A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience

A novel electronic patient-reported outcome delivery system to implement health-related quality of life measures in routine clinical care: An analysis of 5 years of experience

ObjectiveTo develop a simple and secure technological solution to incorporate electronic patient-reported outcomes (ePROs) into routine clinical care.MethodsA novel ePRO questionnaire delivery system was developed by Software for Specialists (S4S) in partnership with OPAL Rheumatology Australia. Val...

Full description

Bibliographic Details
Main Authors:	Kathleen Tymms, Catherine O'Sullivan, Tegan Smith, Geoffrey Littlejohn, Tim Freeman, David Hoffman, Dana Segelov, Hedley Griffiths, Sabina Ciciriello, Peter Youssef, David Mathers, Claire T Deakin
Format:	Article
Language:	English
Published:	Frontiers Media S.A. 2023-01-01
Series:	Frontiers in Digital Health
Subjects:	patient reported outcomes rheumatology digitalisation ePRO patient—centered care shared decision making
Online Access:	https://www.frontiersin.org/articles/10.3389/fdgth.2022.1074931/full

Similar Items

Subjects with osteoarthritis can easily use a handheld touch screen electronic device to report medication use: qualitative results from a usability study
by: Khurana L, et al.
Published: (2016-10-01)

Use of daily electronic patient-reported outcome (PRO) diaries in randomized controlled trials for rheumatoid arthritis: rationale and implementation
by: Clifton O. Bingham, et al.
Published: (2019-03-01)

Who stop telemonitoring disease activity and who adhere: a prospective cohort study of patients with inflammatory arthritis
by: J. Wiegel, et al.
Published: (2022-11-01)

Electronic reporting of patient-reported outcomes in a fragile and comorbid population during cancer therapy – a feasibility study
by: Gry Assam Taarnhøj, et al.
Published: (2020-07-01)

Electronic Patient-Reported Outcomes in Nephrology: Focus on Hemodialysis
by: Rosa Pérez-Morales, et al.
Published: (2022-02-01)

Content validity of the Migraine-Specific Quality of Life Questionnaire version 2.1 electronic patient-reported outcome
by: Rebecca M. Speck, et al.
Published: (2019-07-01)

Comparability of a provisioned device versus bring your own device for completion of patient-reported outcome measures by participants with chronic obstructive pulmonary disease: qualitative interview findings
by: Louise Newton, et al.
Published: (2022-08-01)

Evaluation of real-time use of electronic patient-reported outcome data by nurses with patients in home dialysis clinics
by: Kara Schick-Makaroff, et al.
Published: (2017-06-01)

Psychometric validation and testing of the 10-item pediatric daily chest-related electronic patient reported outcome (ePRO) diary
by: Rob Arbuckle, et al.
Published: (2023-01-01)

Comparative Effectiveness of First‐Line Baricitinib in Patients With Rheumatoid Arthritis in the Australian OPAL Data Set
by: Sabina Ciciriello, et al.
Published: (2023-07-01)

Validation of Electronic Systems to Collect Patient-Reported Outcome (PRO) Data - Recommendations for Clinical Trial Teams: Report of the ISPOR ePRO Systems Validation Good Research Practices Task Force
by: Arthur Zbrozek, et al.
Published: (2018-05-01)

Can mHealth Technology Help Mitigate the Effects of the COVID-19 Pandemic?
by: Catherine P. Adans-Dester, et al.
Published: (2020-01-01)

Statistical analysis plan for the PRO B study: open-label, superiority randomised controlled trial of alarm-based patient-reported outcome monitoring in patients with metastatic breast cancer
by: Pimrapat Gebert, et al.
Published: (2024-03-01)

Enabling symptom self-management via use of an electronic patient-reported outcomes (ePRO) system to increase self-efficacy of patients with cancer receiving active chemotherapy treatment
by: Grigorios Kotronoulas, et al.
Published: (2015-10-01)

Implementation of electronic patient-reported outcomes for symptom monitoring during cancer treatment: the importance of getting it right
by: Ethan Basch, et al.
Published: (2023-11-01)

Flexible approaches to eCOA administration in clinical trials: The site perspective
by: Estelle Haenel, et al.
Published: (2024-02-01)

TELERA—Asynchronous TELEmedicine for Patients With Rheumatoid Arthritis: Study Protocol for a Prospective, Multi-Center, Randomized Controlled Trial
by: Johanna Mucke, et al.
Published: (2021-12-01)

