‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy
Plain English summary Since the 1970’s, there has been a shift from research on disabled people to research with disabled people. This is often referred to as co-produced research. Co-production has a wide definition but includes disabled people working with academics to produce research and outcome...
| Main Authors: | , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
BMC
2022-11-01
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| Series: | Research Involvement and Engagement |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s40900-022-00403-4 |
| _version_ | 1797985560345706496 |
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| author | Lorna Montgomery Berni Kelly Ursula Campbell Gavin Davidson Leanne Gibson Louise Hughes Jadzia Menham Linda McKendry Leslie-Anne Newton Alex Parkinson Ethan Redmond Joseph Turnbull Paul Webb Lisamarie Wood |
| author_facet | Lorna Montgomery Berni Kelly Ursula Campbell Gavin Davidson Leanne Gibson Louise Hughes Jadzia Menham Linda McKendry Leslie-Anne Newton Alex Parkinson Ethan Redmond Joseph Turnbull Paul Webb Lisamarie Wood |
| author_sort | Lorna Montgomery |
| collection | DOAJ |
| description | Plain English summary Since the 1970’s, there has been a shift from research on disabled people to research with disabled people. This is often referred to as co-produced research. Co-production has a wide definition but includes disabled people working with academics to produce research and outcomes which neither group could achieve by working in isolation. This paper presents the co-production methodology used to conduct a research project called ‘Getting our Voices Heard’. This project, sought to find the best way to get the voices of people with a learning disability heard inpolicy development in the UK. We explain how this research was carried out, using a co-produced participatory design. We established a research team with professional researchers from a university, who worked with peer researchers. Peer researchers are people who have lived experience of the issue being studied. In this project, we worked with six peer researchers who all had a learning disability. The experiences of the peer researchers, and ways in which the peer researchers were involved at each stage of the project are discussed. The peer researchers described feeling positive about their role and felt involved. We show that working together is important and recommend that additional time and resources are essential for this joint working. |
| first_indexed | 2024-04-11T07:18:54Z |
| format | Article |
| id | doaj.art-8634620b5dea459fb06b125ef632d2d2 |
| institution | Directory Open Access Journal |
| issn | 2056-7529 |
| language | English |
| last_indexed | 2024-04-11T07:18:54Z |
| publishDate | 2022-11-01 |
| publisher | BMC |
| record_format | Article |
| series | Research Involvement and Engagement |
| spelling | doaj.art-8634620b5dea459fb06b125ef632d2d22022-12-22T04:37:49ZengBMCResearch Involvement and Engagement2056-75292022-11-018111210.1186/s40900-022-00403-4‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policyLorna Montgomery0Berni Kelly1Ursula Campbell2Gavin Davidson3Leanne Gibson4Louise Hughes5Jadzia Menham6Linda McKendry7Leslie-Anne Newton8Alex Parkinson9Ethan Redmond10Joseph Turnbull11Paul Webb12Lisamarie Wood13Queen’s University BelfastQueen’s University BelfastCompass Advocacy NetworkQueen’s University BelfastCompass Advocacy NetworkAssociation for Real ChangeCompass Advocacy NetworkCompass Advocacy NetworkAssociation for Real ChangeAssociation for Real ChangeAssociation for Real ChangeAssociation for Real ChangePraxis CarePraxis CarePlain English summary Since the 1970’s, there has been a shift from research on disabled people to research with disabled people. This is often referred to as co-produced research. Co-production has a wide definition but includes disabled people working with academics to produce research and outcomes which neither group could achieve by working in isolation. This paper presents the co-production methodology used to conduct a research project called ‘Getting our Voices Heard’. This project, sought to find the best way to get the voices of people with a learning disability heard inpolicy development in the UK. We explain how this research was carried out, using a co-produced participatory design. We established a research team with professional researchers from a university, who worked with peer researchers. Peer researchers are people who have lived experience of the issue being studied. In this project, we worked with six peer researchers who all had a learning disability. The experiences of the peer researchers, and ways in which the peer researchers were involved at each stage of the project are discussed. The peer researchers described feeling positive about their role and felt involved. We show that working together is important and recommend that additional time and resources are essential for this joint working.https://doi.org/10.1186/s40900-022-00403-4Learning disabilityAdult safeguardingAdult protectionCo-productionParticipatory designLegislation |
| spellingShingle | Lorna Montgomery Berni Kelly Ursula Campbell Gavin Davidson Leanne Gibson Louise Hughes Jadzia Menham Linda McKendry Leslie-Anne Newton Alex Parkinson Ethan Redmond Joseph Turnbull Paul Webb Lisamarie Wood ‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy Research Involvement and Engagement Learning disability Adult safeguarding Adult protection Co-production Participatory design Legislation |
| title | ‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy |
| title_full | ‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy |
| title_fullStr | ‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy |
| title_full_unstemmed | ‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy |
| title_short | ‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy |
| title_sort | getting our voices heard in research a review of peer researcher s roles and experiences on a qualitative study of adult safeguarding policy |
| topic | Learning disability Adult safeguarding Adult protection Co-production Participatory design Legislation |
| url | https://doi.org/10.1186/s40900-022-00403-4 |
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