National registry for amyotrophic lateral sclerosis: a systematic review for structuring population registries of motor neuron diseases

National registry for amyotrophic lateral sclerosis: a systematic review for structuring population registries of motor neuron diseases

Abstract Background This article comprises a systematic review of the literature that aims at researching and analyzing the frequently applied guidelines for structuring national databases of epidemiological surveillance for motor neuron diseases, especially Amyotrophic Lateral Sclerosis (ALS). Meth...

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Main Authors: Ingridy Barbalho, Ricardo Valentim, Mário Dourado Júnior, Daniele Barros, Hércules Pedrosa Júnior, Felipe Fernandes, César Teixeira, Thaísa Lima, Jailton Paiva, Danilo Nagem
Format: Article
Language:English
Published: BMC 2021-07-01
Series:BMC Neurology
Subjects:
Amyotrophic lateral sclerosis
Rare disease registries
Motor neuron disease
National databases of epidemiological
Global health
Online Access:https://doi.org/10.1186/s12883-021-02298-2

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