Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs

Abstract Patient navigation (PN) represents a branch of service delivery traditionally aimed at coordinating disjointed care services for patients with particular health conditions (e.g., cancer, HIV, diabetes). Over time, this approach has been extended to various social and health contexts, includ...

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Main Authors: Emily Gardiner, Vivian Wong, Anton R. Miller
Format: Article
Language:English
Published: BMC 2022-05-01
Series:BMC Proceedings
Subjects:
Online Access:https://doi.org/10.1186/s12919-022-00232-z
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author Emily Gardiner
Vivian Wong
Anton R. Miller
author_facet Emily Gardiner
Vivian Wong
Anton R. Miller
author_sort Emily Gardiner
collection DOAJ
description Abstract Patient navigation (PN) represents a branch of service delivery traditionally aimed at coordinating disjointed care services for patients with particular health conditions (e.g., cancer, HIV, diabetes). Over time, this approach has been extended to various social and health contexts, including most recently to children with neurodisability and their families. In this context, PN involves the provision of information, advice, education, and emotional support, coordination of services both within and across sectors, and the work is guided by person- and family-centred principles of practice. This manuscript documents the proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs, which took place on January 18 and 19, 2021 and was developed in collaboration with a Provincial Advisory Group. Our Summit brought together over 120 individuals, including researchers, government personnel, service providers, educators, healthcare workers, and family advocates. As part of the event, attendees learned from families with lived experience navigating the British Columbian (BC) service system, from BC Children’s Hospital Research Institute investigators, and from exemplar providers who deliver navigation services in various contexts (e.g., locally, regionally, and provincially). Attendees also participated in various engagement opportunities, and collaboratively identified directions for developing a future community of navigation and related services in BC.
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spelling doaj.art-8614b0ec9ce14b3f8fbdd25a33e772482023-05-14T11:10:16ZengBMCBMC Proceedings1753-65612022-05-0116S311110.1186/s12919-022-00232-zProceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special NeedsEmily Gardiner0Vivian Wong1Anton R. Miller2BC Children’s Hospital Research InstituteSunny Hill Health Centre at BC Children’s HospitalBC Children’s Hospital Research InstituteAbstract Patient navigation (PN) represents a branch of service delivery traditionally aimed at coordinating disjointed care services for patients with particular health conditions (e.g., cancer, HIV, diabetes). Over time, this approach has been extended to various social and health contexts, including most recently to children with neurodisability and their families. In this context, PN involves the provision of information, advice, education, and emotional support, coordination of services both within and across sectors, and the work is guided by person- and family-centred principles of practice. This manuscript documents the proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs, which took place on January 18 and 19, 2021 and was developed in collaboration with a Provincial Advisory Group. Our Summit brought together over 120 individuals, including researchers, government personnel, service providers, educators, healthcare workers, and family advocates. As part of the event, attendees learned from families with lived experience navigating the British Columbian (BC) service system, from BC Children’s Hospital Research Institute investigators, and from exemplar providers who deliver navigation services in various contexts (e.g., locally, regionally, and provincially). Attendees also participated in various engagement opportunities, and collaboratively identified directions for developing a future community of navigation and related services in BC.https://doi.org/10.1186/s12919-022-00232-zNeurodisabilityPatient NavigationFamily SupportSummitParticipatory Action ResearchCommunity Engagement
spellingShingle Emily Gardiner
Vivian Wong
Anton R. Miller
Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs
BMC Proceedings
Neurodisability
Patient Navigation
Family Support
Summit
Participatory Action Research
Community Engagement
title Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs
title_full Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs
title_fullStr Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs
title_full_unstemmed Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs
title_short Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs
title_sort proceedings of the bc summit on navigation for children and youth with neurodevelopmental differences disabilities and special needs
topic Neurodisability
Patient Navigation
Family Support
Summit
Participatory Action Research
Community Engagement
url https://doi.org/10.1186/s12919-022-00232-z
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