Researchers’ experiences working with community advisory boards: How community member feedback impacted the research
Abstract Introduction: To assess researchers’ experiences working with community advisory boards (CABs) and perceptions of how community member stakeholder feedback impacted the research. Methods: Individual interviews were conducted with researchers (n= 34) who had presented their research to a...
| Main Authors: | , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Cambridge University Press
2021-01-01
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| Series: | Journal of Clinical and Translational Science |
| Subjects: | |
| Online Access: | https://www.cambridge.org/core/product/identifier/S2059866121000224/type/journal_article |
| _version_ | 1811156590380711936 |
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| author | Tabetha A. Brockman Joyce E. Balls-Berry Ian W. West Miguel Valdez-Soto Monica L. Albertie Noreen A. Stephenson Farhia M. Omar Mitch Moore Marty Alemán Pastor Albert Berry Suganya Karuppana Christi A. Patten |
| author_facet | Tabetha A. Brockman Joyce E. Balls-Berry Ian W. West Miguel Valdez-Soto Monica L. Albertie Noreen A. Stephenson Farhia M. Omar Mitch Moore Marty Alemán Pastor Albert Berry Suganya Karuppana Christi A. Patten |
| author_sort | Tabetha A. Brockman |
| collection | DOAJ |
| description |
Abstract
Introduction:
To assess researchers’ experiences working with community advisory boards (CABs) and perceptions of how community member stakeholder feedback impacted the research.
Methods:
Individual interviews were conducted with researchers (n= 34) who had presented their research to a Mayo Clinic CAB (at MN, AZ, or FL) from 2014 to 2017, with an average interview duration of 10–15 min. Researchers were asked “In what ways did the feedback you received from the CAB influence your research?” A validated, structured, 7-item interview was used to assess domains of the potential influence that CABs had on the research: (1) pre-research (e.g., generated ideas), (2) infrastructure (e.g., budget preparation), (3) research design, (4) implementation (e.g., research recruitment), (5) analysis, (6) dissemination, and (7) post-research. A total mean score was calculated with a possible range of 0–7. In addition, open-ended examples and feedback from researchers in response to each domain were summarized for themes using content analysis.
Results:
Researchers reported that the CAB influenced research in the following domains: pre-research (24%), infrastructure (24%), study design (41%), implementation (41%), analysis (6%), dissemination (24%), and post-research activities (18%). The mean total score was = 1.8 (SD = 1.7, range: 0–6). Open-ended responses revealed major themes of CAB helpfulness in generating/refining ideas, identifying community partners, culturally tailored and targeted recruitment strategies, intervention design and delivery, and dissemination.
Conclusion:
Findings from this preliminary evaluation indicate that despite positive experiences noted in open-ended feedback, the perceived quantitative impact of CAB feedback on the research was moderate. Bidirectional communication between researchers and community member stakeholders has the potential to make clinical and translational research more relevant and appropriate.
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| first_indexed | 2024-04-10T04:53:48Z |
| format | Article |
| id | doaj.art-8226651206174171a30278d010dffe93 |
| institution | Directory Open Access Journal |
| issn | 2059-8661 |
| language | English |
| last_indexed | 2024-04-10T04:53:48Z |
| publishDate | 2021-01-01 |
| publisher | Cambridge University Press |
| record_format | Article |
| series | Journal of Clinical and Translational Science |
| spelling | doaj.art-8226651206174171a30278d010dffe932023-03-09T12:31:03ZengCambridge University PressJournal of Clinical and Translational Science2059-86612021-01-01510.1017/cts.2021.22Researchers’ experiences working with community advisory boards: How community member feedback impacted the researchTabetha A. Brockman0Joyce E. Balls-Berry1Ian W. West2Miguel Valdez-Soto3Monica L. Albertie4Noreen A. Stephenson5Farhia M. Omar6Mitch Moore7Marty Alemán8Pastor Albert Berry9Suganya Karuppana10Christi A. Patten11Center for Clinical and Translational Science, Community Engagement in Research Program, Mayo Clinic, Rochester, MN, USA Department of Psychiatry and Psychology, Mayo Clinic, Rochester, MN, USA Center for Health Equity and Community Engagement Research, Mayo Clinic, Rochester, MN, USABehavioral Health Research Program, Mayo Clinic, Rochester, MN, USA Knight Alzheimer’s Disease Research Center Health Disparities and Equity Core, Washington University, St. Louis, MO, USACenter for Clinical and Translational Science, Community