of public places, health services, and in relation to others within society. However, this scoping review showed that although several areas of disability and MS had been included in the previous research, most of the identified areas were researched in few studies without the possibility to generalize the findings to a larger population or a cross-cultural context. Few studies compared differences between persons with MS based on gender, age, and ethnicity. What impact the invisible symptoms of MS had on disability was also researched to a limited extent. The findings have implications for future research and clinical practice. To better understand living conditions for persons with MS from a global perspective, more research across countries is needed. Healthcare professionals need to assess the individual’s situation regarding both symptoms of the disease and the impact of societal barriers and discrimination to optimize care of persons with MS.Keywords: multiple sclerosis, disability, disabled people, the social model of disability, discrimination, barriers |
| first_indexed | 2024-12-13T13:47:47Z |
| format | Article |
| id | doaj.art-7fea3bd11d7c4257b4571b9b1127eecb |
| institution | Directory Open Access Journal |
| issn | 1178-2390 |
| language | English |
| last_indexed | 2024-12-13T13:47:47Z |
| publishDate | 2022-02-01 |
| publisher | Dove Medical Press |
| record_format | Article |
| series | Journal of Multidisciplinary Healthcare |
| spelling | doaj.art-7fea3bd11d7c4257b4571b9b1127eecb2022-12-21T23:43:19ZengDove Medical PressJournal of Multidisciplinary Healthcare1178-23902022-02-01Volume 1537539073179Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and DisabilityStåhl DBjereld YDunér ADaniel Ståhl,1 Ylva Bjereld,1,2 Anna Dunér1 1Department of Social Work, University of Gothenburg, Gothenburg, Sweden; 2Department of Behavioural Sciences and Learning, Linköping University, Linköping, SwedenCorrespondence: Daniel Ståhl, Department of Social Work, University of Gothenburg, Sprängkullsgatan 23, PO Box 720, Gothenburg, SE 405 30, Sweden, Tel +46 766 186 878, Fax +46 31 786 1888, Email daniel.stahl@gu.seAbstract: Multiple sclerosis (MS) is a chronic neurological disease with an increasing prevalence. As such, most studies are devoted to various medical aspects of the disease. The theoretical framework used in this scoping review was the social model of disability – a perspective focusing on environmental barriers and discrimination that disabled people face in society. The aim was to explore previous research on disabling barriers and discrimination against persons with MS, and to identify research gaps in connection with this population. The scoping review was performed in two steps: (1) a main search in 8 databases, followed by (2) citation and reference searches. The final sample consisted of 96 included articles. The result showed that most studies had been conducted in the US, and the dominant area of research was employment discrimination. Previous research has studied MS related to various areas, such as employment, social welfare and social services, transportation, housing and accessibility of public places, health services, and in relation to others within society. However, this scoping review showed that although several areas of disability and MS had been included in the previous research, most of the identified areas were researched in few studies without the possibility to generalize the findings to a larger population or a cross-cultural context. Few studies compared differences between persons with MS based on gender, age, and ethnicity. What impact the invisible symptoms of MS had on disability was also researched to a limited extent. The findings have implications for future research and clinical practice. To better understand living conditions for persons with MS from a global perspective, more research across countries is needed. Healthcare professionals need to assess the individual’s situation regarding both symptoms of the disease and the impact of societal barriers and discrimination to optimize care of persons with MS.Keywords: multiple sclerosis, disability, disabled people, the social model of disability, discrimination, barriershttps://www.dovepress.com/disabled-in-society---a-scoping-review-on-persons-living-with-multiple-peer-reviewed-fulltext-article-JMDHmultiple sclerosisdisabilitydisabled peoplethe social model of disabilitydiscriminationbarriers |
| spellingShingle | Ståhl D Bjereld Y Dunér A Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability Journal of Multidisciplinary Healthcare multiple sclerosis disability disabled people the social model of disability discrimination barriers |
| title | Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability |
| title_full | Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability |
| title_fullStr | Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability |
| title_full_unstemmed | Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability |
| title_short | Disabled in Society - A Scoping Review on Persons Living with Multiple Sclerosis and Disability |
| title_sort | disabled in society a scoping review on persons living with multiple sclerosis and disability |
| topic | multiple sclerosis disability disabled people the social model of disability discrimination barriers |
| url | https://www.dovepress.com/disabled-in-society---a-scoping-review-on-persons-living-with-multiple-peer-reviewed-fulltext-article-JMDH |
| work_keys_str_mv | AT stahld disabledinsocietyascopingreviewonpersonslivingwithmultiplesclerosisanddisability AT bjereldy disabledinsocietyascopingreviewonpersonslivingwithmultiplesclerosisanddisability AT dunera disabledinsocietyascopingreviewonpersonslivingwithmultiplesclerosisanddisability |