Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure

Abstract Aims This study aimed to describe symptom prevalence of pain, shortness of breath, anxiety, and nausea and to identify factors associated with symptom relief in patients with heart failure during their last week of life. Methods and results This nationwide study used data from the Swedish R...

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Main Authors: Kristofer Årestedt, Margareta Brännström, Lorraine S. Evangelista, Anna Strömberg, Anette Alvariza
Format: Article
Language:English
Published: Wiley 2021-06-01
Series:ESC Heart Failure
Subjects:
Online Access:https://doi.org/10.1002/ehf2.13312
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author Kristofer Årestedt
Margareta Brännström
Lorraine S. Evangelista
Anna Strömberg
Anette Alvariza
author_facet Kristofer Årestedt
Margareta Brännström
Lorraine S. Evangelista
Anna Strömberg
Anette Alvariza
author_sort Kristofer Årestedt
collection DOAJ
description Abstract Aims This study aimed to describe symptom prevalence of pain, shortness of breath, anxiety, and nausea and to identify factors associated with symptom relief in patients with heart failure during their last week of life. Methods and results This nationwide study used data from the Swedish Register of Palliative Care and the Swedish Causes of Death Certificate Register. The sample included 4215 patients with heart failure as the underlying cause of death. Descriptive statistics and logistic regression were used to analyse data. Pain was the most prevalent symptom (64.0%), followed by anxiety (45.1%), shortness of breath (28.8%), and nausea (11.4%). Pain was the most often totally relieved (77.5%), followed by anxiety (68.4%), nausea (54.7%), and shortness of breath (37.1%). Key aspects of palliative care such as documented palliative care in the patient record, individual medication prescriptions by injection, symptom assessment with validated scales, documented end‐of‐life discussions with patients and/or family members, and external consultation were significantly associated with symptom relief. Relief of pain, shortness of breath, anxiety, and nausea were significantly better managed in nursing homes and hospice/inpatient palliative care compared with care in hospitals. Conclusions The results show that key aspects of palliative care during the last week of life are significantly associated with symptom relief. Increased access to palliative care could provide a way to improve care during the last week of life for patients with heart failure. Home‐based settings provided more symptom relief than hospitals, which may indicate that the latter focuses on treatments and saving lives rather than promoting life before death.
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spelling doaj.art-81211bea7e544b3693bb46a4854f6a402022-12-27T03:53:07ZengWileyESC Heart Failure2055-58222021-06-01832202220910.1002/ehf2.13312Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failureKristofer Årestedt0Margareta Brännström1Lorraine S. Evangelista2Anna Strömberg3Anette Alvariza4Faculty of Health and Life Sciences Linnaeus University Kalmar SE‐39182 SwedenDepartment of Nursing Umeå University, Campus Skellefteå Skellefteå SwedenSchool of Nursing University of Texas Medical Branch Galveston TX USADepartment of Health, Medicine and Caring Sciences and Department of Cardiology Linköping University Linköping SwedenDepartment of Health Care Sciences & Palliative Research Centre Ersta Sköndal Bräcke University College Stockholm SwedenAbstract Aims This study aimed to describe symptom prevalence of pain, shortness of breath, anxiety, and nausea and to identify factors associated with symptom relief in patients with heart failure during their last week of life. Methods and results This nationwide study used data from the Swedish Register of Palliative Care and the Swedish Causes of Death Certificate Register. The sample included 4215 patients with heart failure as the underlying cause of death. Descriptive statistics and logistic regression were used to analyse data. Pain was the most prevalent symptom (64.0%), followed by anxiety (45.1%), shortness of breath (28.8%), and nausea (11.4%). Pain was the most often totally relieved (77.5%), followed by anxiety (68.4%), nausea (54.7%), and shortness of breath (37.1%). Key aspects of palliative care such as documented palliative care in the patient record, individual medication prescriptions by injection, symptom assessment with validated scales, documented end‐of‐life discussions with patients and/or family members, and external consultation were significantly associated with symptom relief. Relief of pain, shortness of breath, anxiety, and nausea were significantly better managed in nursing homes and hospice/inpatient palliative care compared with care in hospitals. Conclusions The results show that key aspects of palliative care during the last week of life are significantly associated with symptom relief. Increased access to palliative care could provide a way to improve care during the last week of life for patients with heart failure. Home‐based settings provided more symptom relief than hospitals, which may indicate that the latter focuses on treatments and saving lives rather than promoting life before death.https://doi.org/10.1002/ehf2.13312DeathEnd of lifeHeart failurePalliative careSymptoms
spellingShingle Kristofer Årestedt
Margareta Brännström
Lorraine S. Evangelista
Anna Strömberg
Anette Alvariza
Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure
ESC Heart Failure
Death
End of life
Heart failure
Palliative care
Symptoms
title Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure
title_full Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure
title_fullStr Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure
title_full_unstemmed Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure
title_short Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure
title_sort palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure
topic Death
End of life
Heart failure
Palliative care
Symptoms
url https://doi.org/10.1002/ehf2.13312
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