Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service
<p>Abstract</p> <p>Background</p> <p>Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related q...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2012-10-01
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| Series: | BMC Palliative Care |
| Subjects: | |
| Online Access: | http://www.biomedcentral.com/1472-684X/11/21 |
| _version_ | 1819139392612073472 |
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| author | Kühne Franziska Krattenmacher Thomas Bergelt Corinna Ernst Johanna C Flechtner Hans-Henning Führer Daniel Herzog Wolfgang Klitzing Kai v Romer Georg Möller Birgit |
| author_facet | Kühne Franziska Krattenmacher Thomas Bergelt Corinna Ernst Johanna C Flechtner Hans-Henning Führer Daniel Herzog Wolfgang Klitzing Kai v Romer Georg Möller Birgit |
| author_sort | Kühne Franziska |
| collection | DOAJ |
| description | <p>Abstract</p> <p>Background</p> <p>Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with parents suffering from palliative cancer or cancers in other disease stages, b) to relate psychosocial adjustment and health-related quality of life to adolescent coping, and c) to explore significant mediator and predictor variables.</p> <p>Methods</p> <p>Cross-sectional data were derived from a multi-site research study of families before child-centered counselling. N=86 adolescents and young adults were included, their mean age 13.78 years (sd 2.45), 56% being female. Performed analyses included ANCOVA, multiple linear regression, and mediation analysis.</p> <p>Results</p> <p>Adolescents with parents suffering from palliative cancers reported significantly less total psychosocial problems, and better overall HRQoL. There were no significant group differences regarding coping frequency and efficacy. Our set of coping items significantly mediated the effect of parental disease stage on psychosocial problems and HRQoL. Further, parental disease status and general family functioning predicted psychosocial problems (R<sup>2</sup><sub>adj</sub> =.390) and HRQoL (R<sup>2</sup><sub>adj</sub> =.239) best.</p> <p>Conclusion</p> <p>The study indicates distress among adolescents throughout the entire parental disease process. Our analysis suggests that counselling services could offer supportive interventions which focus particularly on adolescent coping as well as family functioning.</p> |
| first_indexed | 2024-12-22T11:21:56Z |
| format | Article |
| id | doaj.art-872ff7702310460cb567d7aed269d31f |
| institution | Directory Open Access Journal |
| issn | 1472-684X |
| language | English |
| last_indexed | 2024-12-22T11:21:56Z |
| publishDate | 2012-10-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Palliative Care |
| spelling | doaj.art-872ff7702310460cb567d7aed269d31f2022-12-21T18:27:51ZengBMCBMC Palliative Care1472-684X2012-10-011112110.1186/1472-684X-11-21Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling serviceKühne FranziskaKrattenmacher ThomasBergelt CorinnaErnst Johanna CFlechtner Hans-HenningFührer DanielHerzog WolfgangKlitzing Kai vRomer GeorgMöller Birgit<p>Abstract</p> <p>Background</p> <p>Parental palliative disease is a family affair, however adolescent's well-being and coping are still rarely considered. The objectives of this paper were a) to identify differences in psychosocial adjustment and health-related quality of life (HRQoL) among adolescents and young adults with parents suffering from palliative cancer or cancers in other disease stages, b) to relate psychosocial adjustment and health-related quality of life to adolescent coping, and c) to explore significant mediator and predictor variables.</p> <p>Methods</p> <p>Cross-sectional data were derived from a multi-site research study of families before child-centered counselling. N=86 adolescents and young adults were included, their mean age 13.78 years (sd 2.45), 56% being female. Performed analyses included ANCOVA, multiple linear regression, and mediation analysis.</p> <p>Results</p> <p>Adolescents with parents suffering from palliative cancers reported significantly less total psychosocial problems, and better overall HRQoL. There were no significant group differences regarding coping frequency and efficacy. Our set of coping items significantly mediated the effect of parental disease stage on psychosocial problems and HRQoL. Further, parental disease status and general family functioning predicted psychosocial problems (R<sup>2</sup><sub>adj</sub> =.390) and HRQoL (R<sup>2</sup><sub>adj</sub> =.239) best.</p> <p>Conclusion</p> <p>The study indicates distress among adolescents throughout the entire parental disease process. Our analysis suggests that counselling services could offer supportive interventions which focus particularly on adolescent coping as well as family functioning.</p>http://www.biomedcentral.com/1472-684X/11/21Palliative careAdolescentsPsychosocial adjustmentHealth-related quality of lifeCoping |
| spellingShingle | Kühne Franziska Krattenmacher Thomas Bergelt Corinna Ernst Johanna C Flechtner Hans-Henning Führer Daniel Herzog Wolfgang Klitzing Kai v Romer Georg Möller Birgit Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service BMC Palliative Care Palliative care Adolescents Psychosocial adjustment Health-related quality of life Coping |
| title | Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service |
| title_full | Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service |
| title_fullStr | Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service |
| title_full_unstemmed | Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service |
| title_short | Parental palliative cancer: psychosocial adjustment and health-related quality of life in adolescents participating in a German family counselling service |
| title_sort | parental palliative cancer psychosocial adjustment and health related quality of life in adolescents participating in a german family counselling service |
| topic | Palliative care Adolescents Psychosocial adjustment Health-related quality of life Coping |
| url | http://www.biomedcentral.com/1472-684X/11/21 |
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