P480: Parent and healthcare personnel perspectives on challenges to family-centered care for children with inherited metabolic diseases: A qualitative analysis
| Main Authors: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Elsevier
2024-01-01
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| Series: | Genetics in Medicine Open |
| Online Access: | http://www.sciencedirect.com/science/article/pii/S2949774424005259 |
| _version_ | 1797267469983809536 |
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| author | Andrea Chow Guylaine D'Amours Isabel Jordan Nicole Pallone Maureen Smith Pranesh Chakraborty Zobaida Al-Baldawi Julie Paradis Jamie Brehaut Alicia Chan Eyal Cohen Sarah Dyack Jane Gillis Sharan Goobie Ian Graham Cheryl Rockman-Greenberg Jeremy Grimshaw Robin Hayeems Michal Inbar-Feigenberg Shailly Jain-Ghai Sara Khangura Jennifer MacKenzie Nathalie Major John Mitchell Stuart Nicholls Amy Pender Murray Potter Chitra Prasad Natalya Karp Andreas Schulze Komudi Siriwardena Kathy Speechley Sylvia Stockler Yannis Trakadis Clara van Karnebeek Jagdeep Walia Kumanan Wilson Brenda Wilson Andrea Yu Beth Potter |
| author_facet | Andrea Chow Guylaine D'Amours Isabel Jordan Nicole Pallone Maureen Smith Pranesh Chakraborty Zobaida Al-Baldawi Julie Paradis Jamie Brehaut Alicia Chan Eyal Cohen Sarah Dyack Jane Gillis Sharan Goobie Ian Graham Cheryl Rockman-Greenberg Jeremy Grimshaw Robin Hayeems Michal Inbar-Feigenberg Shailly Jain-Ghai Sara Khangura Jennifer MacKenzie Nathalie Major John Mitchell Stuart Nicholls Amy Pender Murray Potter Chitra Prasad Natalya Karp Andreas Schulze Komudi Siriwardena Kathy Speechley Sylvia Stockler Yannis Trakadis Clara van Karnebeek Jagdeep Walia Kumanan Wilson Brenda Wilson Andrea Yu Beth Potter |
| author_sort | Andrea Chow |
| collection | DOAJ |
| first_indexed | 2024-04-25T01:17:05Z |
| format | Article |
| id | doaj.art-88ebbe3c15ba497cb11c3d55ae1cdb0b |
| institution | Directory Open Access Journal |
| issn | 2949-7744 |
| language | English |
| last_indexed | 2024-04-25T01:17:05Z |
| publishDate | 2024-01-01 |
| publisher | Elsevier |
| record_format | Article |
| series | Genetics in Medicine Open |
| spelling | doaj.art-88ebbe3c15ba497cb11c3d55ae1cdb0b2024-03-09T09:32:20ZengElsevierGenetics in Medicine Open2949-77442024-01-012101379P480: Parent and healthcare personnel perspectives on challenges to family-centered care for children with inherited metabolic diseases: A qualitative analysisAndrea Chow0Guylaine D'Amours1Isabel Jordan2Nicole Pallone3Maureen Smith4Pranesh Chakraborty5Zobaida Al-Baldawi6Julie Paradis7Jamie Brehaut8Alicia Chan9Eyal Cohen10Sarah Dyack11Jane Gillis12Sharan Goobie13Ian Graham14Cheryl Rockman-Greenberg15Jeremy Grimshaw16Robin Hayeems17Michal Inbar-Feigenberg18Shailly Jain-Ghai19Sara Khangura20Jennifer MacKenzie21Nathalie Major22John Mitchell23Stuart Nicholls24Amy Pender25Murray Potter26Chitra Prasad27Natalya Karp28Andreas Schulze29Komudi Siriwardena30Kathy Speechley31Sylvia Stockler32Yannis Trakadis33Clara van Karnebeek34Jagdeep Walia35Kumanan Wilson36Brenda Wilson37Andrea Yu38Beth Potter39University of OttawaSchool of Epidemiology and Public Health, University of Ottawa, Ottawa, CanadaPatient partner, British Columbia, CanadaPatient partner, Canadian PKU & Allied Disorders Inc, Toronto, CanadaPatient partner, Canadian Organization for Rare Disorders, Toronto, CanadaChildren's Hospital of Eastern Ontario, Ottawa, CanadaSchool of Epidemiology and Public Health, University of Ottawa, Ottawa, CanadaSchool of Epidemiology and Public Health, University of Ottawa, Ottawa, CanadaSchool of Epidemiology and Public Health, University of Ottawa, Ottawa, CanadaDepartment of Medical Genetics, University of Alberta, Edmonton, CanadaUniversity of Toronto/Hospital for Sick Children, Toronto, CanadaDivision of Medical Genetics, Department of Pediatrics, Dalhousie