Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation
Objective: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. Design: Youth versions of both instruments were used for (1) content comp...
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| Format: | Article |
| Language: | English |
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Elsevier
2022-12-01
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| Series: | Archives of Rehabilitation Research and Clinical Translation |
| Subjects: | |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2590109522000726 |
| _version_ | 1811206865028120576 |
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| author | Gerjanne J. van Alphen, MD, MSc Marjolijn Ketelaar, PhD Jeanine M. Voorman, MD, PhD Eline W.M. Scholten, PhD Marcel W.M. Post, PhD |
| author_facet | Gerjanne J. van Alphen, MD, MSc Marjolijn Ketelaar, PhD Jeanine M. Voorman, MD, PhD Eline W.M. Scholten, PhD Marcel W.M. Post, PhD |
| author_sort | Gerjanne J. van Alphen, MD, MSc |
| collection | DOAJ |
| description | Objective: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. Design: Youth versions of both instruments were used for (1) content comparison and (2) analyses of relations between both instruments, based on cross-sectional data. Setting: Clinic. Participants: Participants were adolescents with cerebral palsy, aged 12-18 years; Gross Motor Function Classification System I-V; N=45. Interventions: Not applicable. Main outcome measures: Assessment of Life Habits (Life-H) with USER-Participation. Results: Both instruments measure independence in participation, called accomplishment (Life-H) and restrictions (USER-Participation), and satisfaction with participation. Life-H provides a profile of 6 domain scores and the USER-Participation a total score per dimension. Compared with the USER-Participation, the Life-H contains more specific items, more items not-applicable to many participants and more ceiling effects. Total scores on the accomplishment/restrictions and satisfaction scales between both instruments showed strong correlation coefficients (0.87 and 0.67, respectively). Correlations between domain scores were stronger within the accomplishment/restrictions scales (range 0.37-0.88) compared with the satisfaction scales (range 0.22-0.68). Conclusions: Compared with the USER-Participation, the Life-H takes more effort to complete but provides a more comprehensive assessment of participation. Participation accomplishment/restrictions scores were more similar between the instruments compared with satisfaction scores. Researchers and clinicians should carefully compare participation instruments in selecting one that matches their purpose. |
| first_indexed | 2024-04-12T03:54:02Z |
| format | Article |
| id | doaj.art-86802e06642648efa622551689cc603e |
| institution | Directory Open Access Journal |
| issn | 2590-1095 |
| language | English |
| last_indexed | 2024-04-12T03:54:02Z |
| publishDate | 2022-12-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Archives of Rehabilitation Research and Clinical Translation |
| spelling | doaj.art-86802e06642648efa622551689cc603e2022-12-22T03:48:53ZengElsevierArchives of Rehabilitation Research and Clinical Translation2590-10952022-12-0144100240Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-ParticipationGerjanne J. van Alphen, MD, MSc0Marjolijn Ketelaar, PhD1Jeanine M. Voorman, MD, PhD2Eline W.M. Scholten, PhD3Marcel W.M. Post, PhD4Utrecht University, University Medical Centre Utrecht, Utrecht, The NetherlandsUMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands; De Hoogstraat Rehabilitation, Utrecht, The Netherlands; Corresponding author M. Ketelaar, PhD, University Medical Center Utrecht, Brain Center, Department of Rehabilitation Medicine, Physical Therapy Science and Sports, Huispostnummer W01.121, PO Box 85500, 3508 GA Utrecht, The Netherlands.Wilhelmina Children's Hospital Utrecht, University Medical Centre Utrecht, Utrecht, The NetherlandsUMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands; De Hoogstraat Rehabilitation, Utrecht, The NetherlandsUMC Utrecht Brain Centre, University Medical Centre Utrecht, Utrecht, The Netherlands; De Hoogstraat Rehabilitation, Utrecht, The Netherlands; University of Groningen, University Medical Centre Groningen, Department of Rehabilitation Medicine, Groningen, The NetherlandsObjective: To explore and compare the contents and scores of the Assessment of Life Habits (Life-H) with the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in adolescents with cerebral palsy. Design: Youth versions of both instruments were used for (1) content comparison and (2) analyses of relations between both instruments, based on cross-sectional data. Setting: Clinic. Participants: Participants were adolescents with cerebral palsy, aged 12-18 years; Gross Motor Function Classification System I-V; N=45. Interventions: Not applicable. Main outcome measures: Assessment of Life Habits (Life-H) with USER-Participation. Results: Both instruments measure independence in participation, called accomplishment (Life-H) and restrictions (USER-Participation), and satisfaction with participation. Life-H provides a profile of 6 domain scores and the USER-Participation a total score per dimension. Compared with the USER-Participation, the Life-H contains more specific items, more items not-applicable to many participants and more ceiling effects. Total scores on the accomplishment/restrictions and satisfaction scales between both instruments showed strong correlation coefficients (0.87 and 0.67, respectively). Correlations between domain scores were stronger within the accomplishment/restrictions scales (range 0.37-0.88) compared with the satisfaction scales (range 0.22-0.68). Conclusions: Compared with the USER-Participation, the Life-H takes more effort to complete but provides a more comprehensive assessment of participation. Participation accomplishment/restrictions scores were more similar between the instruments compared with satisfaction scores. Researchers and clinicians should carefully compare participation instruments in selecting one that matches their purpose.http://www.sciencedirect.com/science/article/pii/S2590109522000726AccomplishmentAdolescentsAssessmentCerebral palsyParticipationRehabilitation |
| spellingShingle | Gerjanne J. van Alphen, MD, MSc Marjolijn Ketelaar, PhD Jeanine M. Voorman, MD, PhD Eline W.M. Scholten, PhD Marcel W.M. Post, PhD Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation Archives of Rehabilitation Research and Clinical Translation Accomplishment Adolescents Assessment Cerebral palsy Participation Rehabilitation |
| title | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
| title_full | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
| title_fullStr | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
| title_full_unstemmed | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
| title_short | Assessing Participation in Adolescents With Cerebral Palsy: Comparison of Life-Habits and USER-Participation |
| title_sort | assessing participation in adolescents with cerebral palsy comparison of life habits and user participation |
| topic | Accomplishment Adolescents Assessment Cerebral palsy Participation Rehabilitation |
| url | http://www.sciencedirect.com/science/article/pii/S2590109522000726 |
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