A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience
ObjectiveTo develop a simple and secure technological solution to incorporate electronic patient-reported outcomes (ePROs) into routine clinical care.MethodsA novel ePRO questionnaire delivery system was developed by Software for Specialists (S4S) in partnership with OPAL Rheumatology Australia. Val...
| Main Authors: | , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2023-01-01
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| Series: | Frontiers in Digital Health |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fdgth.2022.1074931/full |
| _version_ | 1828067901280616448 |
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| author | Kathleen Tymms Catherine O'Sullivan Tegan Smith Geoffrey Littlejohn Geoffrey Littlejohn Tim Freeman David Hoffman Dana Segelov Hedley Griffiths Hedley Griffiths Sabina Ciciriello Sabina Ciciriello Peter Youssef Peter Youssef Peter Youssef David Mathers David Mathers Claire T Deakin |
| author_facet | Kathleen Tymms Catherine O'Sullivan Tegan Smith Geoffrey Littlejohn Geoffrey Littlejohn Tim Freeman David Hoffman Dana Segelov Hedley Griffiths Hedley Griffiths Sabina Ciciriello Sabina Ciciriello Peter Youssef Peter Youssef Peter Youssef David Mathers David Mathers Claire T Deakin |
| author_sort | Kathleen Tymms |
| collection | DOAJ |
| description | ObjectiveTo develop a simple and secure technological solution to incorporate electronic patient-reported outcomes (ePROs) into routine clinical care.MethodsA novel ePRO questionnaire delivery system was developed by Software for Specialists (S4S) in partnership with OPAL Rheumatology Australia. Validated questionnaires were sent from the electronic medical record (EMR) (Audit4) of patients with rheumatoid arthritis (RA), psoriatic arthritis (PsA), ankylosing spondylitis (AS), lupus or giant cell arteritis (GCA) and delivered to the patient's email address or completed in the clinic waiting room using a smart device (in-practice). Completed questionnaires were encrypted and returned to the patient's Audit4. Deidentified clinical data was extracted and aggregated across all sites. Data collected between April 2016-Dec 2020 were analysed descriptively.ResultsBetween April 2016 to Dec 2020, 221,352 Functional Assessment of Chronic Illness Therapy Fatigue (FACIT-F), Patient Health Questionnaire-2 (PHQ-2) and/or HealthCare Resource Utilization (HCRU) questionnaires were sent from 39 of 42 contributing clinics (93%). 85% of questionnaires were delivered via email and 15% in-practice. Overall, 85% of patients completed at least one questionnaire, and of all questionnaires sent, 73% were completed. Females were more likely to engage with the questionnaires than males (87% vs. 81%), and older patients were slightly more likely to complete all questionnaires delivered.ConclusionsThe novel Audit4 ePRO delivery system is an effective tool for incorporating PROs into routine clinical care. The data generated provides a unique opportunity to understand the full burden of disease for patients in the real-world setting and the impact of interventions. |
| first_indexed | 2024-04-10T23:52:33Z |
| format | Article |
| id | doaj.art-886b548348c94223968c9880b26271cb |
| institution | Directory Open Access Journal |
| issn | 2673-253X |
| language | English |
| last_indexed | 2024-04-10T23:52:33Z |
| publishDate | 2023-01-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Digital Health |