University, Halifax, CanadaMoffit Cancer Care Center, Tampa, FLDivision of Medical Genetics, Department of Pediatrics, Dalhousie University, Halifax, CanadaSchool of Epidemiology and Public Health, University of Ottawa, Ottawa, CanadaUniversity of Manitoba, Winnipeg, CanadaClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, CanadaUniversity of Toronto/Hospital for Sick Children, Toronto, CanadaUniversity of Toronto/Hospital for Sick Children, Toronto, CanadaDepartment of Medical Genetics, University of Alberta, Edmonton, CanadaSchool of Epidemiology and Public Health, University of Ottawa, Ottawa, CanadaMcMaster University, Hamilton, CanadaChildren's Hospital of Eastern Ontario, Ottawa, CanadaMontreal Children’s Hospital, Montreal, CanadaClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, CanadaHamilton Health Sciences Centre, Hamilton, CanadaHamilton Health Sciences Centre, Hamilton, CanadaDepartment of Pediatrics, Western University, London, CanadaDepartment of Pediatrics, Western University, London, CanadaUniversity of Toronto/Hospital for Sick Children, Toronto, CanadaDepartment of Medical Genetics, University of Alberta, Edmonton, CanadaWestern University, London, CanadaDepartment of Pediatrics, B.C. Children’s Hospital, Vancouver, CanadaMontreal Children’s Hospital, Montreal, CanadaDepartment of Pediatrics, Radboud University Medical Center, Nijmegen, The NetherlandsMedical Genetics, Department of Pediatrics, Kingston Health Sciences Centre and Queen’s University, Kingston, CanadaClinical Epidemiology Program, Ottawa Hospital Research Institute, Ottawa, CanadaFaculty of Medicine Division of Community Health and Humanities, Memorial University of NewfoundlandChildren's Hospital of Eastern Ontario, Ottawa, CanadaSchool of Epidemiology and Public Health, University of Ottawa, Ottawa, Canadahttp://www.sciencedirect.com/science/article/pii/S2949774424005259 |
| spellingShingle | Andrea Chow Guylaine D'Amours Isabel Jordan Nicole Pallone Maureen Smith Pranesh Chakraborty Zobaida Al-Baldawi Julie Paradis Jamie Brehaut Alicia Chan Eyal Cohen Sarah Dyack Jane Gillis Sharan Goobie Ian Graham Cheryl Rockman-Greenberg Jeremy Grimshaw Robin Hayeems Michal Inbar-Feigenberg Shailly Jain-Ghai Sara Khangura Jennifer MacKenzie Nathalie Major John Mitchell Stuart Nicholls Amy Pender Murray Potter Chitra Prasad Natalya Karp Andreas Schulze Komudi Siriwardena Kathy Speechley Sylvia Stockler Yannis Trakadis Clara van Karnebeek Jagdeep Walia Kumanan Wilson Brenda Wilson Andrea Yu Beth Potter P480: Parent and healthcare personnel perspectives on challenges to family-centered care for children with inherited metabolic diseases: A qualitative analysis Genetics in Medicine Open |
| title | P480: Parent and healthcare personnel perspectives on challenges to family-centered care for children with inherited metabolic diseases: A qualitative analysis |
| title_full | P480: Parent and healthcare personnel perspectives on challenges to family-centered care for children with inherited metabolic diseases: A qualitative analysis |
| title_fullStr | P480: Parent and healthcare personnel perspectives on challenges to family-centered care for children with inherited metabolic diseases: A qualitative analysis |
| title_full_unstemmed | P480: Parent and healthcare personnel perspectives on challenges to family-centered care for children with inherited metabolic diseases: A qualitative analysis |
| title_short | P480: Parent and healthcare personnel perspectives on challenges to family-centered care for children with inherited metabolic diseases: A qualitative analysis |
| title_sort | p480 parent and healthcare personnel perspectives on challenges to family centered care for children with inherited metabolic diseases a qualitative analysis |
| url | http://www.sciencedirect.com/science/article/pii/S2949774424005259 |
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