Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers
Introduction The dementia disease affects both the family caregivers’ health and social and psychological well-being. The aim of this review was to identify and describe the needs of family caregivers living with a person with dementia at home. Method The literature review, conducted using the matri...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2021-07-01
|
| Series: | SAGE Open Nursing |
| Online Access: | https://doi.org/10.1177/23779608211029073 |
| _version_ | 1818668778404184064 |
|---|---|
| author | Vibeke Østergaard Steenfeldt RN, MScN, PhD Lars Christian Aagerup BA, MA, PhD Anna Holm Jacobsen MSSc Ulla Skjødt RN, MEVO, PhD |
| author_facet | Vibeke Østergaard Steenfeldt RN, MScN, PhD Lars Christian Aagerup BA, MA, PhD Anna Holm Jacobsen MSSc Ulla Skjødt RN, MEVO, PhD |
| author_sort | Vibeke Østergaard Steenfeldt RN, MScN, PhD |
| collection | DOAJ |
| description | Introduction The dementia disease affects both the family caregivers’ health and social and psychological well-being. The aim of this review was to identify and describe the needs of family caregivers living with a person with dementia at home. Method The literature review, conducted using the matrix method, was also inspired by Thomas and Harden’s thematic synthesis. Results Three themes were identified: (1) the family caregiver’s new roles and relationships; (2) caregiver burdens; and (3) the caregiver’s need for information and support. Conclusion When family caregivers gradually lose their reciprocal relationship with the person with dementia, and sometimes also with family and friends, the need for other kinds of social contact arises e.g. with others in a similar situation. They also need to have some respite to provide room to pursue their own interests and take care of their own health. Also, a high level of individually tailored information is needed. |
| first_indexed | 2024-12-17T06:41:43Z |
| format | Article |
| id | doaj.art-8384c45a87324208925139fa8e87deb2 |
| institution | Directory Open Access Journal |
| issn | 2377-9608 |
| language | English |
| last_indexed | 2024-12-17T06:41:43Z |
| publishDate | 2021-07-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | SAGE Open Nursing |
| spelling | doaj.art-8384c45a87324208925139fa8e87deb22022-12-21T21:59:50ZengSAGE PublishingSAGE Open Nursing2377-96082021-07-01710.1177/23779608211029073Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family CaregiversVibeke Østergaard Steenfeldt RN, MScN, PhDLars Christian Aagerup BA, MA, PhDAnna Holm Jacobsen MSScUlla Skjødt RN, MEVO, PhDIntroduction The dementia disease affects both the family caregivers’ health and social and psychological well-being. The aim of this review was to identify and describe the needs of family caregivers living with a person with dementia at home. Method The literature review, conducted using the matrix method, was also inspired by Thomas and Harden’s thematic synthesis. Results Three themes were identified: (1) the family caregiver’s new roles and relationships; (2) caregiver burdens; and (3) the caregiver’s need for information and support. Conclusion When family caregivers gradually lose their reciprocal relationship with the person with dementia, and sometimes also with family and friends, the need for other kinds of social contact arises e.g. with others in a similar situation. They also need to have some respite to provide room to pursue their own interests and take care of their own health. Also, a high level of individually tailored information is needed.https://doi.org/10.1177/23779608211029073 |
| spellingShingle | Vibeke Østergaard Steenfeldt RN, MScN, PhD Lars Christian Aagerup BA, MA, PhD Anna Holm Jacobsen MSSc Ulla Skjødt RN, MEVO, PhD Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers SAGE Open Nursing |
| title | Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers |
| title_full | Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers |
| title_fullStr | Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers |
| title_full_unstemmed | Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers |
| title_short | Becoming a Family Caregiver to a Person With Dementia: A Literature Review on the Needs of Family Caregivers |
| title_sort | becoming a family caregiver to a person with dementia a literature review on the needs of family caregivers |
| url | https://doi.org/10.1177/23779608211029073 |
| work_keys_str_mv | AT vibekeøstergaardsteenfeldtrnmscnphd becomingafamilycaregivertoapersonwithdementiaaliteraturereviewontheneedsoffamilycaregivers AT larschristianaagerupbamaphd becomingafamilycaregivertoapersonwithdementiaaliteraturereviewontheneedsoffamilycaregivers AT annaholmjacobsenmssc becomingafamilycaregivertoapersonwithdementiaaliteraturereviewontheneedsoffamilycaregivers AT ullaskjødtrnmevophd becomingafamilycaregivertoapersonwithdementiaaliteraturereviewontheneedsoffamilycaregivers |