The voice of children who live with HIV on implications of the disease in their daily life

Objective. To determine the effects of HIV/AIDS on the daily lives of HIV-infected children, based on their responses to a semi-structured interview. Methodology. This exploratory descriptive study with a qualitative approach was carried out from November 2012 to March 2013 among five children with...

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Main Authors: Joel Kuyava, Eva Neri Rubim Pedro
Format: Article
Language:English
Published: Universidad de Antioquia 2014-07-01
Series:Investigación y Educación en Enfermería
Subjects:
Online Access:http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072014000200014&lng=en&tlng=en
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author Joel Kuyava
Eva Neri Rubim Pedro
author_facet Joel Kuyava
Eva Neri Rubim Pedro
author_sort Joel Kuyava
collection DOAJ
description Objective. To determine the effects of HIV/AIDS on the daily lives of HIV-infected children, based on their responses to a semi-structured interview. Methodology. This exploratory descriptive study with a qualitative approach was carried out from November 2012 to March 2013 among five children with HIV aged 11 to 12 years. The children were registered at the non-governmental organization "Mais Criança" in Porto Alegre/RS/Brazil. Data were collected using semi-structured interviews, and the results were submitted to thematic analysis. Results. The analysis of content identified two categories: fears in daily life of the child with HIV and experiences: lived knowledge. With regard to daily life, the children reported no difference in their lives compared with the lives of other children because they can take part in any activities they want if they are taking their medicines. They seemed to have positive expectations about the future. Conclusion. Children with HIV/AIDS live in a complex situation with severe conflicts. However, their childhood is similar to that of other children without the disease. Health professionals, especially nurses, need to develop strategies to strengthen the bond with these children and their families in order to give them the opportunity to express their feelings and to cope better with living with the disease.
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spelling doaj.art-86624070686f4abba521f5744fe4c1472023-12-02T21:25:52ZengUniversidad de AntioquiaInvestigación y Educación en Enfermería0120-53072014-07-01322317325S0120-53072014000200014The voice of children who live with HIV on implications of the disease in their daily lifeJoel Kuyava0Eva Neri Rubim Pedro1Universidade Federal do Rio Grande do Sul (UFRGS)Universidade Federal do Rio Grande do Sul (UFRGS)Objective. To determine the effects of HIV/AIDS on the daily lives of HIV-infected children, based on their responses to a semi-structured interview. Methodology. This exploratory descriptive study with a qualitative approach was carried out from November 2012 to March 2013 among five children with HIV aged 11 to 12 years. The children were registered at the non-governmental organization "Mais Criança" in Porto Alegre/RS/Brazil. Data were collected using semi-structured interviews, and the results were submitted to thematic analysis. Results. The analysis of content identified two categories: fears in daily life of the child with HIV and experiences: lived knowledge. With regard to daily life, the children reported no difference in their lives compared with the lives of other children because they can take part in any activities they want if they are taking their medicines. They seemed to have positive expectations about the future. Conclusion. Children with HIV/AIDS live in a complex situation with severe conflicts. However, their childhood is similar to that of other children without the disease. Health professionals, especially nurses, need to develop strategies to strengthen the bond with these children and their families in order to give them the opportunity to express their feelings and to cope better with living with the disease.http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072014000200014&lng=en&tlng=enniñosíndrome de inmunodeficiencia adquiridavihenfermería
spellingShingle Joel Kuyava
Eva Neri Rubim Pedro
The voice of children who live with HIV on implications of the disease in their daily life
Investigación y Educación en Enfermería
niño
síndrome de inmunodeficiencia adquirida
vih
enfermería
title The voice of children who live with HIV on implications of the disease in their daily life
title_full The voice of children who live with HIV on implications of the disease in their daily life
title_fullStr The voice of children who live with HIV on implications of the disease in their daily life
title_full_unstemmed The voice of children who live with HIV on implications of the disease in their daily life
title_short The voice of children who live with HIV on implications of the disease in their daily life
title_sort voice of children who live with hiv on implications of the disease in their daily life
topic niño
síndrome de inmunodeficiencia adquirida
vih
enfermería
url http://www.scielo.org.co/scielo.php?script=sci_arttext&pid=S0120-53072014000200014&lng=en&tlng=en
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