Dying From Cancer

Medical oncologists and patients with advanced cancer struggle to discuss prognosis, goals, options, and values in a timely fashion. As a consequence, many patients die receiving aggressive treatment potentially inconsistent with their fully informed preferences and experience increased symptom burd...

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Bibliographic Details
Main Authors: Larry D Cripe MD, Richard M Frankel
Format: Article
Language:English
Published: SAGE Publishing 2017-06-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/2374373517699443
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author Larry D Cripe MD
Richard M Frankel
author_facet Larry D Cripe MD
Richard M Frankel
author_sort Larry D Cripe MD
collection DOAJ
description Medical oncologists and patients with advanced cancer struggle to discuss prognosis, goals, options, and values in a timely fashion. As a consequence, many patients die receiving aggressive treatment potentially inconsistent with their fully informed preferences and experience increased symptom burden and distress. The goals of patient - oncologist communication include exchanging information, building relationship, and engaging in shared decisions. Empathy is perhaps especially essential to effective patient - oncologist communication when the end of life is approaching. We speculate that, in addition to being a skilled response to a patient’s negative emotions, empathy is an emergent property of the relationship that allows the patient and oncologist to imagine what it will be like to navigate the transition from living with to dying from cancer; and to prepare for the transition. We propose that effective empathy: 1) requires an attentive, curious and imaginative physician; 2) acknowledges the complex and shifting goals as the end of life approaches; and 3) begins with a willingness of physicians to check in and find out what she may have misunderstood or misperceived. Empathy in end of life conversations cultivates the shared experiences necessary to co-create the new goals of care that underlie excellent end of life care.
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spelling doaj.art-8673c85bac7a44b1937e8f26973bb8fc2022-12-21T19:37:31ZengSAGE PublishingJournal of Patient Experience2374-37432374-37352017-06-01410.1177/237437351769944310.1177_2374373517699443Dying From CancerLarry D Cripe MD0Richard M Frankel1 Indiana University Simon Cancer Center Indianapolis, IN, USA Indiana University School of Medicine, Indianapolis, IN, USAMedical oncologists and patients with advanced cancer struggle to discuss prognosis, goals, options, and values in a timely fashion. As a consequence, many patients die receiving aggressive treatment potentially inconsistent with their fully informed preferences and experience increased symptom burden and distress. The goals of patient - oncologist communication include exchanging information, building relationship, and engaging in shared decisions. Empathy is perhaps especially essential to effective patient - oncologist communication when the end of life is approaching. We speculate that, in addition to being a skilled response to a patient’s negative emotions, empathy is an emergent property of the relationship that allows the patient and oncologist to imagine what it will be like to navigate the transition from living with to dying from cancer; and to prepare for the transition. We propose that effective empathy: 1) requires an attentive, curious and imaginative physician; 2) acknowledges the complex and shifting goals as the end of life approaches; and 3) begins with a willingness of physicians to check in and find out what she may have misunderstood or misperceived. Empathy in end of life conversations cultivates the shared experiences necessary to co-create the new goals of care that underlie excellent end of life care.https://doi.org/10.1177/2374373517699443
spellingShingle Larry D Cripe MD
Richard M Frankel
Dying From Cancer
Journal of Patient Experience
title Dying From Cancer
title_full Dying From Cancer
title_fullStr Dying From Cancer
title_full_unstemmed Dying From Cancer
title_short Dying From Cancer
title_sort dying from cancer
url https://doi.org/10.1177/2374373517699443
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