ReCOV: recovery and rehabilitation during and after COVID-19 – a study protocol of a longitudinal observational study on patients, next of kin and health care staff
Abstract Background The knowledge of the long-term consequences of covid-19 is limited. In patients, symptoms such as fatigue, decreased physical, psychological, and cognitive function, and nutritional problems have been reported. How the disease has affected next of kin, as well as staff involved i...
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| Format: | Article |
| Language: | English |
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BMC
2021-06-01
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| Series: | BMC Sports Science, Medicine and Rehabilitation |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s13102-021-00299-9 |
| _version_ | 1818862527473254400 |
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| author | E. Rydwik L. Anmyr M. Regardt A. McAllister R. Zarenoe E. Åkerman Y. Orrevall M. Bragesjö O. Dahl M. K. Kemani L. Nordstrand U. Ekman L. Holmström M. Nygren-Bonnier |
| author_facet | E. Rydwik L. Anmyr M. Regardt A. McAllister R. Zarenoe E. Åkerman Y. Orrevall M. Bragesjö O. Dahl M. K. Kemani L. Nordstrand U. Ekman L. Holmström M. Nygren-Bonnier |
| author_sort | E. Rydwik |
| collection | DOAJ |
| description | Abstract Background The knowledge of the long-term consequences of covid-19 is limited. In patients, symptoms such as fatigue, decreased physical, psychological, and cognitive function, and nutritional problems have been reported. How the disease has affected next of kin, as well as staff involved in the care of patients with covid-19, is also largely unknown. The overall aim of this study is therefore three-fold: (1) to describe and evaluate predictors of patient recovery, the type of rehabilitation received and patients’ experiences of specialized rehabilitation following COVID-19 infection; (2) to study how next of kin experienced the hospital care of their relative and their experiences of the psychosocial support they received as well as their psychological wellbeing; (3) to describe experiences of caring for patients with COVID-19 and evaluate psychological wellbeing, coping mechanisms and predictors for development of psychological distress over time in health care staff. Methods This observational longitudinal study consists of three cohorts; patients, next of kin, and health care staff. The assessments for the patients consist of physical tests (lung function, muscle strength, physical capacity) and questionnaires (communication and swallowing, nutritional status, hearing, activities of daily living, physical activity, fatigue, cognition) longitudinally at 3, 6 and 12 months. Patient records auditing (care, rehabilitation) will be done retrospectively at 12 months. Patients (3, 6 and 12 months), next of kin (6 months) and health care staff (baseline, 3, 6, 9 and 12 months) will receive questionnaires regarding, health-related quality of life, depression, anxiety, sleeping disorders, and post-traumatic stress. Staff will also answer questionnaires about burnout and coping strategies. Interviews will be conducted in all three cohorts. Discussion This study will be able to answer different research questions from a quantitative and qualitative perspective, by describing and evaluating long-term consequences and their associations with recovery, as well as exploring patients’, next of kins’ and staffs’ views and experiences of the disease and its consequences. This will form a base for a deeper and better understanding of the consequences of the disease from different perspectives as well as helping the society to better prepare for a future pandemic. |
| first_indexed | 2024-12-19T10:01:17Z |
| format | Article |
| id | doaj.art-834bf826bfb7405ea59593eaad953b88 |
| institution | Directory Open Access Journal |
| issn | 2052-1847 |
| language | English |
| last_indexed | 2024-12-19T10:01:17Z |
| publishDate | 2021-06-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Sports Science, Medicine and Rehabilitation |
| spelling | doaj.art-834bf826bfb7405ea59593eaad953b882022-12-21T20:26:38ZengBMCBMC Sports Science, Medicine and Rehabilitation2052-18472021-06-0113111010.1186/s13102-021-00299-9ReCOV: recovery and rehabilitation during and after COVID-19 – a study protocol of a longitudinal observational study on patients, next of kin and health care staffE. Rydwik0L. Anmyr1M. Regardt2A. McAllister3R. Zarenoe4E. Åkerman5Y. Orrevall6M. Bragesjö7O. Dahl8M. K. Kemani9L. Nordstrand10U. Ekman11L. Holmström12M. Nygren-Bonnier13Department of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska InstitutetWomen’s Health and Allied Health Professionals Theme, Department of Social Work in Health, Karolinska University HospitalWomen’s Health and Allied Health Professionals Theme, Medical Unit Occupational Therapy and Physiotherapy, Karolinska University HospitalWomen’s Health and Allied Health Professionals Theme, Medical Unit Speech and Language Pathology, Karolinska University HospitalWomen’s Health and Allied Health Professionals Theme, Department