Caregiver overload and factors associated with care provided to patients under palliative care
Objective. To identify overload and associated factors among caregivers of adult patients receiving palliative care. Methods. Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirã...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Language: | English |
| Published: |
Universidad de Antioquia
2021-03-01
|
| Series: | Investigación y Educación en Enfermería |
| Subjects: | |
| Online Access: | https://revistas.udea.edu.co/index.php/iee/article/view/345526 |
| _version_ | 1797642240507510784 |
|---|---|
| author | Alice Regina Felipe Silva Jack Roberto Silva Fhon Rosalina Aparecida Partezani Rodrigues Mariane Thais Pecchi Leite |
| author_facet | Alice Regina Felipe Silva Jack Roberto Silva Fhon Rosalina Aparecida Partezani Rodrigues Mariane Thais Pecchi Leite |
| author_sort | Alice Regina Felipe Silva |
| collection | DOAJ |
| description | Objective. To identify overload and associated factors among caregivers of adult patients receiving palliative care.
Methods. Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirão Preto, Brazil. Data concerning the patients included demographic profile and Mini-Mental State Examination. A form was used to collect the caregivers’ demographic data along with the Zarit Burden Interview Scale, Self-Reporting Questionnaire, Beck Depression Inventory, and Coping Strategies Inventory.
Results. Regarding the patients, 84.2% were women, 52.6% were over 80, 65.8% had no partner, and 76.3% presented cognitive impairment. The caregivers were mostly women (84.5%), aged 56.67 years old on average, were the patients’ children (42.5%); had no partner (55%), and lived with the patient (77.5%). The mean score obtained in the burden scale was 28.78 points, 32.5% had stress, and 42.5% depression. Regarding coping strategies, the ones most frequently used were positive reappraisal (12.8), withdrawal (10.2), and problem solution (9.7). A positive and statistically significant correlation was found between time spent with care (days and hours) and escape/avoidance with overload. Linear regression analysis revealed an association between being a woman (p=0.002), number of days spent with care (p=0.004), and depression (p<0.001) with overload.
Conclusion. Being a woman, spending more days providing care, and depressive symptoms were associated with caregiver overload. |
| first_indexed | 2024-03-11T13:57:17Z |
| format | Article |
| id | doaj.art-85f2591765eb40e18d15802456ddc006 |
| institution | Directory Open Access Journal |
| issn | 2216-0280 |
| language | English |
| last_indexed | 2024-03-11T13:57:17Z |
| publishDate | 2021-03-01 |
| publisher | Universidad de Antioquia |
| record_format | Article |
| series | Investigación y Educación en Enfermería |
| spelling | doaj.art-85f2591765eb40e18d15802456ddc0062023-11-02T06:18:06ZengUniversidad de AntioquiaInvestigación y Educación en Enfermería2216-02802021-03-0139110.17533/udea.iee.v39n1e1042673Caregiver overload and factors associated with care provided to patients under palliative careAlice Regina Felipe Silva0Jack Roberto Silva Fhon1Rosalina Aparecida Partezani Rodrigues2Mariane Thais Pecchi Leite3Escola de Enfermagem de Ribeirão Preto da Universidade de São PauloEscola de Enfermagem da Universidade de São PauloEscola de Enfermagem de Ribeirão Preto da Universidade de São PauloEscola de Enfermagem de Ribeirão Preto da Universidade de São PauloObjective. To identify overload and associated factors among caregivers of adult patients receiving palliative care. Methods. Descriptive, quantitative, and cross-sectional study addressing 40 adults under palliative care and their respective caregivers enrolled in the Home Care System in Ribeirão Preto, Brazil. Data concerning the patients included demographic profile and Mini-Mental State Examination. A form was used to collect the caregivers’ demographic data along with the Zarit Burden Interview Scale, Self-Reporting Questionnaire, Beck Depression Inventory, and Coping Strategies Inventory. Results. Regarding the patients, 84.2% were women, 52.6% were over 80, 65.8% had no partner, and 76.3% presented cognitive impairment. The caregivers were mostly women (84.5%), aged 56.67 years old on average, were the patients’ children (42.5%); had no partner (55%), and lived with the patient (77.5%). The mean score obtained in the burden scale was 28.78 points, 32.5% had stress, and 42.5% depression. Regarding coping strategies, the ones most frequently used were positive reappraisal (12.8), withdrawal (10.2), and problem solution (9.7). A positive and statistically significant correlation was found between time spent with care (days and hours) and escape/avoidance with overload. Linear regression analysis revealed an association between being a woman (p=0.002), number of days spent with care (p=0.004), and depression (p<0.001) with overload. Conclusion. Being a woman, spending more days providing care, and depressive symptoms were associated with caregiver overload.https://revistas.udea.edu.co/index.php/iee/article/view/345526caregiverspalliative carehome care service |
| spellingShingle | Alice Regina Felipe Silva Jack Roberto Silva Fhon Rosalina Aparecida Partezani Rodrigues Mariane Thais Pecchi Leite Caregiver overload and factors associated with care provided to patients under palliative care Investigación y Educación en Enfermería caregivers palliative care home care service |
| title | Caregiver overload and factors associated with care provided to patients under palliative care |
| title_full | Caregiver overload and factors associated with care provided to patients under palliative care |
| title_fullStr | Caregiver overload and factors associated with care provided to patients under palliative care |
| title_full_unstemmed | Caregiver overload and factors associated with care provided to patients under palliative care |
| title_short | Caregiver overload and factors associated with care provided to patients under palliative care |
| title_sort | caregiver overload and factors associated with care provided to patients under palliative care |
| topic | caregivers palliative care home care service |
| url | https://revistas.udea.edu.co/index.php/iee/article/view/345526 |
| work_keys_str_mv | AT alicereginafelipesilva caregiveroverloadandfactorsassociatedwithcareprovidedtopatientsunderpalliativecare AT jackrobertosilvafhon caregiveroverloadandfactorsassociatedwithcareprovidedtopatientsunderpalliativecare AT rosalinaaparecidapartezanirodrigues caregiveroverloadandfactorsassociatedwithcareprovidedtopatientsunderpalliativecare AT marianethaispecchileite caregiveroverloadandfactorsassociatedwithcareprovidedtopatientsunderpalliativecare |