Transition readiness measures for adolescents with chronic illness: A scoping review of new measures
Background: The transition from pediatric to adult care settings for adolescents and young adults living with chronic conditions can be challenging and has been associated with declines in health and access to care. Well-validated measures of patients’ transition readiness are critical, both for use...
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| Format: | Article |
| Language: | English |
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Elsevier
2023-01-01
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| Series: | Health Care Transitions |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2949923223000223 |
| _version_ | 1797235405423116288 |
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| author | Tieghan Killackey Fareha Nishat Ellen Elsman Erica Lawson Lauren Kelenc Jennifer N. Stinson |
| author_facet | Tieghan Killackey Fareha Nishat Ellen Elsman Erica Lawson Lauren Kelenc Jennifer N. Stinson |
| author_sort | Tieghan Killackey |
| collection | DOAJ |
| description | Background: The transition from pediatric to adult care settings for adolescents and young adults living with chronic conditions can be challenging and has been associated with declines in health and access to care. Well-validated measures of patients’ transition readiness are critical, both for use in the clinical setting and to rigorously evaluate transition support programs for the purposes of research and health care quality improvement. Objectives: This review aimed to build off existing reviews and 1) identify and describe all newly developed and validated measures for the assessment of transition readiness for youth with chronic illness from the period of 2018–2022, and 2) evaluate their measurement properties and identify gaps in measurement testing. Methods: Electronic searches were conducted in MEDLINE, EMBASE, CINAHL and PsychINFO to identify articles developing and validating transition readiness in individuals aged 12–26 years with a chronic illness between 2018 and 2022. Two reviewers independently selected articles for review and assessed quality of measurement properties. Results: 22 studies met inclusion criteria reporting on 21 different tools. 9 studies reported on the development and evaluation of a new tool, and 13 reported on the adaptation, modification, and/or translation of an existing tool. Most adapted tools were translations and adaptations of the Transition Readiness Assessment Questionnaire (TRAQ) (n = 7). While some of these studies demonstrated sufficient internal consistency and structural validity, few met the COSMIN criteria for reliability and hypothesis testing and none met the criteria for cross-cultural validity. Criterion validity and measurement error were not assessed in any studies. Conclusion: Many new transition readiness measures continue to be developed in recent years, yet few have undergone rigorous psychometric evaluation. The TRAQ was the existing measure most often used as a model for developing new or modified tools. There remains a clear need for further validation of existing measures of patients’ readiness to transition as opposed to continuing to develop new measures. |
| first_indexed | 2024-04-24T16:47:26Z |
| format | Article |
| id | doaj.art-81086aa0dfcc40e29417fc32870f7b90 |
| institution | Directory Open Access Journal |
| issn | 2949-9232 |
| language | English |
| last_indexed | 2024-04-24T16:47:26Z |
| publishDate | 2023-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Health Care Transitions |
| spelling | doaj.art-81086aa0dfcc40e29417fc32870f7b902024-03-29T05:52:40ZengElsevierHealth Care Transitions2949-92322023-01-011100022Transition readiness measures for adolescents with chronic illness: A scoping review of new measuresTieghan Killackey0Fareha Nishat1Ellen Elsman2Erica Lawson3Lauren Kelenc4Jennifer N. Stinson5School of Nursing, Faculty of Health, York University, Toronto, Canada; Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Canada; Correspondence to: School of Nursing, Faculty of Health, York University, Office 312A Health, Nursing and Environmental Studies Building, 4700 Keele St., Toronto M3J 1P3, ON, Canada.Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, CanadaChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, CanadaDepartment of Pediatrics, University of California, San Francisco, United StatesChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, CanadaChild Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Canada; Institute of Health Policy, Management, and Evaluation, University of Toronto, Canada; Lawrence S Bloomberg Faculty of Nursing, University of Toronto, CanadaBackground: The transition from pediatric to adult care settings for adolescents and young adults living with chronic conditions can be challenging and has been associated with declines in health and access to care. Well-validated measures of patients’ transition readiness are critical, both for use in the clinical setting and to rigorously evaluate transition support programs for the purposes of research and health care quality improvement. Objectives: This review aimed to build off existing reviews and 1) identify and describe all newly developed and validated measures for the assessment of transition readiness for youth with chronic illness from the period of 2018–2022, and 2) evaluate their measurement properties and identify gaps in measurement testing. Methods: Electronic searches were conducted in MEDLINE, EMBASE, CINAHL and PsychINFO to identify articles developing and validating transition readiness in individuals aged 12–26 years with a chronic illness between 2018 and 2022. Two reviewers independently selected articles for review and assessed quality of measurement properties. Results: 22 studies met inclusion criteria reporting on 21 different tools. 9 studies reported on the development and evaluation of a new tool, and 13 reported on the adaptation, modification, and/or translation of an existing tool. Most adapted tools were translations and adaptations of the Transition Readiness Assessment Questionnaire (TRAQ) (n = 7). While some of these studies demonstrated sufficient internal consistency and structural validity, few met the COSMIN criteria for reliability and hypothesis testing and none met the criteria for cross-cultural validity. Criterion validity and measurement error were not assessed in any studies. Conclusion: Many new transition readiness measures continue to be developed in recent years, yet few have undergone rigorous psychometric evaluation. The TRAQ was the existing measure most often used as a model for developing new or modified tools. There remains a clear need for further validation of existing measures of patients’ readiness to transition as opposed to continuing to develop new measures.http://www.sciencedirect.com/science/article/pii/S2949923223000223Transition to adult careAdolescent chronic illnessTransition readiness measurement |
| spellingShingle | Tieghan Killackey Fareha Nishat Ellen Elsman Erica Lawson Lauren Kelenc Jennifer N. Stinson Transition readiness measures for adolescents with chronic illness: A scoping review of new measures Health Care Transitions Transition to adult care Adolescent chronic illness Transition readiness measurement |
| title | Transition readiness measures for adolescents with chronic illness: A scoping review of new measures |
| title_full | Transition readiness measures for adolescents with chronic illness: A scoping review of new measures |
| title_fullStr | Transition readiness measures for adolescents with chronic illness: A scoping review of new measures |
| title_full_unstemmed | Transition readiness measures for adolescents with chronic illness: A scoping review of new measures |
| title_short | Transition readiness measures for adolescents with chronic illness: A scoping review of new measures |
| title_sort | transition readiness measures for adolescents with chronic illness a scoping review of new measures |
| topic | Transition to adult care Adolescent chronic illness Transition readiness measurement |
| url | http://www.sciencedirect.com/science/article/pii/S2949923223000223 |
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