Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and Technologies
As part of the iCARE-PD project, a multinational and multidisciplinary research endeavour to address complex care in Parkinson’s disease, a Canadian case study focused on gaining a better understanding of people living with Parkinson’s disease (PwP) experiences with health and medical services, part...
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| Format: | Article |
| Language: | English |
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MDPI AG
2022-06-01
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| Series: | Journal of Personalized Medicine |
| Subjects: | |
| Online Access: | https://www.mdpi.com/2075-4426/12/6/1001 |
| _version_ | 1797485497530974208 |
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| author | Amélie Gauthier-Beaupré Emely Poitras Sylvie Grosjean Tiago A. Mestre on behalf of the iCARE-PD Consortium |
| author_facet | Amélie Gauthier-Beaupré Emely Poitras Sylvie Grosjean Tiago A. Mestre on behalf of the iCARE-PD Consortium |
| author_sort | Amélie Gauthier-Beaupré |
| collection | DOAJ |
| description | As part of the iCARE-PD project, a multinational and multidisciplinary research endeavour to address complex care in Parkinson’s disease, a Canadian case study focused on gaining a better understanding of people living with Parkinson’s disease (PwP) experiences with health and medical services, particularly their vision for a sustainable, tailored and integrated care delivery network. The multifaceted nature of the condition means that PwP must continuously adapt and adjust to every aspect of their lives, and progressively rely on support from care partners (CP) and various health care professionals (HCP). To envision the integrated care delivery network from the perspective of PwP, the study consisted of designing scenarios for an integrated care delivery network with patients, their CP and their HCP, as well as identifying key requirements for designing an integrated care delivery network. The results demonstrate that numerous networks interact, representing specific inscriptions, actors and mediators who meet at specific crossing points. This resulted in the creation of a roadmap and toolkit that takes into consideration the unique challenges faced by PwP, and the necessity for an integrated care delivery network that can be personalized and malleable so as to adapt to evolving and changing needs over time. |
| first_indexed | 2024-03-09T23:19:40Z |
| format | Article |
| id | doaj.art-87d03123109d4d2cbc0e84f765240734 |
| institution | Directory Open Access Journal |
| issn | 2075-4426 |
| language | English |
| last_indexed | 2024-03-09T23:19:40Z |
| publishDate | 2022-06-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Journal of Personalized Medicine |
| spelling | doaj.art-87d03123109d4d2cbc0e84f7652407342023-11-23T17:29:04ZengMDPI AGJournal of Personalized Medicine2075-44262022-06-01126100110.3390/jpm12061001Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and TechnologiesAmélie Gauthier-Beaupré0Emely Poitras1Sylvie Grosjean2Tiago A. Mestre3on behalf of the iCARE-PD ConsortiumFaculty of Health Sciences, University of Ottawa, Ottawa, ON K1N 6N5, CanadaDepartment of Communication, University of Ottawa, Ottawa, ON K1N 6N5, CanadaDepartment of Communication, University of Ottawa, Ottawa, ON K1N 6N5, CanadaParkinson Disease and Movement Disorders Centre, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute, University of Ottawa Brain and Mind Research Institute, Ottawa, ON K1Y 4E9, CanadaAs part of the iCARE-PD project, a multinational and multidisciplinary research endeavour to address complex care in Parkinson’s disease, a Canadian case study focused on gaining a better understanding of people living with Parkinson’s disease (PwP) experiences with health and medical services, particularly their vision for a sustainable, tailored and integrated care delivery network. The multifaceted nature of the condition means that PwP must continuously adapt and adjust to every aspect of their lives, and progressively rely on support from care partners (CP) and various health care professionals (HCP). To envision the integrated care delivery network from the perspective of PwP, the study consisted of designing scenarios for an integrated care delivery network with patients, their CP and their HCP, as well as identifying key requirements for designing an integrated care delivery network. The results demonstrate that numerous networks interact, representing specific inscriptions, actors and mediators who meet at specific crossing points. This resulted in the creation of a roadmap and toolkit that takes into consideration the unique challenges faced by PwP, and the necessity for an integrated care delivery network that can be personalized and malleable so as to adapt to evolving and changing needs over time.https://www.mdpi.com/2075-4426/12/6/1001Parkinson’s diseaseintegrated care networkco-designactor-network theoryqualitative researcheHealth technologies |
| spellingShingle | Amélie Gauthier-Beaupré Emely Poitras Sylvie Grosjean Tiago A. Mestre on behalf of the iCARE-PD Consortium Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and Technologies Journal of Personalized Medicine Parkinson’s disease integrated care network co-design actor-network theory qualitative research eHealth technologies |
| title | Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and Technologies |
| title_full | Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and Technologies |
| title_fullStr | Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and Technologies |
| title_full_unstemmed | Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and Technologies |
| title_short | Co-Designing an Integrated Care Network with People Living with Parkinson’s Disease: A Heterogeneous Social Network of People, Resources and Technologies |
| title_sort | co designing an integrated care network with people living with parkinson s disease a heterogeneous social network of people resources and technologies |
| topic | Parkinson’s disease integrated care network co-design actor-network theory qualitative research eHealth technologies |
| url | https://www.mdpi.com/2075-4426/12/6/1001 |
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