Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam
Abstract Background Health outcomes among Agent Orange/dioxin (dioxin) victims are significant due to many individuals requiring daily assistance, informal care, and rehabilitation support. This study aimed to identify the information needs of informal caregivers of dioxin victims in Vietnam. Method...
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| Format: | Article |
| Language: | English |
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BMC
2023-07-01
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| Series: | BMC Public Health |
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| Online Access: | https://doi.org/10.1186/s12889-023-15095-y |
| _version_ | 1797769313675902976 |
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| author | Hien Thi Ho Chi Linh Bui Olinda Santin Huong Thi Nguyen Hien Luong Thi Nguyen Hung Chi Do Nghi Ngoc Tran Hanh Thi Tuyet Tran Anh Mai Nguyen Gillian Carter Ha Thi Thu Bui Minh Van Hoang |
| author_facet | Hien Thi Ho Chi Linh Bui Olinda Santin Huong Thi Nguyen Hien Luong Thi Nguyen Hung Chi Do Nghi Ngoc Tran Hanh Thi Tuyet Tran Anh Mai Nguyen Gillian Carter Ha Thi Thu Bui Minh Van Hoang |
| author_sort | Hien Thi Ho |
| collection | DOAJ |
| description | Abstract Background Health outcomes among Agent Orange/dioxin (dioxin) victims are significant due to many individuals requiring daily assistance, informal care, and rehabilitation support. This study aimed to identify the information needs of informal caregivers of dioxin victims in Vietnam. Methods A cross-sectional study was conducted in Quynh Phu district, Thai Binh province – an area with a large number of dioxin victims, from June 2019 to June 2020. Quantitative data were collected from 124 caregivers of victims via structured interviews. Qualitative data were collected using semi-structured interview guides with in-depth interviews (IDI) (n = 36) and two focus group discussions (FGD) (n = 12). Results The results demonstrated that all caregivers of dioxin victims were family members, predominantly older (71.8%), 61.5 years old on average, living on low incomes (87.9%), and were farmers (80.7%). Almost all participants (96.8%) reported having information needs, particularly concerning dioxin’s harms, nutrition, dioxin-related policies and rehabilitation, and psychological support for patients. Caregivers reported that they would like to receive information via health staff counselling (85.0%), television (75.0%), and community loudspeaker (65.8%). Notably, the majority of caregivers reported the need for information regarding psychological support (70.0%). These findings are consistent with qualitative data, which identify an urgent need to provide information, especially through health staff and digital resources. Conclusion Many families with dioxin victims lived with little support and information, highlighting their high demand for information about care and rehabilitation. Thus, the healthcare system should promote information support, policy, and psychological support for caregivers and victims. An online support system for caregivers and victims is also recommended. |
| first_indexed | 2024-03-12T21:07:05Z |
| format | Article |
| id | doaj.art-86d32d32fd1c4b219a432a50320a0aae |
| institution | Directory Open Access Journal |
| issn | 1471-2458 |
| language | English |
| last_indexed | 2024-03-12T21:07:05Z |
| publishDate | 2023-07-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Public Health |
| spelling | doaj.art-86d32d32fd1c4b219a432a50320a0aae2023-07-30T11:26:11ZengBMCBMC Public Health1471-24582023-07-0123111110.1186/s12889-023-15095-yInformation needs of informal caregivers in caring and rehabilitation for dioxin victims in VietnamHien Thi Ho0Chi Linh Bui1Olinda Santin2Huong Thi Nguyen3Hien Luong Thi Nguyen4Hung Chi Do5Nghi Ngoc Tran6Hanh Thi Tuyet Tran7Anh Mai Nguyen8Gillian Carter9Ha Thi Thu Bui10Minh Van Hoang11Faculty of Health and Medical Sciences, the University of AdelaideFaculty of Clinical Medicine, Hanoi University of Public HealthSchool of Nursing & Midwifery, Faculty of Medicine, Health & Life Sciences, Queen’s University BelfastFaculty of Clinical Medicine, Hanoi University of Public HealthFaculty of Clinical Medicine, Hanoi University of Public HealthFaculty of Clinical Medicine, Hanoi University of Public HealthMedical Services Administration Department, Ministry of HealthHanoi University of Public HealthFaculty of Clinical Medicine, Hanoi University of Public HealthSchool of Nursing & Midwifery, Faculty of Medicine, Health & Life Sciences, Queen’s University BelfastHanoi University of Public HealthHanoi University of Public HealthAbstract Background Health outcomes among Agent Orange/dioxin (dioxin) victims are significant due to many individuals requiring daily assistance, informal care, and rehabilitation support. This study aimed to identify the information needs of informal caregivers of dioxin victims in Vietnam. Methods A cross-sectional study was conducted in Quynh Phu district, Thai Binh province – an area with a large number of dioxin victims, from June 2019 to June 2020. Quantitative data were collected from 124 caregivers of victims via structured interviews. Qualitative data were collected using semi-structured interview guides with in-depth interviews (IDI) (n = 36) and two focus group discussions (FGD) (n = 12). Results The results demonstrated that all caregivers of dioxin victims were family members, predominantly older (71.8%), 61.5 years old on average, living on low incomes (87.9%), and were farmers (80.7%). Almost all participants (96.8%) reported having information needs, particularly concerning dioxin’s harms, nutrition, dioxin-related policies and rehabilitation, and psychological support for patients. Caregivers reported that they would like to receive information via health staff counselling (85.0%), television (75.0%), and community loudspeaker (65.8%). Notably, the majority of caregivers reported the need for information regarding psychological support (70.0%). These findings are consistent with qualitative data, which identify an urgent need to provide information, especially through health staff and digital resources. Conclusion Many families with dioxin victims lived with little support and information, highlighting their high demand for information about care and rehabilitation. Thus, the healthcare system should promote information support, policy, and psychological support for caregivers and victims. An online support system for caregivers and victims is also recommended.https://doi.org/10.1186/s12889-023-15095-yCaregiversCareInformation needsCarersRehabilitationDioxin |
| spellingShingle | Hien Thi Ho Chi Linh Bui Olinda Santin Huong Thi Nguyen Hien Luong Thi Nguyen Hung Chi Do Nghi Ngoc Tran Hanh Thi Tuyet Tran Anh Mai Nguyen Gillian Carter Ha Thi Thu Bui Minh Van Hoang Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam BMC Public Health Caregivers Care Information needs Carers Rehabilitation Dioxin |
| title | Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam |
| title_full | Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam |
| title_fullStr | Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam |
| title_full_unstemmed | Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam |
| title_short | Information needs of informal caregivers in caring and rehabilitation for dioxin victims in Vietnam |
| title_sort | information needs of informal caregivers in caring and rehabilitation for dioxin victims in vietnam |
| topic | Caregivers Care Information needs Carers Rehabilitation Dioxin |
| url | https://doi.org/10.1186/s12889-023-15095-y |
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