Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia
Abstract Background Most countries face an ageing population, increasing chronic diseased, and constrictions on budget for providing health services. Involving patients in their own care by allowing them access to their patient data is a trend seen in many places. Methods Data on the type and level...
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| Format: | Article |
| Language: | English |
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BMC
2017-08-01
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| Series: | BMC Health Services Research |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12913-017-2482-y |
| _version_ | 1818927733366849536 |
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| author | Christian Nøhr Liisa Parv Pille Kink Elizabeth Cummings Helen Almond Jens Rahbek Nørgaard Paul Turner |
| author_facet | Christian Nøhr Liisa Parv Pille Kink Elizabeth Cummings Helen Almond Jens Rahbek Nørgaard Paul Turner |
| author_sort | Christian Nøhr |
| collection | DOAJ |
| description | Abstract Background Most countries face an ageing population, increasing chronic diseased, and constrictions on budget for providing health services. Involving patients in their own care by allowing them access to their patient data is a trend seen in many places. Methods Data on the type and level of access citizens have to their own health data in three countries was gathered from public sources. Results Data from each individual country is presented and the experiences of Denmark, Estonia and Australia are examined whilst similarities and differences explored. The discussion adopts a citizen-centred perspective to consider how the different e-portal systems support, protect and structure citizen interactions with their own health data in three key areas: Security, privacy and data protection; User support; and Citizen adoption and use. Conclusions The paper highlights the impact of opt-in/opt-out approaches on citizen access and the lack of a structured approach to addressing differences in citizen health and e-health literacy. This research also confirms while current data provides detail on the availability and use of personal health data by citizens, questions still remain over the ultimate impact on patient outcomes of these initiatives. It is anticipated the insights generated from the three countries experiences, supporting citizen access to their health data will be useful to improve these initiatives and guide other countries aspiring to support similar initiatives. |
| first_indexed | 2024-12-20T03:17:42Z |
| format | Article |
| id | doaj.art-81bd32fdd2724f68aa58158e649c4a41 |
| institution | Directory Open Access Journal |
| issn | 1472-6963 |
| language | English |
| last_indexed | 2024-12-20T03:17:42Z |
| publishDate | 2017-08-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Health Services Research |
| spelling | doaj.art-81bd32fdd2724f68aa58158e649c4a412022-12-21T19:55:19ZengBMCBMC Health Services Research1472-69632017-08-0117111110.1186/s12913-017-2482-yNationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and AustraliaChristian Nøhr0Liisa Parv1Pille Kink2Elizabeth Cummings3Helen Almond4Jens Rahbek Nørgaard5Paul Turner6Danish Centre for Health Informatics, Department of Development and Planning, Aalborg UniversityE-Health Laboratory, Tallinn University of TechnologyEast Tallinn Central HospitalSchool of Health Sciences, University of TasmaniaeHealth Services Research Group, School of Engineering & ICT, University of TasmaniaMedCom, The Danish Health Data NetworkeHealth Services Research Group, School of Engineering & ICT, University of TasmaniaAbstract Background Most countries face an ageing population, increasing chronic diseased, and constrictions on budget for providing health services. Involving patients in their own care by allowing them access to their patient data is a trend seen in many places. Methods Data on the type and level of access citizens have to their own health data in three countries was gathered from public sources. Results Data from each individual country is presented and the experiences of Denmark, Estonia and Australia are examined whilst similarities and differences explored. The discussion adopts a citizen-centred perspective to consider how the different e-portal systems support, protect and structure citizen interactions with their own health data in three key areas: Security, privacy and data protection; User support; and Citizen adoption and use. Conclusions The paper highlights the impact of opt-in/opt-out approaches on citizen access and the lack of a structured approach to addressing differences in citizen health and e-health literacy. This research also confirms while current data provides detail on the availability and use of personal health data by citizens, questions still remain over the ultimate impact on patient outcomes of these initiatives. It is anticipated the insights generated from the three countries experiences, supporting citizen access to their health data will be useful to improve these initiatives and guide other countries aspiring to support similar initiatives.http://link.springer.com/article/10.1186/s12913-017-2482-yElectronic health recordMedical informatics applicationPatient centred careHealth services |
| spellingShingle | Christian Nøhr Liisa Parv Pille Kink Elizabeth Cummings Helen Almond Jens Rahbek Nørgaard Paul Turner Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia BMC Health Services Research Electronic health record Medical informatics application Patient centred care Health services |
| title | Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia |
| title_full | Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia |
| title_fullStr | Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia |
| title_full_unstemmed | Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia |
| title_short | Nationwide citizen access to their health data: analysing and comparing experiences in Denmark, Estonia and Australia |
| title_sort | nationwide citizen access to their health data analysing and comparing experiences in denmark estonia and australia |
| topic | Electronic health record Medical informatics application Patient centred care Health services |
| url | http://link.springer.com/article/10.1186/s12913-017-2482-y |
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