| spelling | doaj.art-886b548348c94223968c9880b26271cb2023-01-10T15:19:35ZengFrontiers Media S.A.Frontiers in Digital Health2673-253X2023-01-01410.3389/fdgth.2022.10749311074931A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experienceKathleen Tymms0Catherine O'Sullivan1Tegan Smith2Geoffrey Littlejohn3Geoffrey Littlejohn4Tim Freeman5David Hoffman6Dana Segelov7Hedley Griffiths8Hedley Griffiths9Sabina Ciciriello10Sabina Ciciriello11Peter Youssef12Peter Youssef13Peter Youssef14David Mathers15David Mathers16Claire T Deakin17Canberra Rheumatology, Canberra, ACT, AustraliaOPAL Rheumatology, Sydney, NSW, AustraliaOPAL Rheumatology, Sydney, NSW, AustraliaOPAL Rheumatology, Sydney, NSW, AustraliaMonash University, Clayton, VIC, AustraliaSoftware4Specialists Pty Ltd, Sydney, NSW, AustraliaSoftware4Specialists Pty Ltd, Sydney, NSW, AustraliaSoftware4Specialists Pty Ltd, Sydney, NSW, AustraliaOPAL Rheumatology, Sydney, NSW, AustraliaBarwon Rheumatology Service, Geelong, VIC, AustraliaOPAL Rheumatology, Sydney, NSW, AustraliaRoyal Melbourne Hospital, Parkville, VIC, AustraliaOPAL Rheumatology, Sydney, NSW, AustraliaUniversity of Sydney, Sydney, NSW, AustraliaRoyal Prince Alfred, Camperdown, NSW, AustraliaOPAL Rheumatology, Sydney, NSW, AustraliaGeorgetown Arthritis, Newcastle, NSW, AustraliaOPAL Rheumatology, Sydney, NSW, AustraliaObjectiveTo develop a simple and secure technological solution to incorporate electronic patient-reported outcomes (ePROs) into routine clinical care.MethodsA novel ePRO questionnaire delivery system was developed by Software for Specialists (S4S) in partnership with OPAL Rheumatology Australia. Validated questionnaires were sent from the electronic medical record (EMR) (Audit4) of patients with rheumatoid arthritis (RA), psoriatic arthritis (PsA), ankylosing spondylitis (AS), lupus or giant cell arteritis (GCA) and delivered to the patient's email address or completed in the clinic waiting room using a smart device (in-practice). Completed questionnaires were encrypted and returned to the patient's Audit4. Deidentified clinical data was extracted and aggregated across all sites. Data collected between April 2016-Dec 2020 were analysed descriptively.ResultsBetween April 2016 to Dec 2020, 221,352 Functional Assessment of Chronic Illness Therapy Fatigue (FACIT-F), Patient Health Questionnaire-2 (PHQ-2) and/or HealthCare Resource Utilization (HCRU) questionnaires were sent from 39 of 42 contributing clinics (93%). 85% of questionnaires were delivered via email and 15% in-practice. Overall, 85% of patients completed at least one questionnaire, and of all questionnaires sent, 73% were completed. Females were more likely to engage with the questionnaires than males (87% vs. 81%), and older patients were slightly more likely to complete all questionnaires delivered.ConclusionsThe novel Audit4 ePRO delivery system is an effective tool for incorporating PROs into routine clinical care. The data generated provides a unique opportunity to understand the full burden of disease for patients in the real-world setting and the impact of interventions.https://www.frontiersin.org/articles/10.3389/fdgth.2022.1074931/fullpatient reported outcomesrheumatologydigitalisationePROpatient—centered careshared decision making |
| spellingShingle | Kathleen Tymms Catherine O'Sullivan Tegan Smith Geoffrey Littlejohn Geoffrey Littlejohn Tim Freeman David Hoffman Dana Segelov Hedley Griffiths Hedley Griffiths Sabina Ciciriello Sabina Ciciriello Peter Youssef Peter Youssef Peter Youssef David Mathers David Mathers Claire T Deakin A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience Frontiers in Digital Health patient reported outcomes rheumatology digitalisation ePRO patient—centered care shared decision making |
| title | A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience |
| title_full | A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience |
| title_fullStr | A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience |
| title_full_unstemmed | A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience |
| title_short | A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience |
| title_sort | novel electronic patient reported outcome delivery system to implement health related quality of life measures in routine clinical care an analysis of 5 years of experience |
| topic | patient reported outcomes rheumatology digitalisation ePRO patient—centered care shared decision making |
| url | https://www.frontiersin.org/articles/10.3389/fdgth.2022.1074931/full |
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