NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representation

Advocacy engagement has been at the forefront of National Cancer Institute (NCI) efforts to advance scientific discoveries and transform medical interventions. Nonetheless, the journey for advocates has been uneven. Case in Point: NCI publication affiliation rules of engagement pose unique equity ch...

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Main Authors: Susan Samson, Jason J. Northey, Irene Acerbi, Andrei Goga, Carl L. Flink, Valerie M. Weaver, Mark A. LaBarge
Format: Article
Language:English
Published: Elsevier 2022-02-01
Series:Translational Oncology
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S1936523321003168
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author Susan Samson
Jason J. Northey
Irene Acerbi
Andrei Goga
Carl L. Flink
Valerie M. Weaver
Mark A. LaBarge
author_facet Susan Samson
Jason J. Northey
Irene Acerbi
Andrei Goga
Carl L. Flink
Valerie M. Weaver
Mark A. LaBarge
author_sort Susan Samson
collection DOAJ
description Advocacy engagement has been at the forefront of National Cancer Institute (NCI) efforts to advance scientific discoveries and transform medical interventions. Nonetheless, the journey for advocates has been uneven. Case in Point: NCI publication affiliation rules of engagement pose unique equity challenges while raising questions about structural representation in biomedical research. Abiding by the core rationale that publication affiliation should be tailored to employment status, the NCI has systematically denied research advocate volunteers the opportunity to specifically list NCI as an institutional affiliation on academic publications. Unpacking advocate NCI publication affiliation restrictions and its links with advocacy heritage preservation and convergent science goals poses unique diversity, equity, and inclusion challenges and opportunities. Improving the quality of structural representation in biomedical research requires new theories of action and flexible planning to advance, promote and build capacity for strategic advocacy inclusion and equity within publication affiliation initiatives. Here we highlight several opportunities for how leadership might formulate a radically different vision for NCI's approach. This perspective interrogates the best way forward for ensuring that biomedical employee and volunteer advocate workforce publication affiliation intersections are characterized by increased creativity and representation parity. Imbuing the scientist and clinical researcher archetype with social dimensions, we join NCI critical thinkers in urging employees, funded academics, and volunteer citizen scientists to collectively assume the role as paladins of science and integrity who view the triumphs of making a difference in science alongside the social responsibility of promoting transdisciplinary professionalism and the democratization of science.
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spelling doaj.art-83e8643e1fe0486e86d3440e66c57d7e2022-12-21T21:19:24ZengElsevierTranslational Oncology1936-52332022-02-0116101325NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representationSusan Samson0Jason J. Northey1Irene Acerbi2Andrei Goga3Carl L. Flink4Valerie M. Weaver5Mark A. LaBarge6Breast Oncology Program, Breast Science Advocacy Core (BSAC), University of California, San Francisco, 2340 Sutter Street, San Francisco, CA 94115; Helen Diller Family Comprehensive Cancer Center, University of California, San Francisco, CA 94115, United States; Physical Sciences and Oncology Network Program, University of California, San Francisco, CA 94115, United States; Corresponding author at: Breast Oncology Program, Breast Science Advocacy Core (BSAC), University of California, San Francisco, 2340 Sutter Street, San Francisco, CA 94115.Department of Surgery and Center for Bioengineering and Tissue Regeneration, University of California, San Francisco, CA 94143, United StatesDepartment of Surgery and Center for Bioengineering and Tissue Regeneration, University of California, San Francisco, CA 94143, United StatesHelen Diller Family Comprehensive Cancer Center, University of California, San Francisco, CA 94115, United States; Department of Cell and Tissue Biology and Medicine, University of California, San Francisco, CA 94143, United StatesCollege of Liberal Arts, Theatre Arts and Dance, University of Minnesota, Minneapolis, MN 55455, United StatesHelen Diller Family Comprehensive Cancer Center, University of California, San Francisco, CA 94115, United States; Department of Surgery and Center for Bioengineering and Tissue Regeneration, University of California, San Francisco, CA 94143, United StatesBeckman Research Institute, City of Hope, Duarte, CA 91010, United StatesAdvocacy engagement has been at the forefront of National Cancer Institute (NCI) efforts to advance scientific discoveries and transform medical interventions. Nonetheless, the journey for advocates has been uneven. Case in Point: NCI publication affiliation rules of engagement pose unique equity challenges while raising questions about structural representation in biomedical research. Abiding by the core rationale that publication affiliation should be tailored to employment status, the NCI has systematically denied research advocate volunteers the opportunity to specifically list NCI as an institutional affiliation on academic publications. Unpacking advocate NCI publication affiliation restrictions and its links with advocacy heritage preservation and convergent science goals poses unique diversity, equity, and inclusion challenges and opportunities. Improving the quality of structural representation in biomedical research requires new theories of action and flexible planning to advance, promote and build capacity for strategic advocacy inclusion and equity within publication affiliation initiatives. Here we highlight several opportunities for how leadership might formulate a radically different vision for NCI's approach. This perspective interrogates the best way forward for ensuring that biomedical employee and volunteer advocate workforce publication affiliation intersections are characterized by increased creativity and representation parity. Imbuing the scientist and clinical researcher archetype with social dimensions, we join NCI critical thinkers in urging employees, funded academics, and volunteer citizen scientists to collectively assume the role as paladins of science and integrity who view the triumphs of making a difference in science alongside the social responsibility of promoting transdisciplinary professionalism and the democratization of science.http://www.sciencedirect.com/science/article/pii/S1936523321003168Convergent scienceCancer research advocacyReframing innovation, NCI publication affiliation practicesDiversity, equity and inclusion (DE&I)Advocacy heritage preservation
spellingShingle Susan Samson
Jason J. Northey
Irene Acerbi
Andrei Goga
Carl L. Flink
Valerie M. Weaver
Mark A. LaBarge
NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representation
Translational Oncology
Convergent science
Cancer research advocacy
Reframing innovation, NCI publication affiliation practices
Diversity, equity and inclusion (DE&I)
Advocacy heritage preservation
title NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representation
title_full NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representation
title_fullStr NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representation
title_full_unstemmed NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representation
title_short NCI's publication affiliation conundrum: Reframing innovation to incentivize an equitable path for advocate representation
title_sort nci s publication affiliation conundrum reframing innovation to incentivize an equitable path for advocate representation
topic Convergent science
Cancer research advocacy
Reframing innovation, NCI publication affiliation practices
Diversity, equity and inclusion (DE&I)
Advocacy heritage preservation
url http://www.sciencedirect.com/science/article/pii/S1936523321003168
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