Assessment of transition readiness in adolescents and young adults with chronic health conditions
Abstract Background Transition from pediatric to adult health care is a vulnerable period for adolescents and young adults. Challenges include paucity of validated measures to assess patients’ transition readiness. We evaluated the Transition Readiness Assessment Questionnaire (TRAQ) in adolescents...
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| Format: | Article |
| Language: | English |
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BMC
2017-09-01
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| Series: | Pediatric Rheumatology Online Journal |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12969-017-0197-6 |
| _version_ | 1818011358181982208 |
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| author | Paul T. Jensen Gabrielle V. Paul Stephanie LaCount Juan Peng Charles H. Spencer Gloria C. Higgins Brendan Boyle Manmohan Kamboj Christopher Smallwood Stacy P. Ardoin |
| author_facet | Paul T. Jensen Gabrielle V. Paul Stephanie LaCount Juan Peng Charles H. Spencer Gloria C. Higgins Brendan Boyle Manmohan Kamboj Christopher Smallwood Stacy P. Ardoin |
| author_sort | Paul T. Jensen |
| collection | DOAJ |
| description | Abstract Background Transition from pediatric to adult health care is a vulnerable period for adolescents and young adults. Challenges include paucity of validated measures to assess patients’ transition readiness. We evaluated the Transition Readiness Assessment Questionnaire (TRAQ) in adolescents and young adults with rheumatic, gastrointestinal, and endocrine disorders. We examined whether baseline TRAQ scores and other demographic variables predicted transition to adult care over a three year follow up period. Methods In this descriptive study at a single institution, eighty-nine adolescents at a single pediatric academic medical center completed demographic and medical history surveys and the TRAQ and were followed over 3 years by telephone interview to determine whether they had transitioned to adult subspecialty care. Transition was defined as attending at least one adult subspecialty appointment. Multivariable logistic regression and Cox proportional hazards regression models were used to determine whether TRAQ scores predicted time to transition. Results Of the participants, 56% had rheumatic, 21% endocrine, and 23% gastrointestinal conditions. The TRAQ self-management domain score was not significantly associated with age, gender, socioeconomic status, or specialty. The TRAQ self-advocacy score increased with age. Baseline TRAQ scores did not predict transition or time to transition over three years. Conclusion In this cohort of adolescents and young adults who were 16 to 23 years of age at enrollment, 48% transitioned to adult care over three years of follow up. Nearly half reported not discussing transition with provider or seeing provider independently for part of visit. Older age but not other demographic variables nor baseline TRAQ score predicted transition or time to transition to an adult subspecialty provider; however, a there was a trend towards shorter time to transition with the highest quartile TRAQ scores. |
| first_indexed | 2024-04-14T06:07:41Z |
| format | Article |
| id | doaj.art-8377176f2fd94264838456ab652fd8aa |
| institution | Directory Open Access Journal |
| issn | 1546-0096 |
| language | English |
| last_indexed | 2024-04-14T06:07:41Z |
| publishDate | 2017-09-01 |
| publisher | BMC |
| record_format | Article |
| series | Pediatric Rheumatology Online Journal |
| spelling | doaj.art-8377176f2fd94264838456ab652fd8aa2022-12-22T02:08:29ZengBMCPediatric Rheumatology Online Journal1546-00962017-09-011511710.1186/s12969-017-0197-6Assessment of transition readiness in adolescents and young adults with chronic health conditionsPaul T. Jensen0Gabrielle V. Paul1Stephanie LaCount2Juan Peng3Charles H. Spencer4Gloria C. Higgins5Brendan Boyle6Manmohan Kamboj7Christopher Smallwood8Stacy P. Ardoin9Division of Rheumatology, Nationwide Children’s HospitalThe Ohio State University College of MedicineDivision of Rheumatology, Nationwide Children’s HospitalThe Ohio State University Center for BiostatisticsDivision of Rheumatology, Nationwide Children’s HospitalDivision of Rheumatology, Nationwide Children’s HospitalDivision of Rheumatology, Nationwide Children’s HospitalDivision of Rheumatology, Nationwide Children’s HospitalDivision of Rheumatology, Nationwide Children’s HospitalDivision of Rheumatology, Nationwide Children’s HospitalAbstract Background Transition from pediatric to adult health care is a vulnerable period for adolescents and young adults. Challenges include paucity of validated measures to assess patients’ transition readiness. We evaluated the Transition Readiness Assessment Questionnaire (TRAQ) in adolescents and young adults with rheumatic, gastrointestinal, and endocrine disorders. We examined whether baseline TRAQ scores and other demographic variables predicted transition to adult care over a three year follow up period. Methods In this descriptive study at a single institution, eighty-nine adolescents at a single pediatric academic medical center completed demographic and medical history surveys and the TRAQ and were followed over 3 years by telephone interview to determine whether they had transitioned to adult subspecialty care. Transition was defined as attending at least one adult subspecialty appointment. Multivariable logistic regression and Cox proportional hazards regression models were used to determine whether TRAQ scores predicted time to transition. Results Of the participants, 56% had rheumatic, 21% endocrine, and 23% gastrointestinal conditions. The TRAQ self-management domain score was not significantly associated with age, gender, socioeconomic status, or specialty. The TRAQ self-advocacy score increased with age. Baseline TRAQ scores did not predict transition or time to transition over three years. Conclusion In this cohort of adolescents and young adults who were 16 to 23 years of age at enrollment, 48% transitioned to adult care over three years of follow up. Nearly half reported not discussing transition with provider or seeing provider independently for part of visit. Older age but not other demographic variables nor baseline TRAQ score predicted transition or time to transition to an adult subspecialty provider; however, a there was a trend towards shorter time to transition with the highest quartile TRAQ scores.http://link.springer.com/article/10.1186/s12969-017-0197-6AdolescentYoung adultAdultTransition readinessChronic health conditions |
| spellingShingle | Paul T. Jensen Gabrielle V. Paul Stephanie LaCount Juan Peng Charles H. Spencer Gloria C. Higgins Brendan Boyle Manmohan Kamboj Christopher Smallwood Stacy P. Ardoin Assessment of transition readiness in adolescents and young adults with chronic health conditions Pediatric Rheumatology Online Journal Adolescent Young adult Adult Transition readiness Chronic health conditions |
| title | Assessment of transition readiness in adolescents and young adults with chronic health conditions |
| title_full | Assessment of transition readiness in adolescents and young adults with chronic health conditions |
| title_fullStr | Assessment of transition readiness in adolescents and young adults with chronic health conditions |
| title_full_unstemmed | Assessment of transition readiness in adolescents and young adults with chronic health conditions |
| title_short | Assessment of transition readiness in adolescents and young adults with chronic health conditions |
| title_sort | assessment of transition readiness in adolescents and young adults with chronic health conditions |
| topic | Adolescent Young adult Adult Transition readiness Chronic health conditions |
| url | http://link.springer.com/article/10.1186/s12969-017-0197-6 |
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