Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere
Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life partic...
| Main Authors: | , , , , , , , , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Associação Brasileira de Divulgação Científica
2021-04-01
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| Series: | Brazilian Journal of Medical and Biological Research |
| Subjects: | |
| Online Access: | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0100-879X2021000600101&tlng=en |
| _version_ | 1818951038441357312 |
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| author | Kamyar Kalantar-Zadeh Philip Kam-Tao Li Ekamol Tantisattamo Latha Kumaraswami Vassilios Liakopoulos Siu-Fai Lui Ifeoma Ulasi Sharon Andreoli Alessandro Balducci Sophie Dupuis Tess Harris Anne Hradsky Richard Knight Sajay Kumar Maggie Ng Alice Poidevin Gamal Saadi Allison Tong |
| author_facet | Kamyar Kalantar-Zadeh Philip Kam-Tao Li Ekamol Tantisattamo Latha Kumaraswami Vassilios Liakopoulos Siu-Fai Lui Ifeoma Ulasi Sharon Andreoli Alessandro Balducci Sophie Dupuis Tess Harris Anne Hradsky Richard Knight Sajay Kumar Maggie Ng Alice Poidevin Gamal Saadi Allison Tong |
| author_sort | Kamyar Kalantar-Zadeh |
| collection | DOAJ |
| description | Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries. |
| first_indexed | 2024-12-20T09:28:08Z |
| format | Article |
| id | doaj.art-8a8f6538162147c28a03eaee8b57e077 |
| institution | Directory Open Access Journal |
| issn | 1414-431X |
| language | English |
| last_indexed | 2024-12-20T09:28:08Z |
| publishDate | 2021-04-01 |
| publisher | Associação Brasileira de Divulgação Científica |
| record_format | Article |
| series | Brazilian Journal of Medical and Biological Research |
| spelling | doaj.art-8a8f6538162147c28a03eaee8b57e0772022-12-21T19:45:08ZengAssociação Brasileira de Divulgação CientíficaBrazilian Journal of Medical and Biological Research1414-431X2021-04-0154610.1590/1414-431x202011098Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhereKamyar Kalantar-Zadehhttps://orcid.org/0000-0002-8666-0725Philip Kam-Tao Lihttps://orcid.org/0000-0001-9879-8388Ekamol Tantisattamohttps://orcid.org/0000-0003-0883-6892Latha KumaraswamiVassilios Liakopouloshttps://orcid.org/0000-0002-7564-2724Siu-Fai Luihttps://orcid.org/0000-0003-0800-8982Ifeoma Ulasihttps://orcid.org/0000-0001-7783-3025Sharon AndreoliAlessandro Balduccihttps://orcid.org/0000-0002-7432-1494Sophie DupuisTess Harrishttps://orcid.org/0000-0003-3659-7438Anne HradskyRichard KnightSajay KumarMaggie NgAlice PoidevinGamal Saadihttps://orcid.org/0000-0002-6280-1685Allison Tonghttps://orcid.org/0000-0001-8973-9538Living with chronic kidney disease (CKD) is associated with hardships for patients and their care-partners. Empowering patients and their care-partners, including family members or friends involved in their care, may help minimize burden and consequences of CKD-related symptoms to enable life participation. There is a need to broaden the focus on living well with kidney disease and re-engagement in life, including emphasis on patients being in control. The World Kidney Day (WKD) Joint Steering Committee has declared 2021 the year of “Living Well with Kidney Disease” in an effort to increase education and awareness on the important goal of patient empowerment and life participation. This calls for the development and implementation of validated patient-reported outcome measures to assess and address areas of life participation in routine care. It could be supported by regulatory agencies as a metric for quality care or to support labelling claims for medicines and devices. Funding agencies could establish targeted calls for research that address the priorities of patients. Patients with kidney disease and their care-partners should feel supported to live well through concerted efforts by kidney care communities including during pandemics. In the overall wellness program for kidney disease patients, the need for prevention should be reiterated. Early detection with prolonged course of wellness despite kidney disease, after effective secondary and tertiary prevention programs, should be promoted. WKD 2021 continues to call for increased awareness of the importance of preventive measures throughout populations, professionals, and policy makers, applicable to both developed and developing countries.http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0100-879X2021000600101&tlng=enPatient empowermentCare-partnerLow-middle-income countriesHealth policy |
| spellingShingle | Kamyar Kalantar-Zadeh Philip Kam-Tao Li Ekamol Tantisattamo Latha Kumaraswami Vassilios Liakopoulos Siu-Fai Lui Ifeoma Ulasi Sharon Andreoli Alessandro Balducci Sophie Dupuis Tess Harris Anne Hradsky Richard Knight Sajay Kumar Maggie Ng Alice Poidevin Gamal Saadi Allison Tong Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere Brazilian Journal of Medical and Biological Research Patient empowerment Care-partner Low-middle-income countries Health policy |
| title | Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere |
| title_full | Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere |
| title_fullStr | Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere |
| title_full_unstemmed | Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere |
| title_short | Living well with kidney disease by patient and care-partner empowerment: kidney health for everyone everywhere |
| title_sort | living well with kidney disease by patient and care partner empowerment kidney health for everyone everywhere |
| topic | Patient empowerment Care-partner Low-middle-income countries Health policy |
| url | http://www.scielo.br/scielo.php?script=sci_arttext&pid=S0100-879X2021000600101&tlng=en |
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