Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland

This is a retrospective chart review of 55 persons (mean age 11 years, range 2–28 years) diagnosed with fetal alcohol spectrum disorder (FASD) in one Finnish central hospital. The aim was to determine typical problems and interventions and estimate their costs during different periods of childhood b...

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Main Authors: Laura Mirjami Jolma, Mikko Koivu-Jolma, Anne Sarajuuri, Paulus Torkki, Ilona Autti-Rämö, Heli Sätilä
Format: Article
Language:English
Published: MDPI AG 2023-04-01
Series:Children
Subjects:
Online Access:https://www.mdpi.com/2227-9067/10/5/788
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author Laura Mirjami Jolma
Mikko Koivu-Jolma
Anne Sarajuuri
Paulus Torkki
Ilona Autti-Rämö
Heli Sätilä
author_facet Laura Mirjami Jolma
Mikko Koivu-Jolma
Anne Sarajuuri
Paulus Torkki
Ilona Autti-Rämö
Heli Sätilä
author_sort Laura Mirjami Jolma
collection DOAJ
description This is a retrospective chart review of 55 persons (mean age 11 years, range 2–28 years) diagnosed with fetal alcohol spectrum disorder (FASD) in one Finnish central hospital. The aim was to determine typical problems and interventions and estimate their costs during different periods of childhood between ages 0 and 16. During the first year, 29/38 (76.3%) were treated in the neonatal intensive care unit, 29/43 (67.4%) received physiotherapy, 15/43 (34.9%) were diagnosed with congenital malformation, 8/43 (18.6%) had heart defects. Between 1 and 6 years, 39/45 (86.7%) received occupational therapy, 25/45 (55.6%) speech therapy, and 12/45 (26.7%) were diagnosed with strabismus. Between 7 and 12 years, 25/37 (67.6%) were diagnosed with ADHD and special education was recommended for 30/37 (81.1%). Learning disorders and the need for psychiatric care increased with age. Between 13 and 16 years, 12/15 (80%) were treated in the psychiatric unit, and by this age, 8/15 (53.3%) were diagnosed with intellectual disability. Before 16 years, 44/55 (80%) were placed out of home, which caused 78.5% of the estimated cumulative mean extra costs of EUR 1,077,000 in 2022 currency. Except for psychiatric costs, health care costs were highest during early years. Charting typical patterns of problems may help in identifying children with FASD and planning follow-ups, content of assessments, and interventions.
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spelling doaj.art-8786396252824c4ab26430fcc1c2b6fa2023-11-18T00:54:54ZengMDPI AGChildren2227-90672023-04-0110578810.3390/children10050788Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in FinlandLaura Mirjami Jolma0Mikko Koivu-Jolma1Anne Sarajuuri2Paulus Torkki3Ilona Autti-Rämö4Heli Sätilä5Faculty of Medicine, University of Helsinki, Haartmaninkatu 8, P.O. Box 63, 00014 Helsinki, FinlandFaculty of Science, University of Helsinki, Gustaf Hällströminkatu 2, P.O. Box 64, 00014 Helsinki, FinlandDivision of Child Neurology, Helsinki University Central Hospital, University of Helsinki, Stenbäckinkatu 11, P.O. Box 22, 00014 Helsinki, FinlandFaculty of Medicine, University of Helsinki, Haartmaninkatu 8, P.O. Box 63, 00014 Helsinki, FinlandFaculty of Medicine, University of Helsinki, Haartmaninkatu 8, P.O. Box 63, 00014 Helsinki, FinlandDivision of Child Neurology, Päijät-Häme Central Hospital, Keskussairaalankatu 7, 15850 Lahti, FinlandThis is a retrospective chart review of 55 persons (mean age 11 years, range 2–28 years) diagnosed with fetal alcohol spectrum disorder (FASD) in one Finnish central hospital. The aim was to determine typical problems and interventions and estimate their costs during different periods of childhood between ages 0 and 16. During the first year, 29/38 (76.3%) were treated in the neonatal intensive care unit, 29/43 (67.4%) received physiotherapy, 15/43 (34.9%) were diagnosed with congenital malformation, 8/43 (18.6%) had heart defects. Between 1 and 6 years, 39/45 (86.7%) received occupational therapy, 25/45 (55.6%) speech therapy, and 12/45 (26.7%) were diagnosed with strabismus. Between 7 and 12 years, 25/37 (67.6%) were diagnosed with ADHD and special education was recommended for 30/37 (81.1%). Learning disorders and the need for psychiatric care increased with age. Between 13 and 16 years, 12/15 (80%) were treated in the psychiatric unit, and by this age, 8/15 (53.3%) were diagnosed with intellectual disability. Before 16 years, 44/55 (80%) were placed out of home, which caused 78.5% of the estimated cumulative mean extra costs of EUR 1,077,000 in 2022 currency. Except for psychiatric costs, health care costs were highest during early years. Charting typical patterns of problems may help in identifying children with FASD and planning follow-ups, content of assessments, and interventions.https://www.mdpi.com/2227-9067/10/5/788fetal alcohol spectrum disorderFASDage-specificcost estimationlife history
spellingShingle Laura Mirjami Jolma
Mikko Koivu-Jolma
Anne Sarajuuri
Paulus Torkki
Ilona Autti-Rämö
Heli Sätilä
Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
Children
fetal alcohol spectrum disorder
FASD
age-specific
cost estimation
life history
title Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
title_full Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
title_fullStr Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
title_full_unstemmed Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
title_short Children with FASD—Evolving Patterns of Developmental Problems and Intervention Costs in Ages 0 through 16 in Finland
title_sort children with fasd evolving patterns of developmental problems and intervention costs in ages 0 through 16 in finland
topic fetal alcohol spectrum disorder
FASD
age-specific
cost estimation
life history
url https://www.mdpi.com/2227-9067/10/5/788
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