What are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers: A scoping review
Background After discharge home, stroke survivors and their informal caregivers face a significant lack of support and information which accentuates their psychosocial burden. Online resources might provide this support and address psychosocial needs, but existing online stroke programmes mainly tar...
| Main Authors: | , , , , , , |
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| Format: | Article |
| Language: | English |
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SAGE Publishing
2024-03-01
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| Series: | Digital Health |
| Online Access: | https://doi.org/10.1177/20552076241240895 |
| _version_ | 1827312242698223616 |
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| author | Marion Delvallée Romain Garreau Anne Termoz Pierre-Marie Ploteau Laurent Derex Anne-Marie Schott Julie Haesebaert |
| author_facet | Marion Delvallée Romain Garreau Anne Termoz Pierre-Marie Ploteau Laurent Derex Anne-Marie Schott Julie Haesebaert |
| author_sort | Marion Delvallée |
| collection | DOAJ |
| description | Background After discharge home, stroke survivors and their informal caregivers face a significant lack of support and information which accentuates their psychosocial burden. Online resources might provide this support and address psychosocial needs, but existing online stroke programmes mainly target functional rehabilitation. We aimed to map the existing literature on online resources that have been evaluated in stroke rehabilitation and aimed at reducing psychosocial impact in stroke survivors and informal caregivers. Methods MEDLINE was searched (2010–2024) to identify studies investigating online resources targeting psychosocial health. Studies were selected and extracted independently by two reviewers. We described the content, use, and psychosocial impact of these interventions using a narrative approach. Results Eleven studies were included in the review, reporting 10 online resources (two studies relating to the same resource). Online resources were heterogeneous: eight information/resources websites, one mobile app, and one forum. Five online resources were dedicated to stroke survivors, four to stroke survivors and their informal caregivers, and one to informal caregivers. Two randomized controlled trials reported a significant decrease in depressive symptoms associated with the use of online resources. Stroke survivors and informal caregivers find online resources useful and acceptable to address their psychosocial needs. Conclusions Few online stroke resources have been designed and evaluated to support post-stroke psychosocial rehabilitation. Further larger-scale research needs to study the impact of these interventions on psychosocial recovery over time. |
| first_indexed | 2024-04-24T21:39:31Z |
| format | Article |
| id | doaj.art-8911034421084ce99070b94f2e74909c |
| institution | Directory Open Access Journal |
| issn | 2055-2076 |
| language | English |
| last_indexed | 2024-04-24T21:39:31Z |
| publishDate | 2024-03-01 |
| publisher | SAGE Publishing |
| record_format | Article |
| series | Digital Health |
| spelling | doaj.art-8911034421084ce99070b94f2e74909c2024-03-21T10:03:26ZengSAGE PublishingDigital Health2055-20762024-03-011010.1177/20552076241240895What are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers: A scoping reviewMarion Delvallée0Romain Garreau1Anne Termoz2Pierre-Marie Ploteau3Laurent Derex4Anne-Marie Schott5Julie Haesebaert6 Research on Healthcare Performance RESHAPE, INSERM U1290, , Lyon, France Laboratoire de Biométrie et Biologie Evolutive, UMR CNRS 5558, , Lyon, France Service Recherche et Epidémiologie Cliniques, , Pôle de Sante Publique, Lyon, France Service Recherche et Epidémiologie Cliniques, , Pôle de Sante Publique, Lyon, France Service Neuro-vasculaire, , Hôpital Pierre Wertheimer, Lyon, France Service Recherche et Epidémiologie Cliniques, , Pôle de Sante Publique, Lyon, France Service Recherche et Epidémiologie Cliniques, , Pôle de Sante Publique, Lyon, FranceBackground After discharge home, stroke survivors and their informal caregivers face a significant lack of support and information which accentuates their psychosocial burden. Online resources might provide this support and address psychosocial needs, but existing online stroke programmes mainly target functional rehabilitation. We aimed to map the existing literature on online resources that have been evaluated in stroke rehabilitation and aimed at reducing psychosocial impact in stroke survivors and informal caregivers. Methods MEDLINE was searched (2010–2024) to identify studies investigating online resources targeting psychosocial health. Studies were selected and extracted independently by two reviewers. We described the content, use, and psychosocial impact of these interventions using a narrative approach. Results Eleven studies were included in the review, reporting 10 online resources (two studies relating to the same resource). Online resources were heterogeneous: eight information/resources websites, one mobile app, and one forum. Five online resources were dedicated to stroke survivors, four to stroke survivors and their informal caregivers, and one to informal caregivers. Two randomized controlled trials reported a significant decrease in depressive symptoms associated with the use of online resources. Stroke survivors and informal caregivers find online resources useful and acceptable to address their psychosocial needs. Conclusions Few online stroke resources have been designed and evaluated to support post-stroke psychosocial rehabilitation. Further larger-scale research needs to study the impact of these interventions on psychosocial recovery over time.https://doi.org/10.1177/20552076241240895 |
| spellingShingle | Marion Delvallée Romain Garreau Anne Termoz Pierre-Marie Ploteau Laurent Derex Anne-Marie Schott Julie Haesebaert What are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers: A scoping review Digital Health |
| title | What are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers: A scoping review |
| title_full | What are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers: A scoping review |
| title_fullStr | What are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers: A scoping review |
| title_full_unstemmed | What are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers: A scoping review |
| title_short | What are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers: A scoping review |
| title_sort | what are the available online resources targeting psychosocial burden among stroke survivors and their informal caregivers a scoping review |
| url | https://doi.org/10.1177/20552076241240895 |
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