Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs
Abstract Patient navigation (PN) represents a branch of service delivery traditionally aimed at coordinating disjointed care services for patients with particular health conditions (e.g., cancer, HIV, diabetes). Over time, this approach has been extended to various social and health contexts, includ...
Main Authors: | , , |
---|---|
Format: | Article |
Language: | English |
Published: |
BMC
2022-05-01
|
Series: | BMC Proceedings |
Subjects: | |
Online Access: | https://doi.org/10.1186/s12919-022-00232-z |
_version_ | 1827948277849391104 |
---|---|
author | Emily Gardiner Vivian Wong Anton R. Miller |
author_facet | Emily Gardiner Vivian Wong Anton R. Miller |
author_sort | Emily Gardiner |
collection | DOAJ |
description | Abstract Patient navigation (PN) represents a branch of service delivery traditionally aimed at coordinating disjointed care services for patients with particular health conditions (e.g., cancer, HIV, diabetes). Over time, this approach has been extended to various social and health contexts, including most recently to children with neurodisability and their families. In this context, PN involves the provision of information, advice, education, and emotional support, coordination of services both within and across sectors, and the work is guided by person- and family-centred principles of practice. This manuscript documents the proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs, which took place on January 18 and 19, 2021 and was developed in collaboration with a Provincial Advisory Group. Our Summit brought together over 120 individuals, including researchers, government personnel, service providers, educators, healthcare workers, and family advocates. As part of the event, attendees learned from families with lived experience navigating the British Columbian (BC) service system, from BC Children’s Hospital Research Institute investigators, and from exemplar providers who deliver navigation services in various contexts (e.g., locally, regionally, and provincially). Attendees also participated in various engagement opportunities, and collaboratively identified directions for developing a future community of navigation and related services in BC. |
first_indexed | 2024-04-09T12:51:45Z |
format | Article |
id | doaj.art-8614b0ec9ce14b3f8fbdd25a33e77248 |
institution | Directory Open Access Journal |
issn | 1753-6561 |
language | English |
last_indexed | 2024-04-09T12:51:45Z |
publishDate | 2022-05-01 |
publisher | BMC |
record_format | Article |
series | BMC Proceedings |
spelling | doaj.art-8614b0ec9ce14b3f8fbdd25a33e772482023-05-14T11:10:16ZengBMCBMC Proceedings1753-65612022-05-0116S311110.1186/s12919-022-00232-zProceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special NeedsEmily Gardiner0Vivian Wong1Anton R. Miller2BC Children’s Hospital Research InstituteSunny Hill Health Centre at BC Children’s HospitalBC Children’s Hospital Research InstituteAbstract Patient navigation (PN) represents a branch of service delivery traditionally aimed at coordinating disjointed care services for patients with particular health conditions (e.g., cancer, HIV, diabetes). Over time, this approach has been extended to various social and health contexts, including most recently to children with neurodisability and their families. In this context, PN involves the provision of information, advice, education, and emotional support, coordination of services both within and across sectors, and the work is guided by person- and family-centred principles of practice. This manuscript documents the proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs, which took place on January 18 and 19, 2021 and was developed in collaboration with a Provincial Advisory Group. Our Summit brought together over 120 individuals, including researchers, government personnel, service providers, educators, healthcare workers, and family advocates. As part of the event, attendees learned from families with lived experience navigating the British Columbian (BC) service system, from BC Children’s Hospital Research Institute investigators, and from exemplar providers who deliver navigation services in various contexts (e.g., locally, regionally, and provincially). Attendees also participated in various engagement opportunities, and collaboratively identified directions for developing a future community of navigation and related services in BC.https://doi.org/10.1186/s12919-022-00232-zNeurodisabilityPatient NavigationFamily SupportSummitParticipatory Action ResearchCommunity Engagement |
spellingShingle | Emily Gardiner Vivian Wong Anton R. Miller Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs BMC Proceedings Neurodisability Patient Navigation Family Support Summit Participatory Action Research Community Engagement |
title | Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs |
title_full | Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs |
title_fullStr | Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs |
title_full_unstemmed | Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs |
title_short | Proceedings of the BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs |
title_sort | proceedings of the bc summit on navigation for children and youth with neurodevelopmental differences disabilities and special needs |
topic | Neurodisability Patient Navigation Family Support Summit Participatory Action Research Community Engagement |
url | https://doi.org/10.1186/s12919-022-00232-z |
work_keys_str_mv | AT emilygardiner proceedingsofthebcsummitonnavigationforchildrenandyouthwithneurodevelopmentaldifferencesdisabilitiesandspecialneeds AT vivianwong proceedingsofthebcsummitonnavigationforchildrenandyouthwithneurodevelopmentaldifferencesdisabilitiesandspecialneeds AT antonrmiller proceedingsofthebcsummitonnavigationforchildrenandyouthwithneurodevelopmentaldifferencesdisabilitiesandspecialneeds |