Re-contact Following Withdrawal of Minors from Research
Re-contacting minors enrolled in research upon their reaching the age of majority or maturity to seek their autonomous consent to continue their participation is considered an ethical requirement. This issue has generally been studied in the context of minors who are actively involved in the resear...
| Main Authors: | , , , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Programmes de bioéthique, École de santé publique de l'Université de Montréal
2022-03-01
|
| Series: | Canadian Journal of Bioethics |
| Subjects: | |
| Online Access: | https://cjb-rcb.ca/index.php/cjb-rcb/article/view/435 |
| _version_ | 1818771874793914368 |
|---|---|
| author | Dimitri Patrinos Bartha Maria Knoppers Erika Kleiderman Noriyeh Rahbari David P. Laplante Ashley Wazana |
| author_facet | Dimitri Patrinos Bartha Maria Knoppers Erika Kleiderman Noriyeh Rahbari David P. Laplante Ashley Wazana |
| author_sort | Dimitri Patrinos |
| collection | DOAJ |
| description |
Re-contacting minors enrolled in research upon their reaching the age of majority or maturity to seek their autonomous consent to continue their participation is considered an ethical requirement. This issue has generally been studied in the context of minors who are actively involved in the research. However, what becomes of this issue when the minor has been withdrawn from the research or has been lost to follow-up? May researchers re-contact the minor at the age of majority or maturity under these circumstances to seek the consent of the minor to re-join the research? In this paper, we explore the ethical permissibility of recontacting minors whose participation in research has ended, once they have reached the age of majority or maturity. In particular, we identify scenarios in which the participation of a minor in a research project may end and discuss factors that can help determine such an ethical permissibility. Finally, we discuss the practical and ethical challenges of re-contact and present re-consent models that may be used by researchers.
|
| first_indexed | 2024-12-18T10:00:24Z |
| format | Article |
| id | doaj.art-826592ffbe904679a3431e248cf482a2 |
| institution | Directory Open Access Journal |
| issn | 2561-4665 |
| language | English |
| last_indexed | 2024-12-18T10:00:24Z |
| publishDate | 2022-03-01 |
| publisher | Programmes de bioéthique, École de santé publique de l'Université de Montréal |
| record_format | Article |
| series | Canadian Journal of Bioethics |
| spelling | doaj.art-826592ffbe904679a3431e248cf482a22022-12-21T21:11:41ZengProgrammes de bioéthique, École de santé publique de l'Université de MontréalCanadian Journal of Bioethics2561-46652022-03-015110.7202/1087202arRe-contact Following Withdrawal of Minors from ResearchDimitri Patrinos0Bartha Maria Knoppers1Erika Kleiderman2Noriyeh Rahbari3David P. Laplante4Ashley Wazana5Centre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, Montreal, CanadaCentre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, Montreal, CanadaCentre of Genomics and Policy, Department of Human Genetics, Faculty of Medicine, McGill University, Montreal, CanadaCentre for Child Development and Mental Health & Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, CanadaCentre for Child Development and Mental Health & Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, CanadaCentre for Child Development and Mental Health & Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, Canada Re-contacting minors enrolled in research upon their reaching the age of majority or maturity to seek their autonomous consent to continue their participation is considered an ethical requirement. This issue has generally been studied in the context of minors who are actively involved in the research. However, what becomes of this issue when the minor has been withdrawn from the research or has been lost to follow-up? May researchers re-contact the minor at the age of majority or maturity under these circumstances to seek the consent of the minor to re-join the research? In this paper, we explore the ethical permissibility of recontacting minors whose participation in research has ended, once they have reached the age of majority or maturity. In particular, we identify scenarios in which the participation of a minor in a research project may end and discuss factors that can help determine such an ethical permissibility. Finally, we discuss the practical and ethical challenges of re-contact and present re-consent models that may be used by researchers. https://cjb-rcb.ca/index.php/cjb-rcb/article/view/435Re-contactRe-consentMinorsConsentAssentResearch |
| spellingShingle | Dimitri Patrinos Bartha Maria Knoppers Erika Kleiderman Noriyeh Rahbari David P. Laplante Ashley Wazana Re-contact Following Withdrawal of Minors from Research Canadian Journal of Bioethics Re-contact Re-consent Minors Consent Assent Research |
| title | Re-contact Following Withdrawal of Minors from Research |
| title_full | Re-contact Following Withdrawal of Minors from Research |
| title_fullStr | Re-contact Following Withdrawal of Minors from Research |
| title_full_unstemmed | Re-contact Following Withdrawal of Minors from Research |
| title_short | Re-contact Following Withdrawal of Minors from Research |
| title_sort | re contact following withdrawal of minors from research |
| topic | Re-contact Re-consent Minors Consent Assent Research |
| url | https://cjb-rcb.ca/index.php/cjb-rcb/article/view/435 |
| work_keys_str_mv | AT dimitripatrinos recontactfollowingwithdrawalofminorsfromresearch AT barthamariaknoppers recontactfollowingwithdrawalofminorsfromresearch AT erikakleiderman recontactfollowingwithdrawalofminorsfromresearch AT noriyehrahbari recontactfollowingwithdrawalofminorsfromresearch AT davidplaplante recontactfollowingwithdrawalofminorsfromresearch AT ashleywazana recontactfollowingwithdrawalofminorsfromresearch |