The aging of families with members with intellectual disabilities
ABSTRACT Objective: to understand the structure and dynamics of families in the late stage of the life cycle that have a member with intellectual disability. Method: qualitative research using the Calgary Family Assessment Model as methodological framework. The study had 38 participants, distribut...
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| Format: | Article |
| Language: | English |
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Associação Brasileira de Enfermagem
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| Series: | Revista Brasileira de Enfermagem |
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| Online Access: | http://www.scielo.br/pdf/reben/v72s2/0034-7167-reben-72-s2-0184.pdf |
| _version_ | 1831713186237120512 |
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| author | Renata Balieiro Takebayashi Hugo Fernandes Maria Goreti da Silva da Cruz Marcelo Geovane Perseguino Selma Eloy Machado Marques Ana Lúcia de Moraes Horta |
| author_facet | Renata Balieiro Takebayashi Hugo Fernandes Maria Goreti da Silva da Cruz Marcelo Geovane Perseguino Selma Eloy Machado Marques Ana Lúcia de Moraes Horta |
| author_sort | Renata Balieiro Takebayashi |
| collection | DOAJ |
| description | ABSTRACT Objective: to understand the structure and dynamics of families in the late stage of the life cycle that have a member with intellectual disability. Method: qualitative research using the Calgary Family Assessment Model as methodological framework. The study had 38 participants, distributed into 10 families that had a member with intellectual disability and whose parents were elderly. The interviews were analyzed with content analysis technique. Results: the following analytical categories were evidenced: “living with intellectual disability”, “communication as a strategy for encounter”, “family isolation and the need for support” and “concerns about care in the future”. Conclusion: families in the late life cycle who had a member with intellectual disability are arranged in a structure that overloads a single caregiver (mother), has little support network, uses communication as an instrument for understanding themselves and the other, besides having difficulties in projecting the future. |
| first_indexed | 2024-12-20T23:36:54Z |
| format | Article |
| id | doaj.art-83a29cf28ce940a296eee753d375dfd6 |
| institution | Directory Open Access Journal |
| issn | 1984-0446 |
| language | English |
| last_indexed | 2024-12-20T23:36:54Z |
| publisher | Associação Brasileira de Enfermagem |
| record_format | Article |
| series | Revista Brasileira de Enfermagem |
| spelling | doaj.art-83a29cf28ce940a296eee753d375dfd62022-12-21T19:23:11ZengAssociação Brasileira de EnfermagemRevista Brasileira de Enfermagem1984-044610.1590/0034-7167-2018-0535The aging of families with members with intellectual disabilitiesRenata Balieiro TakebayashiHugo FernandesMaria Goreti da Silva da CruzMarcelo Geovane PerseguinoSelma Eloy Machado MarquesAna Lúcia de Moraes HortaABSTRACT Objective: to understand the structure and dynamics of families in the late stage of the life cycle that have a member with intellectual disability. Method: qualitative research using the Calgary Family Assessment Model as methodological framework. The study had 38 participants, distributed into 10 families that had a member with intellectual disability and whose parents were elderly. The interviews were analyzed with content analysis technique. Results: the following analytical categories were evidenced: “living with intellectual disability”, “communication as a strategy for encounter”, “family isolation and the need for support” and “concerns about care in the future”. Conclusion: families in the late life cycle who had a member with intellectual disability are arranged in a structure that overloads a single caregiver (mother), has little support network, uses communication as an instrument for understanding themselves and the other, besides having difficulties in projecting the future.http://www.scielo.br/pdf/reben/v72s2/0034-7167-reben-72-s2-0184.pdfNursingFamily NursingIntellectual DisabilityAgingAged |
| spellingShingle | Renata Balieiro Takebayashi Hugo Fernandes Maria Goreti da Silva da Cruz Marcelo Geovane Perseguino Selma Eloy Machado Marques Ana Lúcia de Moraes Horta The aging of families with members with intellectual disabilities Revista Brasileira de Enfermagem Nursing Family Nursing Intellectual Disability Aging Aged |
| title | The aging of families with members with intellectual disabilities |
| title_full | The aging of families with members with intellectual disabilities |
| title_fullStr | The aging of families with members with intellectual disabilities |
| title_full_unstemmed | The aging of families with members with intellectual disabilities |
| title_short | The aging of families with members with intellectual disabilities |
| title_sort | aging of families with members with intellectual disabilities |
| topic | Nursing Family Nursing Intellectual Disability Aging Aged |
| url | http://www.scielo.br/pdf/reben/v72s2/0034-7167-reben-72-s2-0184.pdf |
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