Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research

Abstract Background Research is needed to inform patient and provider decisions about how to best care for patients who go to the emergency department with complaints of chest pain when their symptoms are due to anxiety rather than a heart problem. However, this research may not be a high priority d...

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Main Authors: Jill D. Nault Connors, Marshall J. Conley, Laura S. Lorenz
Format: Article
Language:English
Published: BMC 2019-11-01
Series:Research Involvement and Engagement
Subjects:
Online Access:https://doi.org/10.1186/s40900-019-0166-y
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author Jill D. Nault Connors
Marshall J. Conley
Laura S. Lorenz
author_facet Jill D. Nault Connors
Marshall J. Conley
Laura S. Lorenz
author_sort Jill D. Nault Connors
collection DOAJ
description Abstract Background Research is needed to inform patient and provider decisions about how to best care for patients who go to the emergency department with complaints of chest pain when their symptoms are due to anxiety rather than a heart problem. However, this research may not be a high priority due, in part, to a lack of awareness for the severity of anxiety symptoms and the impact of anxiety on peoples’ daily lives. In this commentary article, we highlight the use of Photovoice as a unique method to share patients’ lived experience of anxiety with providers, researchers, and health system leaders. Main text A brief background on Photovoice methods, the process of patient partner involvement in Photovoice, and the project’s Photovoice results (posters, photos and captions) is presented. Conclusion Photovoice achieved its intended effects of increasing awareness of all stakeholders about the burden of anxiety in patients’ lives and the imperative of improving emergency department care for anxiety. This resulted in increased participation in a multi-stakeholder research partnership, critical health system support that included costs to the health system associated with implementing interventions to be tested, and submission of a patient-centered outcomes research proposal that is currently under review. In addition, Photovoice had positive benefits for participants including a therapeutic effect, may have increased group cohesion, and empowerment of patients as partners in the research process.
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spelling doaj.art-8341ed46b4e2491e92f73615e0d627c72022-12-21T19:39:23ZengBMCResearch Involvement and Engagement2056-75292019-11-015111010.1186/s40900-019-0166-yUse of Photovoice to engage stakeholders in planning for patient-centered outcomes researchJill D. Nault Connors0Marshall J. Conley1Laura S. Lorenz2Department of Emergency Medicine, Indiana University School of MedicinePipeline-to-Proposal Award to the Trustees of Indiana UniversityVisiting Scholar, Heller School for Social Policy and Management, Brandeis UniversityAbstract Background Research is needed to inform patient and provider decisions about how to best care for patients who go to the emergency department with complaints of chest pain when their symptoms are due to anxiety rather than a heart problem. However, this research may not be a high priority due, in part, to a lack of awareness for the severity of anxiety symptoms and the impact of anxiety on peoples’ daily lives. In this commentary article, we highlight the use of Photovoice as a unique method to share patients’ lived experience of anxiety with providers, researchers, and health system leaders. Main text A brief background on Photovoice methods, the process of patient partner involvement in Photovoice, and the project’s Photovoice results (posters, photos and captions) is presented. Conclusion Photovoice achieved its intended effects of increasing awareness of all stakeholders about the burden of anxiety in patients’ lives and the imperative of improving emergency department care for anxiety. This resulted in increased participation in a multi-stakeholder research partnership, critical health system support that included costs to the health system associated with implementing interventions to be tested, and submission of a patient-centered outcomes research proposal that is currently under review. In addition, Photovoice had positive benefits for participants including a therapeutic effect, may have increased group cohesion, and empowerment of patients as partners in the research process.https://doi.org/10.1186/s40900-019-0166-yPhotovoiceAnxietyEngagementPatient-centered outcomes research
spellingShingle Jill D. Nault Connors
Marshall J. Conley
Laura S. Lorenz
Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research
Research Involvement and Engagement
Photovoice
Anxiety
Engagement
Patient-centered outcomes research
title Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research
title_full Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research
title_fullStr Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research
title_full_unstemmed Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research
title_short Use of Photovoice to engage stakeholders in planning for patient-centered outcomes research
title_sort use of photovoice to engage stakeholders in planning for patient centered outcomes research
topic Photovoice
Anxiety
Engagement
Patient-centered outcomes research
url https://doi.org/10.1186/s40900-019-0166-y
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AT lauraslorenz useofphotovoicetoengagestakeholdersinplanningforpatientcenteredoutcomesresearch