Accessibility and readability of online patient education on cutaneous lymphomasCapsule Summary

Background: Patients facing a cutaneous lymphoma diagnosis frequently turn to the internet for information but finding patient-accessible education may be a challenge. Objective: To investigate accessibility and readability of patient-oriented online education on cutaneous lymphomas, including cutan...

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Main Authors: Celine M. Schreidah, BS, Lauren M. Fahmy, BS, Brigit A. Lapolla, BS, Emily R. Gordon, BA, Bradley D. Kwinta, MD, Larisa J. Geskin, MD
Format: Article
Language:English
Published: Elsevier 2023-12-01
Series:JAAD International
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2666328723001177
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author Celine M. Schreidah, BS
Lauren M. Fahmy, BS
Brigit A. Lapolla, BS
Emily R. Gordon, BA
Bradley D. Kwinta, MD
Larisa J. Geskin, MD
author_facet Celine M. Schreidah, BS
Lauren M. Fahmy, BS
Brigit A. Lapolla, BS
Emily R. Gordon, BA
Bradley D. Kwinta, MD
Larisa J. Geskin, MD
author_sort Celine M. Schreidah, BS
collection DOAJ
description Background: Patients facing a cutaneous lymphoma diagnosis frequently turn to the internet for information but finding patient-accessible education may be a challenge. Objective: To investigate accessibility and readability of patient-oriented online education on cutaneous lymphomas, including cutaneous T-cell and B-cell lymphoma subtypes. Methods: This study queried a search engine for 11 cutaneous lymphoma terms, resulting in 1083 webpages. Webpages were screened using defined inclusion/exclusion criteria; literature directed to physicians and scientists was excluded. Webpages were stratified by academic/nonacademic and dermatology/nondermatology hosts and assessed by order of appearance. Readability, including text complexity, was analyzed for grade level understanding using 5 established calculators. Overall readability was assessed by Flesch–Kincaid Reading Ease. Results: Academic webpages had earlier order of appearance. There was a dearth in dermatology-hosted webpages. Rarer cutaneous lymphomas yielded fewer patient-accessible results. Search term readability significantly exceeded the American Medical Association–recommended sixth grade level (P < .001∗), with higher grade levels for cutaneous T-cell lymphoma subtype webpages than cutaneous B-cell lymphoma subtypes. Limitations: Webpage quality, accuracy, and language were not assessed. Conclusion: Current online education for cutaneous lymphomas exceeds the American Medical Association’s maximum readability recommendation. There is a need for more patient-accessible education amidst predominance of scientific literature, greater dermatology host websites, and enhanced readability of existing online education.
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spelling doaj.art-829a30293a3d4a88bf75f4d0519e69012023-09-12T04:16:24ZengElsevierJAAD International2666-32872023-12-01138390Accessibility and readability of online patient education on cutaneous lymphomasCapsule SummaryCeline M. Schreidah, BS0Lauren M. Fahmy, BS1Brigit A. Lapolla, BS2Emily R. Gordon, BA3Bradley D. Kwinta, MD4Larisa J. Geskin, MD5Columbia University Vagelos College of Physicians and Surgeons, New York, New YorkColumbia University Vagelos College of Physicians and Surgeons, New York, New YorkDepartment of Dermatology, Columbia University Irving Medical Center, New York, New YorkColumbia University Vagelos College of Physicians and Surgeons, New York, New YorkColumbia University Vagelos College of Physicians and Surgeons, New York, New YorkDepartment of Dermatology, Columbia University Irving Medical Center, New York, New York; Correspondence to: Larisa J. Geskin, MD, Department of Dermatology, Columbia University Irving Medical Center, 161 Fort Washington Ave, 12th Floor, New York, NY 10032.Background: Patients facing a cutaneous lymphoma diagnosis frequently turn to the internet for information but finding patient-accessible education may be a challenge. Objective: To investigate accessibility and readability of patient-oriented online education on cutaneous lymphomas, including cutaneous T-cell and B-cell lymphoma subtypes. Methods: This study queried a search engine for 11 cutaneous lymphoma terms, resulting in 1083 webpages. Webpages were screened using defined inclusion/exclusion criteria; literature directed to physicians and scientists was excluded. Webpages were stratified by academic/nonacademic and dermatology/nondermatology hosts and assessed by order of appearance. Readability, including text complexity, was analyzed for grade level understanding using 5 established calculators. Overall readability was assessed by Flesch–Kincaid Reading Ease. Results: Academic webpages had earlier order of appearance. There was a dearth in dermatology-hosted webpages. Rarer cutaneous lymphomas yielded fewer patient-accessible results. Search term readability significantly exceeded the American Medical Association–recommended sixth grade level (P < .001∗), with higher grade levels for cutaneous T-cell lymphoma subtype webpages than cutaneous B-cell lymphoma subtypes. Limitations: Webpage quality, accuracy, and language were not assessed. Conclusion: Current online education for cutaneous lymphomas exceeds the American Medical Association’s maximum readability recommendation. There is a need for more patient-accessible education amidst predominance of scientific literature, greater dermatology host websites, and enhanced readability of existing online education.http://www.sciencedirect.com/science/article/pii/S2666328723001177accessibilitycutaneous B-cell lymphomacutaneous lymphomacutaneous T-cell lymphomadigital healthpatient education
spellingShingle Celine M. Schreidah, BS
Lauren M. Fahmy, BS
Brigit A. Lapolla, BS
Emily R. Gordon, BA
Bradley D. Kwinta, MD
Larisa J. Geskin, MD
Accessibility and readability of online patient education on cutaneous lymphomasCapsule Summary
JAAD International
accessibility
cutaneous B-cell lymphoma
cutaneous lymphoma
cutaneous T-cell lymphoma
digital health
patient education
title Accessibility and readability of online patient education on cutaneous lymphomasCapsule Summary
title_full Accessibility and readability of online patient education on cutaneous lymphomasCapsule Summary
title_fullStr Accessibility and readability of online patient education on cutaneous lymphomasCapsule Summary
title_full_unstemmed Accessibility and readability of online patient education on cutaneous lymphomasCapsule Summary
title_short Accessibility and readability of online patient education on cutaneous lymphomasCapsule Summary
title_sort accessibility and readability of online patient education on cutaneous lymphomascapsule summary
topic accessibility
cutaneous B-cell lymphoma
cutaneous lymphoma
cutaneous T-cell lymphoma
digital health
patient education
url http://www.sciencedirect.com/science/article/pii/S2666328723001177
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