Why a registry of Chronic Urticaria (CUR) is needed
Chronic urticaria (CU) has a major effect on patients’ quality of life. While there have been progressive advances regarding its pathogenesis and treatment, much remains to be done.Registries of other chronic non-communicable diseases have shown many benefits, such as additional basic knowledge and...
| Main Authors: | , , , , , , , |
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| Format: | Article |
| Language: | English |
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Elsevier
2017-01-01
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| Series: | World Allergy Organization Journal |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S193945511930016X |
| _version_ | 1818417532675031040 |
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| author | R.M. Gómez E. Jares G.W. Canonica I. Baiardini G. Passalacqua M. Sánchez Borges A.P. Kaplan Carlos E. Baena-Cagnani |
| author_facet | R.M. Gómez E. Jares G.W. Canonica I. Baiardini G. Passalacqua M. Sánchez Borges A.P. Kaplan Carlos E. Baena-Cagnani |
| author_sort | R.M. Gómez |
| collection | DOAJ |
| description | Chronic urticaria (CU) has a major effect on patients’ quality of life. While there have been progressive advances regarding its pathogenesis and treatment, much remains to be done.Registries of other chronic non-communicable diseases have shown many benefits, such as additional basic knowledge and management approaches to diabetes mellitus. Standards of care as well as diagnostic approaches can be elaborated and compared from different sites, using validated instruments. Registries in allergic diseases are also becoming well recognized, and the first registry on CU, accessible from SLaai’s webpage, includes parameters for identification, evaluation and management. In our vision, informatics strategies have the potential to improve care for chronic illnesses such as CU. The registry represents a valid instrument from which to obtain a sufficient sample size for epidemiological studies and/or clinical research planning, including feasibility and potential enrollment. It can also provide invaluable data for adapting guidelines to local populations, as well as diagnostic approaches and cost-effective interventions in the context of organizational efforts to improve patient care. Keywords: Chronic Urticaria, Registry, Tools, Approach, Management |
| first_indexed | 2024-12-14T12:08:17Z |
| format | Article |
| id | doaj.art-84b090033ffb47b69e13d4eb88ffe924 |
| institution | Directory Open Access Journal |
| issn | 1939-4551 |
| language | English |
| last_indexed | 2024-12-14T12:08:17Z |
| publishDate | 2017-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | World Allergy Organization Journal |
| spelling | doaj.art-84b090033ffb47b69e13d4eb88ffe9242022-12-21T23:01:49ZengElsevierWorld Allergy Organization Journal1939-45512017-01-01101Why a registry of Chronic Urticaria (CUR) is neededR.M. Gómez0E. Jares1G.W. Canonica2I. Baiardini3G. Passalacqua4M. Sánchez Borges5A.P. Kaplan6Carlos E. Baena-Cagnani7Fundación Ayre at Instituto Médico Alas, Sarmiento 771, 330-31, 4400 Salta, Argentina; Allergy & Asthma Unit, Hospital San Bernardo, Salta, Argentina; Correspondence:Libra Foundation, Buenos Aires, ArgentinaAllergy & Respiratory Diseases Clinic, University of Genova, IRCCS AOU S.Martino, Genoa, ITALYAllergy & Respiratory Diseases Clinic, University of Genova, IRCCS AOU S.Martino, Genoa, ITALYAllergy & Respiratory Diseases Clinic, University of Genova, IRCCS AOU S.Martino, Genoa, ITALYAllergy & Immunology Dpt, Centro Médico Docente La Trinidad, Caracas, VenezuelaThe Medical University of South Carolina, Charleston, SC, USADeceasedChronic urticaria (CU) has a major effect on patients’ quality of life. While there have been progressive advances regarding its pathogenesis and treatment, much remains to be done.Registries of other chronic non-communicable diseases have shown many benefits, such as additional basic knowledge and management approaches to diabetes mellitus. Standards of care as well as diagnostic approaches can be elaborated and compared from different sites, using validated instruments. Registries in allergic diseases are also becoming well recognized, and the first registry on CU, accessible from SLaai’s webpage, includes parameters for identification, evaluation and management. In our vision, informatics strategies have the potential to improve care for chronic illnesses such as CU. The registry represents a valid instrument from which to obtain a sufficient sample size for epidemiological studies and/or clinical research planning, including feasibility and potential enrollment. It can also provide invaluable data for adapting guidelines to local populations, as well as diagnostic approaches and cost-effective interventions in the context of organizational efforts to improve patient care. Keywords: Chronic Urticaria, Registry, Tools, Approach, Managementhttp://www.sciencedirect.com/science/article/pii/S193945511930016X |
| spellingShingle | R.M. Gómez E. Jares G.W. Canonica I. Baiardini G. Passalacqua M. Sánchez Borges A.P. Kaplan Carlos E. Baena-Cagnani Why a registry of Chronic Urticaria (CUR) is needed World Allergy Organization Journal |
| title | Why a registry of Chronic Urticaria (CUR) is needed |
| title_full | Why a registry of Chronic Urticaria (CUR) is needed |
| title_fullStr | Why a registry of Chronic Urticaria (CUR) is needed |
| title_full_unstemmed | Why a registry of Chronic Urticaria (CUR) is needed |
| title_short | Why a registry of Chronic Urticaria (CUR) is needed |
| title_sort | why a registry of chronic urticaria cur is needed |
| url | http://www.sciencedirect.com/science/article/pii/S193945511930016X |
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