Considering Breast Reconstruction after Mastectomy: A Patient Decision Aid Video and Workbook
Background:. Women report difficulty understanding and personalizing breast reconstruction information during the complex and time-limited period of cancer treatment planning. Patient decision aids can help patients become well informed, form realistic expectations, prepare to communicate with the s...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Wolters Kluwer
2019-11-01
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| Series: | Plastic and Reconstructive Surgery, Global Open |
| Online Access: | http://journals.lww.com/prsgo/fulltext/10.1097/GOX.0000000000002500 |
| _version_ | 1828400695962763264 |
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| author | Aubri S. Hoffman, PhD Scott B. Cantor, PhD Michelle C. Fingeret, PhD Ashley J. Housten, OTD Summer E. Hanson, MD, PhD Jennifer H. McGee Jordan T. Pietz, MA Alina Bennett, PhD Robert J. Volk, PhD Gregory P. Reece, MD |
| author_facet | Aubri S. Hoffman, PhD Scott B. Cantor, PhD Michelle C. Fingeret, PhD Ashley J. Housten, OTD Summer E. Hanson, MD, PhD Jennifer H. McGee Jordan T. Pietz, MA Alina Bennett, PhD Robert J. Volk, PhD Gregory P. Reece, MD |
| author_sort | Aubri S. Hoffman, PhD |
| collection | DOAJ |
| description | Background:. Women report difficulty understanding and personalizing breast reconstruction information during the complex and time-limited period of cancer treatment planning. Patient decision aids can help patients become well informed, form realistic expectations, prepare to communicate with the surgical team, and be more satisfied with their decision-making process.
Methods:. We engaged patients, providers, and stakeholders in a user-centered design process to develop an online patient decision aid video and interactive workbook for breast reconstruction after mastectomy. The video and workbook introduce breast reconstruction and compare the risks and benefits of 3 key decisions: reconstruction versus no reconstruction, immediate versus delayed, and tissue- versus implant based. Pilot testing using cognitive interviews and pre-/postdecision aid questionnaires assessed acceptability, knowledge, and decision-making values.
Results:. After viewing the decision aid, patients (n = 20) scored 97.5% correct on a knowledge test; however, the factors driving their decisions were varied. All (n = 40) patients and providers/stakeholders provided over 80% positive acceptability ratings. 97.5% said they would recommend the video and workbook to other women with breast cancer.
Conclusions:. The Considering Breast Reconstruction after Mastectomy patient decision aid video and workbook show potential for improving informed decision-making. Delivery before the initial plastic surgery consultation was well supported as a way to give women time to process the information and prepare to talk with the surgical team about their options. The Personal Decision Worksheet shows potential for assessing patients’ knowledge and the factors driving their personal decision-making process. |
| first_indexed | 2024-12-10T09:35:50Z |
| format | Article |
| id | doaj.art-84f60bf39766407b995bc11b8c7eaa34 |
| institution | Directory Open Access Journal |
| issn | 2169-7574 |
| language | English |
| last_indexed | 2024-12-10T09:35:50Z |
| publishDate | 2019-11-01 |
| publisher | Wolters Kluwer |
| record_format | Article |
| series | Plastic and Reconstructive Surgery, Global Open |
| spelling | doaj.art-84f60bf39766407b995bc11b8c7eaa342022-12-22T01:54:12ZengWolters KluwerPlastic and Reconstructive Surgery, Global Open2169-75742019-11-01711e250010.1097/GOX.0000000000002500201911000-00005Considering Breast Reconstruction after Mastectomy: A Patient Decision Aid Video and WorkbookAubri S. Hoffman, PhD0Scott B. Cantor, PhD1Michelle C. Fingeret, PhD2Ashley J. Housten, OTD3Summer E. Hanson, MD, PhD4Jennifer H. McGee5Jordan T. Pietz, MA6Alina Bennett, PhD7Robert J. Volk, PhD8Gregory P. Reece, MD9From the *Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, Tex.From the *Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, Tex.†Department of Behavioral Science, The University of Texas MD Anderson Cancer Center, Houston, Tex.From the *Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, Tex.‡Department of Plastic Surgery, The University of Texas MD Anderson Cancer Center, Houston, Tex.§Department of Creative Services, The University of Texas MD Anderson Cancer Center, Houston, Tex.§Department of Creative Services, The University of Texas MD Anderson Cancer Center, Houston, Tex.From the *Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, Tex.From the *Department of Health Services Research, The University of Texas MD Anderson Cancer Center, Houston, Tex.‡Department of Plastic Surgery, The University of Texas MD Anderson Cancer Center, Houston, Tex.Background:. Women report difficulty understanding and personalizing breast reconstruction information during the complex and time-limited period of cancer treatment planning. Patient decision aids can help patients become well informed, form realistic expectations, prepare to communicate with the surgical team, and be more satisfied with their decision-making process. Methods:. We engaged patients, providers, and stakeholders in a user-centered design process to develop an online patient decision aid video and interactive workbook for breast reconstruction after mastectomy. The video and workbook introduce breast reconstruction and compare the risks and benefits of 3 key decisions: reconstruction versus no reconstruction, immediate versus delayed, and tissue- versus implant based. Pilot testing using cognitive interviews and pre-/postdecision aid questionnaires assessed acceptability, knowledge, and decision-making values. Results:. After viewing the decision aid, patients (n = 20) scored 97.5% correct on a knowledge test; however, the factors driving their decisions were varied. All (n = 40) patients and providers/stakeholders provided over 80% positive acceptability ratings. 97.5% said they would recommend the video and workbook to other women with breast cancer. Conclusions:. The Considering Breast Reconstruction after Mastectomy patient decision aid video and workbook show potential for improving informed decision-making. Delivery before the initial plastic surgery consultation was well supported as a way to give women time to process the information and prepare to talk with the surgical team about their options. The Personal Decision Worksheet shows potential for assessing patients’ knowledge and the factors driving their personal decision-making process.http://journals.lww.com/prsgo/fulltext/10.1097/GOX.0000000000002500 |
| spellingShingle | Aubri S. Hoffman, PhD Scott B. Cantor, PhD Michelle C. Fingeret, PhD Ashley J. Housten, OTD Summer E. Hanson, MD, PhD Jennifer H. McGee Jordan T. Pietz, MA Alina Bennett, PhD Robert J. Volk, PhD Gregory P. Reece, MD Considering Breast Reconstruction after Mastectomy: A Patient Decision Aid Video and Workbook Plastic and Reconstructive Surgery, Global Open |
| title | Considering Breast Reconstruction after Mastectomy: A Patient Decision Aid Video and Workbook |
| title_full | Considering Breast Reconstruction after Mastectomy: A Patient Decision Aid Video and Workbook |
| title_fullStr | Considering Breast Reconstruction after Mastectomy: A Patient Decision Aid Video and Workbook |
| title_full_unstemmed | Considering Breast Reconstruction after Mastectomy: A Patient Decision Aid Video and Workbook |
| title_short | Considering Breast Reconstruction after Mastectomy: A Patient Decision Aid Video and Workbook |
| title_sort | considering breast reconstruction after mastectomy a patient decision aid video and workbook |
| url | http://journals.lww.com/prsgo/fulltext/10.1097/GOX.0000000000002500 |
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