Engagement in Research Program, Mayo Clinic, Rochester, MN, USA Behavioral Health Research Program, Mayo Clinic, Rochester, MN, USACenter for Clinical and Translational Science, Community Engagement in Research Program, Mayo Clinic, Rochester, MN, USA Center for Health Equity and Community Engagement Research, Mayo Clinic, Rochester, MN, USACenter for Clinical and Translational Science, Community Engagement in Research Program, Mayo Clinic, Rochester, MN, USA Center for Health Equity and Community Engagement Research, Mayo Clinic, Rochester, MN, USACenter for Health Equity and Community Engagement Research, Mayo Clinic, Rochester, MN, USACenter for Health Equity and Community Engagement Research, Mayo Clinic, Rochester, MN, USACounselor Education Department, Winona State University, Rochester, MN, USADepartment of Nursing, Augsburg University, Rochester, MN, USAFaith Chapel Church of God, Jacksonville, FL, USADepartment of Family Medicine, Adelante Healthcare, Phoenix, AZ, USACenter for Clinical and Translational Science, Community Engagement in Research Program, Mayo Clinic, Rochester, MN, USA Department of Psychiatry and Psychology, Mayo Clinic, Rochester, MN, USA Behavioral Health Research Program, Mayo Clinic, Rochester, MN, USA Abstract Introduction: To assess researchers’ experiences working with community advisory boards (CABs) and perceptions of how community member stakeholder feedback impacted the research. Methods: Individual interviews were conducted with researchers (n= 34) who had presented their research to a Mayo Clinic CAB (at MN, AZ, or FL) from 2014 to 2017, with an average interview duration of 10–15 min. Researchers were asked “In what ways did the feedback you received from the CAB influence your research?” A validated, structured, 7-item interview was used to assess domains of the potential influence that CABs had on the research: (1) pre-research (e.g., generated ideas), (2) infrastructure (e.g., budget preparation), (3) research design, (4) implementation (e.g., research recruitment), (5) analysis, (6) dissemination, and (7) post-research. A total mean score was calculated with a possible range of 0–7. In addition, open-ended examples and feedback from researchers in response to each domain were summarized for themes using content analysis. Results: Researchers reported that the CAB influenced research in the following domains: pre-research (24%), infrastructure (24%), study design (41%), implementation (41%), analysis (6%), dissemination (24%), and post-research activities (18%). The mean total score was = 1.8 (SD = 1.7, range: 0–6). Open-ended responses revealed major themes of CAB helpfulness in generating/refining ideas, identifying community partners, culturally tailored and targeted recruitment strategies, intervention design and delivery, and dissemination. Conclusion: Findings from this preliminary evaluation indicate that despite positive experiences noted in open-ended feedback, the perceived quantitative impact of CAB feedback on the research was moderate. Bidirectional communication between researchers and community member stakeholders has the potential to make clinical and translational research more relevant and appropriate. https://www.cambridge.org/core/product/identifier/S2059866121000224/type/journal_articleCommunity advisory boardcommunity engagementresearch |
| spellingShingle | Tabetha A. Brockman Joyce E. Balls-Berry Ian W. West Miguel Valdez-Soto Monica L. Albertie Noreen A. Stephenson Farhia M. Omar Mitch Moore Marty Alemán Pastor Albert Berry Suganya Karuppana Christi A. Patten Researchers’ experiences working with community advisory boards: How community member feedback impacted the research Journal of Clinical and Translational Science Community advisory board community engagement research |
| title | Researchers’ experiences working with community advisory boards: How community member feedback impacted the research |
| title_full | Researchers’ experiences working with community advisory boards: How community member feedback impacted the research |
| title_fullStr | Researchers’ experiences working with community advisory boards: How community member feedback impacted the research |
| title_full_unstemmed | Researchers’ experiences working with community advisory boards: How community member feedback impacted the research |
| title_short | Researchers’ experiences working with community advisory boards: How community member feedback impacted the research |
| title_sort | researchers experiences working with community advisory boards how community member feedback impacted the research |
| topic | Community advisory board community engagement research |
| url | https://www.cambridge.org/core/product/identifier/S2059866121000224/type/journal_article |
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