Describing healthcare concerns of adolescents and adults with cerebral palsy
Aim: To identify healthcare concerns of adolescents and adults with cerebral palsy (CP) followed in a multidisciplinary rehabilitation program and identify patient factors associated with the number of concerns raised. Method: A retrospective chart review of initial consultations of 241 people with...
| Main Authors: | , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2023-01-01
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| Series: | Health Care Transitions |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2949923223000235 |
| _version_ | 1797235406101544960 |
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| author | Christina M. Winger Caitlin Cassidy Jessica Starowicz Laura Brunton |
| author_facet | Christina M. Winger Caitlin Cassidy Jessica Starowicz Laura Brunton |
| author_sort | Christina M. Winger |
| collection | DOAJ |
| description | Aim: To identify healthcare concerns of adolescents and adults with cerebral palsy (CP) followed in a multidisciplinary rehabilitation program and identify patient factors associated with the number of concerns raised. Method: A retrospective chart review of initial consultations of 241 people with CP (53 % male) aged 14 years or older (mean 27 y 5mo, SD 13 y 2mo), over a three-year period. Descriptive statistics were used to summarize data and explore associations. Poisson’s regression was used to predict healthcare concerns from patient demographic factors. Results: A total of 2237 distinct concerns were raised by the participants, with a median of 9 (range 1–34) concerns per person. Ten healthcare concern categories were reported by more than 25 % of the sample. Only age was associated with the number of healthcare concerns (r = 0.25, p < 0.001). Age and GMFCS significantly predicted total number of healthcare concerns. Interpretation: Adolescents and adults with CP reported a high number of healthcare concerns at the initial visit to the Transitional and Lifelong Care program and the number of concerns may increase with advancing age. The concerns identified span a variety of biopsychosocial spheres and supports the need for ongoing specialty and multidisciplinary care of this population through their adult years. |
| first_indexed | 2024-04-24T16:47:27Z |
| format | Article |
| id | doaj.art-8363b0f8298346dea3ac9842d6bd9541 |
| institution | Directory Open Access Journal |
| issn | 2949-9232 |
| language | English |
| last_indexed | 2024-04-24T16:47:27Z |
| publishDate | 2023-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Health Care Transitions |
| spelling | doaj.art-8363b0f8298346dea3ac9842d6bd95412024-03-29T05:52:41ZengElsevierHealth Care Transitions2949-92322023-01-011100023Describing healthcare concerns of adolescents and adults with cerebral palsyChristina M. Winger0Caitlin Cassidy1Jessica Starowicz2Laura Brunton3Health and Rehabilitation Sciences, Faculty of Health Sciences, Western University, London, ON, CanadaPhysical Medicine and Rehabilitation and Paediatrics, Schulich School of Medicine & Dentistry, Western University, London, ON, CanadaHealth and Rehabilitation Sciences, Faculty of Health Sciences, Western University, London, ON, CanadaSchool of Physical Therapy, Faculty of Health Sciences, Western University, London, ON, Canada; CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON, Canada; Corresponding author at: 1588 Elborn College, 1201 Western Rd., London, ON N6G 1H, Canada.Aim: To identify healthcare concerns of adolescents and adults with cerebral palsy (CP) followed in a multidisciplinary rehabilitation program and identify patient factors associated with the number of concerns raised. Method: A retrospective chart review of initial consultations of 241 people with CP (53 % male) aged 14 years or older (mean 27 y 5mo, SD 13 y 2mo), over a three-year period. Descriptive statistics were used to summarize data and explore associations. Poisson’s regression was used to predict healthcare concerns from patient demographic factors. Results: A total of 2237 distinct concerns were raised by the participants, with a median of 9 (range 1–34) concerns per person. Ten healthcare concern categories were reported by more than 25 % of the sample. Only age was associated with the number of healthcare concerns (r = 0.25, p < 0.001). Age and GMFCS significantly predicted total number of healthcare concerns. Interpretation: Adolescents and adults with CP reported a high number of healthcare concerns at the initial visit to the Transitional and Lifelong Care program and the number of concerns may increase with advancing age. The concerns identified span a variety of biopsychosocial spheres and supports the need for ongoing specialty and multidisciplinary care of this population through their adult years.http://www.sciencedirect.com/science/article/pii/S2949923223000235Cerebral PalsyAdultsHealthcare ConcernsUnmet NeedsTransitionAdulthood |
| spellingShingle | Christina M. Winger Caitlin Cassidy Jessica Starowicz Laura Brunton Describing healthcare concerns of adolescents and adults with cerebral palsy Health Care Transitions Cerebral Palsy Adults Healthcare Concerns Unmet Needs Transition Adulthood |
| title | Describing healthcare concerns of adolescents and adults with cerebral palsy |
| title_full | Describing healthcare concerns of adolescents and adults with cerebral palsy |
| title_fullStr | Describing healthcare concerns of adolescents and adults with cerebral palsy |
| title_full_unstemmed | Describing healthcare concerns of adolescents and adults with cerebral palsy |
| title_short | Describing healthcare concerns of adolescents and adults with cerebral palsy |
| title_sort | describing healthcare concerns of adolescents and adults with cerebral palsy |
| topic | Cerebral Palsy Adults Healthcare Concerns Unmet Needs Transition Adulthood |
| url | http://www.sciencedirect.com/science/article/pii/S2949923223000235 |
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