of Social Work in Health, Karolinska University HospitalPerioperative Medicine and Intensive Care Function, Department of Intensive Care, Karolinska University HospitalWomen’s Health and Allied Health Professionals Theme, Medical Unit Clinical Nutrition, Karolinska University HospitalDepartment of Clinical Neuroscience, Division of Psychology Karolinska InstitutetPerioperative Medicine and Intensive Care Function, Department of Intensive Care, Karolinska University HospitalWomen’s Health and Allied Health Professionals Theme, Medical Unit Medical Psychology Karolinska University HospitalDepartment of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska InstitutetWomen’s Health and Allied Health Professionals Theme, Medical Unit Medical Psychology Karolinska University HospitalDepartment of Clinical Neuroscience, Division of Psychology Karolinska InstitutetDepartment of Neurobiology, Care Sciences and Society, Division of Physiotherapy, Karolinska InstitutetAbstract Background The knowledge of the long-term consequences of covid-19 is limited. In patients, symptoms such as fatigue, decreased physical, psychological, and cognitive function, and nutritional problems have been reported. How the disease has affected next of kin, as well as staff involved in the care of patients with covid-19, is also largely unknown. The overall aim of this study is therefore three-fold: (1) to describe and evaluate predictors of patient recovery, the type of rehabilitation received and patients’ experiences of specialized rehabilitation following COVID-19 infection; (2) to study how next of kin experienced the hospital care of their relative and their experiences of the psychosocial support they received as well as their psychological wellbeing; (3) to describe experiences of caring for patients with COVID-19 and evaluate psychological wellbeing, coping mechanisms and predictors for development of psychological distress over time in health care staff. Methods This observational longitudinal study consists of three cohorts; patients, next of kin, and health care staff. The assessments for the patients consist of physical tests (lung function, muscle strength, physical capacity) and questionnaires (communication and swallowing, nutritional status, hearing, activities of daily living, physical activity, fatigue, cognition) longitudinally at 3, 6 and 12 months. Patient records auditing (care, rehabilitation) will be done retrospectively at 12 months. Patients (3, 6 and 12 months), next of kin (6 months) and health care staff (baseline, 3, 6, 9 and 12 months) will receive questionnaires regarding, health-related quality of life, depression, anxiety, sleeping disorders, and post-traumatic stress. Staff will also answer questionnaires about burnout and coping strategies. Interviews will be conducted in all three cohorts. Discussion This study will be able to answer different research questions from a quantitative and qualitative perspective, by describing and evaluating long-term consequences and their associations with recovery, as well as exploring patients’, next of kins’ and staffs’ views and experiences of the disease and its consequences. This will form a base for a deeper and better understanding of the consequences of the disease from different perspectives as well as helping the society to better prepare for a future pandemic.https://doi.org/10.1186/s13102-021-00299-9InfectionPhysical functionWell-being |
| spellingShingle | E. Rydwik L. Anmyr M. Regardt A. McAllister R. Zarenoe E. Åkerman Y. Orrevall M. Bragesjö O. Dahl M. K. Kemani L. Nordstrand U. Ekman L. Holmström M. Nygren-Bonnier ReCOV: recovery and rehabilitation during and after COVID-19 – a study protocol of a longitudinal observational study on patients, next of kin and health care staff BMC Sports Science, Medicine and Rehabilitation Infection Physical function Well-being |
| title | ReCOV: recovery and rehabilitation during and after COVID-19 – a study protocol of a longitudinal observational study on patients, next of kin and health care staff |
| title_full | ReCOV: recovery and rehabilitation during and after COVID-19 – a study protocol of a longitudinal observational study on patients, next of kin and health care staff |
| title_fullStr | ReCOV: recovery and rehabilitation during and after COVID-19 – a study protocol of a longitudinal observational study on patients, next of kin and health care staff |
| title_full_unstemmed | ReCOV: recovery and rehabilitation during and after COVID-19 – a study protocol of a longitudinal observational study on patients, next of kin and health care staff |
| title_short | ReCOV: recovery and rehabilitation during and after COVID-19 – a study protocol of a longitudinal observational study on patients, next of kin and health care staff |
| title_sort | recov recovery and rehabilitation during and after covid 19 a study protocol of a longitudinal observational study on patients next of kin and health care staff |
| topic | Infection Physical function Well-being |
| url | https://doi.org/10.1186/s13102-021-00299-9 |
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