Voices lost: where is the person in evaluating a palliative approach to care?
Person-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stan...
| Main Authors: | , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
SAGE Publishing
2023-08-01
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| Series: | Palliative Care and Social Practice |
| Online Access: | https://doi.org/10.1177/26323524231193041 |
| _version_ | 1827856714850893824 |
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| author | Richard Sawatzky Pat Porterfield Erin Donald Carolyn Tayler Kelli Stajduhar Sally Thorne |
| author_facet | Richard Sawatzky Pat Porterfield Erin Donald Carolyn Tayler Kelli Stajduhar Sally Thorne |
| author_sort | Richard Sawatzky |
| collection | DOAJ |
| description | Person-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stance. Using a narrative review approach, we critically reflected on how the experiences, priorities and concerns of patients and family are represented, or not represented, in evaluations of a palliative approach. We were guided by the following questions: (1) What types of outcomes and indicators are commonly used to evaluate a palliative approach? (2) Whose perspectives are represented in current evaluations of a palliative approach? And (3) What are the foci of evaluation in this body of research? We observed that the evaluations of a palliative approach are commonly based on indicators of its implementation and predominantly reflect the perspectives of healthcare providers and healthcare systems, rather than patients or family. Although evaluations focused on healthcare providers and systems are important for integrating a palliative approach, there is concern that the essence of person-centredness is lost when the perspectives of patients and families about their healthcare needs, outcomes and experiences are not consistently measured as the ultimate goal of care. There is a need for more emphasis on evaluation practices that value person-centred outcomes, in addition to outcomes oriented to the needs of healthcare providers and systems. |
| first_indexed | 2024-03-12T12:28:48Z |
| format | Article |
| id | doaj.art-88680ab36c8a4374998fb61464656e83 |
| institution | Directory Open Access Journal |
| issn | 2632-3524 |
| language | English |
| last_indexed | 2024-03-12T12:28:48Z |
| publishDate | 2023-08-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Palliative Care and Social Practice |
| spelling | doaj.art-88680ab36c8a4374998fb61464656e832023-08-29T17:05:43ZengSAGE PublishingPalliative Care and Social Practice2632-35242023-08-011710.1177/26323524231193041Voices lost: where is the person in evaluating a palliative approach to care?Richard SawatzkyPat PorterfieldErin DonaldCarolyn TaylerKelli StajduharSally ThornePerson-centredness is a cornerstone to a palliative approach to care. However, there is a risk that a person-centred perspective is lost in how a palliative approach is evaluated. We explored the extent to which evaluations of a palliative approach are consistent with its person-centred ethical stance. Using a narrative review approach, we critically reflected on how the experiences, priorities and concerns of patients and family are represented, or not represented, in evaluations of a palliative approach. We were guided by the following questions: (1) What types of outcomes and indicators are commonly used to evaluate a palliative approach? (2) Whose perspectives are represented in current evaluations of a palliative approach? And (3) What are the foci of evaluation in this body of research? We observed that the evaluations of a palliative approach are commonly based on indicators of its implementation and predominantly reflect the perspectives of healthcare providers and healthcare systems, rather than patients or family. Although evaluations focused on healthcare providers and systems are important for integrating a palliative approach, there is concern that the essence of person-centredness is lost when the perspectives of patients and families about their healthcare needs, outcomes and experiences are not consistently measured as the ultimate goal of care. There is a need for more emphasis on evaluation practices that value person-centred outcomes, in addition to outcomes oriented to the needs of healthcare providers and systems.https://doi.org/10.1177/26323524231193041 |
| spellingShingle | Richard Sawatzky Pat Porterfield Erin Donald Carolyn Tayler Kelli Stajduhar Sally Thorne Voices lost: where is the person in evaluating a palliative approach to care? Palliative Care and Social Practice |
| title | Voices lost: where is the person in evaluating a palliative approach to care? |
| title_full | Voices lost: where is the person in evaluating a palliative approach to care? |
| title_fullStr | Voices lost: where is the person in evaluating a palliative approach to care? |
| title_full_unstemmed | Voices lost: where is the person in evaluating a palliative approach to care? |
| title_short | Voices lost: where is the person in evaluating a palliative approach to care? |
| title_sort | voices lost where is the person in evaluating a palliative approach to care |
| url | https://doi.org/10.1177/26323524231193041 |
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