Problematising carer identification: A narrative study with older partner's providing end-of-life care

Internationally health and social care policies have increasingly promoted carer selfidentification as the best way to target and support people in caring roles.There has been remarkably little research concerning how people adopt the identity. This paper explores the carer identification practices...

Full description

Bibliographic Details
Main Authors: Tessa Morgan, Robbie Duschinsky, Merryn Gott, Stephen Barclay
Format: Article
Language:English
Published: Elsevier 2021-12-01
Series:SSM: Qualitative Research in Health
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2667321521000159
_version_ 1819094266882818048
author Tessa Morgan
Robbie Duschinsky
Merryn Gott
Stephen Barclay
author_facet Tessa Morgan
Robbie Duschinsky
Merryn Gott
Stephen Barclay
author_sort Tessa Morgan
collection DOAJ
description Internationally health and social care policies have increasingly promoted carer selfidentification as the best way to target and support people in caring roles.There has been remarkably little research concerning how people adopt the identity. This paper explores the carer identification practices of older partners providing end-of-life care.A narrative interview study comprising 41 interviews with 20 participants from 17 couples were conducted between in August 2018–August 2019 in the United Kingdom.This paper coins the term carering to denote the co-constructive practices of policy makers, researchers and broader cultural narratives calling forth the carer identity and the unfolding practices of people interacting with the carer identity in relation to their sense of self.Through three narrative case studies, this paper captures the diversity of older partners carering with three categories defined as engaged, ambivalent and disengaged carering.The carer identity was only taken-up when participants felt that the qualities assigned to being a carer, such as experiencing social isolation and providing 24/7 care, reflected their own personal experience. Given that not every older partner wants to, or will, self-identify as a carer, this paper suggests that carer selfidentification should not be the only strategy to identify and support people involved in caring. Qualitative health researchers also need to be reflexive in their use of the carer identity when studying caring-related topics.
first_indexed 2024-12-21T23:24:41Z
format Article
id doaj.art-817be353cd0947bcb06ea32b7c45d397
institution Directory Open Access Journal
issn 2667-3215
language English
last_indexed 2024-12-21T23:24:41Z
publishDate 2021-12-01
publisher Elsevier
record_format Article
series SSM: Qualitative Research in Health
spelling doaj.art-817be353cd0947bcb06ea32b7c45d3972022-12-21T18:46:39ZengElsevierSSM: Qualitative Research in Health2667-32152021-12-011100015Problematising carer identification: A narrative study with older partner's providing end-of-life careTessa Morgan0Robbie Duschinsky1Merryn Gott2Stephen Barclay3Department of Public Health and Primary Care, University of Cambridge, UK; Corresponding author. West Forvie Building Robinson Way, Cambridge, CB2 0SZ, UK.Department of Public Health and Primary Care, University of Cambridge, UKSchool of Nursing, Faculty of Medical and Health Sciences, The University of Auckland, UKDepartment of Public Health and Primary Care, University of Cambridge; University of East Anglia, UKInternationally health and social care policies have increasingly promoted carer selfidentification as the best way to target and support people in caring roles.There has been remarkably little research concerning how people adopt the identity. This paper explores the carer identification practices of older partners providing end-of-life care.A narrative interview study comprising 41 interviews with 20 participants from 17 couples were conducted between in August 2018–August 2019 in the United Kingdom.This paper coins the term carering to denote the co-constructive practices of policy makers, researchers and broader cultural narratives calling forth the carer identity and the unfolding practices of people interacting with the carer identity in relation to their sense of self.Through three narrative case studies, this paper captures the diversity of older partners carering with three categories defined as engaged, ambivalent and disengaged carering.The carer identity was only taken-up when participants felt that the qualities assigned to being a carer, such as experiencing social isolation and providing 24/7 care, reflected their own personal experience. Given that not every older partner wants to, or will, self-identify as a carer, this paper suggests that carer selfidentification should not be the only strategy to identify and support people involved in caring. Qualitative health researchers also need to be reflexive in their use of the carer identity when studying caring-related topics.http://www.sciencedirect.com/science/article/pii/S2667321521000159CaregivingOldest-oldFourth ageEnd-of-lifeInformal careIdentity
spellingShingle Tessa Morgan
Robbie Duschinsky
Merryn Gott
Stephen Barclay
Problematising carer identification: A narrative study with older partner's providing end-of-life care
SSM: Qualitative Research in Health
Caregiving
Oldest-old
Fourth age
End-of-life
Informal care
Identity
title Problematising carer identification: A narrative study with older partner's providing end-of-life care
title_full Problematising carer identification: A narrative study with older partner's providing end-of-life care
title_fullStr Problematising carer identification: A narrative study with older partner's providing end-of-life care
title_full_unstemmed Problematising carer identification: A narrative study with older partner's providing end-of-life care
title_short Problematising carer identification: A narrative study with older partner's providing end-of-life care
title_sort problematising carer identification a narrative study with older partner s providing end of life care
topic Caregiving
Oldest-old
Fourth age
End-of-life
Informal care
Identity
url http://www.sciencedirect.com/science/article/pii/S2667321521000159
work_keys_str_mv AT tessamorgan problematisingcareridentificationanarrativestudywitholderpartnersprovidingendoflifecare
AT robbieduschinsky problematisingcareridentificationanarrativestudywitholderpartnersprovidingendoflifecare
AT merryngott problematisingcareridentificationanarrativestudywitholderpartnersprovidingendoflifecare
AT stephenbarclay problematisingcareridentificationanarrativestudywitholderpartnersprovidingendoflifecare