Pan American Day of Rheumatology: Patient-Centered Research
by: Global Rheumatology by PANLAR
Published: (2022-06-01)

Patient Reported Outcomes in Chronic Inflammatory Diseases: Current State, Limitations and Perspectives
by: Florian Tran, et al.
Published: (2021-03-01)

Predicting Objective Response Rate (ORR) in Immune Checkpoint Inhibitor (ICI) Therapies with Machine Learning (ML) by Combining Clinical and Patient-Reported Data
by: Sanna Iivanainen, et al.
Published: (2022-01-01)

The transition from pediatric to adult rheumatology care through creating positive and productive patient-provider relationships: an opportunity often forgotten
by: Semalulu Teresa, et al.
Published: (2021-04-01)

Assessing physician and patient acceptance of infliximab biosimilars in rheumatoid arthritis, ankylosing spondyloarthritis and psoriatic arthritis across Germany
by: Waller J, et al.
Published: (2017-03-01)

Specialized dermatological-rheumatological patient management improves diagnostic outcome and patient journey in psoriasis and psoriatic arthritis: a four-year analysis
by: Jana Ziob, et al.
Published: (2021-10-01)

Rheumatic diseases in migrant patients resident in Tuscany: epidemiological data analysis and single-center experience
by: L. Cometi, et al.
Published: (2024-03-01)

Patient participation in defining best-practice rheumatology service provision in Aotearoa New Zealand: a qualitative study with service consumers
by: Rachel Ngan Kee, et al.
Published: (2023-01-01)

Patient’s experiences with the care for juvenile idiopathic arthritis across Europe
by: E. H. Pieter. van Dijkhuizen, et al.
Published: (2018-02-01)

Clinical efficacy, safety, and subjective experience based on ePRO in HIV‐infected individuals administered Bictegravir/Emtricitabine/Tenofovir Alafenamide in southwest China
by: Linghong Kong, et al.
Published: (2023-08-01)

Impact of anti-citrullinated protein antibody on tumor necrosis factor inhibitor or abatacept response in patients with rheumatoid arthritis
by: Kathleen Tymms, et al.
Published: (2021-04-01)

The Women’s Health Initiative cancer survivorship clinic incorporating electronic patient-reported outcomes: a study protocol for the Linking You to Support and Advice (LYSA) randomized controlled trial
by: Noreen Kearns, et al.
Published: (2022-11-01)

Joining telehealth in rheumatology: a survey on the role played by personalized experience from patients’ perspective
by: Elisabetta Listorti, et al.
Published: (2023-06-01)

Improving communication of the concept of 'treat-to target' in childhood lupus: a public and patient (PPI) engagement project involving children and young people
by: R. S. Elliott, et al.
Published: (2022-10-01)

Intravenous treatment adherence of patients with chronic inflammatory rheumatic diseases during the COVID-19 pandemic: experience of a single center
by: Konak Hatice Ecem, et al.
Published: (2022-09-01)

Impact of a nurse led telephone intervention on satisfaction and health outcomes of children with inflammatory rheumatic diseases and their families: a crossover randomized clinical trial
by: Anne-Sylvie Ramelet, et al.
Published: (2017-07-01)

Profile of rheumatology patients willing to report adverse drug reactions: bias from selective reporting
by: Protić D, et al.
Published: (2016-02-01)

Development of Evidence-Based Disease Education Literature for Pakistani Rheumatoid Arthritis Patients
by: Atta Abbas Naqvi, et al.
Published: (2017-11-01)

Medication adherence and persistence in patients with autoimmune rheumatic diseases: a narrative review
by: Anghel LA, et al.
Published: (2018-07-01)

Patient involvement in basic rheumatology research at Nijmegen: a three year’s responsive evaluation of added value, pitfalls and conditions for success
by: Maarten P. T. de Wit, et al.
Published: (2022-10-01)

Specialists by experience
by: Priscila Torres
Published: (2020-06-01)

Modern psychometrics applied in rheumatology–A systematic review
by: Siemons Liseth, et al.
Published: (2012-10-01)

Routine Surveillance of Chemotherapy Toxicities in Cancer Patients Using the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
by: Tian Qi Wang, et al.
Published: (2018-10-01)