Pilot experience of multidisciplinary team discussion dedicated to inherited pulmonary fibrosis

Pilot experience of multidisciplinary team discussion dedicated to inherited pulmonary fibrosis

Abstract Background Genetic testing is proposed for suspected cases of monogenic pulmonary fibrosis, but clinicians and patients need specific information and recommendation about the related diagnosis and management issues. Because multidisciplinary discussion (MDD) has been shown to improve accura...

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Bibliographic Details
Main Authors: Raphael Borie, Caroline Kannengiesser, Laurent Gouya, Clairelyne Dupin, Serge Amselem, Ibrahima Ba, Vincent Bunel, Philippe Bonniaud, Diane Bouvry, Aurélie Cazes, Annick Clement, Marie Pierre Debray, Philippe Dieude, Ralph Epaud, Pascale Fanen, Elodie Lainey, Marie Legendre, Aurélie Plessier, Flore Sicre de Fontbrune, Lidwine Wemeau-Stervinou, Vincent Cottin, Nadia Nathan, Bruno Crestani
Format: Article
Language:English
Published: BMC 2019-12-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Interstitial pulmonary fibrosis
Telomerase
Surfactant
TERT
Familial; multidisciplinary discussion
Online Access:https://doi.org/10.1186/s13023-019-1256-5

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