Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes
Abstract Background Bronchiectasis is an incurable lung disease characterised by irreversible airway dilatation. It causes symptoms including chronic productive cough, dyspnoea, and recurrent respiratory infections often requiring hospital admission. Fatigue and reductions in quality of life are als...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
BMC
2018-05-01
|
| Series: | BMC Pulmonary Medicine |
| Subjects: | |
| Online Access: | http://link.springer.com/article/10.1186/s12890-018-0633-5 |
| _version_ | 1818288175622127616 |
|---|---|
| author | Katy L. M. Hester Julia Newton Tim Rapley Anthony De Soyza |
| author_facet | Katy L. M. Hester Julia Newton Tim Rapley Anthony De Soyza |
| author_sort | Katy L. M. Hester |
| collection | DOAJ |
| description | Abstract Background Bronchiectasis is an incurable lung disease characterised by irreversible airway dilatation. It causes symptoms including chronic productive cough, dyspnoea, and recurrent respiratory infections often requiring hospital admission. Fatigue and reductions in quality of life are also reported in bronchiectasis. Patients often require multi-modal treatments that can be burdensome, leading to issues with adherence. In this article we review the provision of, and requirement for, education and information in bronchiectasis. Discussion To date, little research has been undertaken to improve self-management in bronchiectasis in comparison to other chronic conditions, such as COPD, for which there has been a wealth of recent developments. Qualitative work has begun to establish that information deficit is one of the potential barriers to self-management, and that patients feel having credible information is fundamental when learning to live with and manage bronchiectasis. Emerging research offers some insights into ways of improving treatment adherence and approaches to self-management education; highlighting ways of addressing the specific unmet information needs of patients and their families who are living with bronchiectasis. Conclusions We propose non-pharmacological recommendations to optimise patient self-management and symptom recognition; with the aim of facilitating measurable improvements in health outcomes for patients with bronchiectasis. |
| first_indexed | 2024-12-13T01:52:12Z |
| format | Article |
| id | doaj.art-83a7f833903b402aab135be2c9aa2b2d |
| institution | Directory Open Access Journal |
| issn | 1471-2466 |
| language | English |
| last_indexed | 2024-12-13T01:52:12Z |
| publishDate | 2018-05-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Pulmonary Medicine |
| spelling | doaj.art-83a7f833903b402aab135be2c9aa2b2d2022-12-22T00:03:29ZengBMCBMC Pulmonary Medicine1471-24662018-05-011811910.1186/s12890-018-0633-5Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomesKaty L. M. Hester0Julia Newton1Tim Rapley2Anthony De Soyza3Institute of Cellular Medicine, Newcastle UniversityFaculty of Medical Sciences, Newcastle UniversityDepartment of Social Work, Education and Community Wellbeing, Northumbria UniversityInstitute of Cellular Medicine, Newcastle UniversityAbstract Background Bronchiectasis is an incurable lung disease characterised by irreversible airway dilatation. It causes symptoms including chronic productive cough, dyspnoea, and recurrent respiratory infections often requiring hospital admission. Fatigue and reductions in quality of life are also reported in bronchiectasis. Patients often require multi-modal treatments that can be burdensome, leading to issues with adherence. In this article we review the provision of, and requirement for, education and information in bronchiectasis. Discussion To date, little research has been undertaken to improve self-management in bronchiectasis in comparison to other chronic conditions, such as COPD, for which there has been a wealth of recent developments. Qualitative work has begun to establish that information deficit is one of the potential barriers to self-management, and that patients feel having credible information is fundamental when learning to live with and manage bronchiectasis. Emerging research offers some insights into ways of improving treatment adherence and approaches to self-management education; highlighting ways of addressing the specific unmet information needs of patients and their families who are living with bronchiectasis. Conclusions We propose non-pharmacological recommendations to optimise patient self-management and symptom recognition; with the aim of facilitating measurable improvements in health outcomes for patients with bronchiectasis.http://link.springer.com/article/10.1186/s12890-018-0633-5BronchiectasisSelf-managementInformationEducationQualitativeAdherence |
| spellingShingle | Katy L. M. Hester Julia Newton Tim Rapley Anthony De Soyza Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes BMC Pulmonary Medicine Bronchiectasis Self-management Information Education Qualitative Adherence |
| title | Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes |
| title_full | Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes |
| title_fullStr | Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes |
| title_full_unstemmed | Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes |
| title_short | Patient information, education and self-management in bronchiectasis: facilitating improvements to optimise health outcomes |
| title_sort | patient information education and self management in bronchiectasis facilitating improvements to optimise health outcomes |
| topic | Bronchiectasis Self-management Information Education Qualitative Adherence |
| url | http://link.springer.com/article/10.1186/s12890-018-0633-5 |
| work_keys_str_mv | AT katylmhester patientinformationeducationandselfmanagementinbronchiectasisfacilitatingimprovementstooptimisehealthoutcomes AT julianewton patientinformationeducationandselfmanagementinbronchiectasisfacilitatingimprovementstooptimisehealthoutcomes AT timrapley patientinformationeducationandselfmanagementinbronchiectasisfacilitatingimprovementstooptimisehealthoutcomes AT anthonydesoyza patientinformationeducationandselfmanagementinbronchiectasisfacilitatingimprovementstooptimisehealthoutcomes |