What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research
Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE mon...
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2022-01-01
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| Series: | Frontiers in Public Health |
| Subjects: | |
| Online Access: | https://www.frontiersin.org/articles/10.3389/fpubh.2021.776940/full |
| _version_ | 1818332456935227392 |
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| author | Gary Hickey Gary Hickey Katie Porter Doreen Tembo Una Rennard Martha Tholanah Martha Tholanah Peter Beresford David Chandler Moses Chimbari Moses Chimbari Tina Coldham Tina Coldham Lisa Dikomitis Biggy Dziro Peter O. Ekiikina Maria I. Khattak Cristian R. Montenegro Cristian R. Montenegro Noni Mumba Rosemary Musesengwa Erica Nelson Clement Nhunzvi Caroline M. Ramirez Caroline M. Ramirez Sophie Staniszewska |
| author_facet | Gary Hickey Gary Hickey Katie Porter Doreen Tembo Una Rennard Martha Tholanah Martha Tholanah Peter Beresford David Chandler Moses Chimbari Moses Chimbari Tina Coldham Tina Coldham Lisa Dikomitis Biggy Dziro Peter O. Ekiikina Maria I. Khattak Cristian R. Montenegro Cristian R. Montenegro Noni Mumba Rosemary Musesengwa Erica Nelson Clement Nhunzvi Caroline M. Ramirez Caroline M. Ramirez Sophie Staniszewska |
| author_sort | Gary Hickey |
| collection | DOAJ |
| description | Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does “good” CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what “good” CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what “good” CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community. |
| first_indexed | 2024-12-13T13:36:02Z |
| format | Article |
| id | doaj.art-8ab7d008caec44aba46d20bb7e7f1fb5 |
| institution | Directory Open Access Journal |
| issn | 2296-2565 |
| language | English |
| last_indexed | 2024-12-13T13:36:02Z |
| publishDate | 2022-01-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Public Health |
| spelling | doaj.art-8ab7d008caec44aba46d20bb7e7f1fb52022-12-21T23:43:48ZengFrontiers Media S.A.Frontiers in Public Health2296-25652022-01-01910.3389/fpubh.2021.776940776940What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health ResearchGary Hickey0Gary Hickey1Katie Porter2Doreen Tembo3Una Rennard4Martha Tholanah5Martha Tholanah6Peter Beresford7David Chandler8Moses Chimbari9Moses Chimbari10Tina Coldham11Tina Coldham12Lisa Dikomitis13Biggy Dziro14Peter O. Ekiikina15Maria I. Khattak16Cristian R. Montenegro17Cristian R. Montenegro18Noni Mumba19Rosemary Musesengwa20Erica Nelson21Clement Nhunzvi22Caroline M. Ramirez23Caroline M. Ramirez24Sophie Staniszewska25Wessex Institute, Faculty of Medicine, University of Southampton, Southampton, United KingdomSchool of Health Sciences, University of Brighton, Brighton, United KingdomWessex Institute, Faculty of Medicine, University of Southampton, Southampton, United KingdomWessex Institute, Faculty of Medicine, University of Southampton, Southampton, United KingdomPublic Contributor, Oxfordshire, United KingdomAIDS Clinical Trial Group Clinical Research Site Community Advisory Board, Clinical Trials Research Centre, University of Zimbabwe, Harare, ZimbabweMaking Waves Network, Harare, ZimbabweSchool of Health Sciences, University of East Anglia, Norwich, United KingdomThe Psoriasis and Psoriatic Arthritis Alliance, St Albans, United KingdomSchool of Nursing and Public Health, College of Health Sciences, University of KwaZulu-Natal, Durban, South AfricaDepartment of Public Health, Great Zimbabwe University, Masvingo, Zimbabwe0National Institute for Health Research Centre for Engagement and Dissemination, London, United Kingdom1School for Social Care Research, National Institute for Health Research, London, United Kingdom2Kent and Medway Medical School, University of Kent and Canterbury Christ Church University, Canterbury, United Kingdom3African Mental Health Research Initiative (AMARI), Harare, Zimbabwe4Foundation for Open Development, Tororo, Uganda5Institute of Public Health & Social Sciences, Khyber Medical University, Peshawar, Pakistan6Wellcome Centre for Cultures and Environments of Health, University of Exeter, Exeter, United Kingdom7Escuela de Enfermería, Pontificia Universidad Católica de Chile, Santiago, Chile8KEMRI Wellcome Trust Research Programme, Kilifi, Kenya9Medical Sciences Division, Department of Psychiatry, University of Oxford, Oxford, United Kingdom0Health and Nutrition Cluster, The Institute of Development Studies, University of Sussex, Brighton, United Kingdom1College of Health Sciences, University of Zimbabwe, Harare, Zimbabwe2School of Medicine and Public Health, Ateneo de Manila University, Pasig, Philippines3Harvard Medical School, Boston, MA, United States4Warwick Research in Nursing, Warwick Medical School, University of Warwick, Coventry, United KingdomCommunity and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does “good” CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what “good” CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what “good” CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community.https://www.frontiersin.org/articles/10.3389/fpubh.2021.776940/fullpatient and public involvementresearch relationshipspower dynamicsresearch stakeholdersrespecting community |
| spellingShingle | Gary Hickey Gary Hickey Katie Porter Doreen Tembo Una Rennard Martha Tholanah Martha Tholanah Peter Beresford David Chandler Moses Chimbari Moses Chimbari Tina Coldham Tina Coldham Lisa Dikomitis Biggy Dziro Peter O. Ekiikina Maria I. Khattak Cristian R. Montenegro Cristian R. Montenegro Noni Mumba Rosemary Musesengwa Erica Nelson Clement Nhunzvi Caroline M. Ramirez Caroline M. Ramirez Sophie Staniszewska What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research Frontiers in Public Health patient and public involvement research relationships power dynamics research stakeholders respecting community |
| title | What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research |
| title_full | What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research |
| title_fullStr | What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research |
| title_full_unstemmed | What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research |
| title_short | What Does “Good” Community and Public Engagement Look Like? Developing Relationships With Community Members in Global Health Research |
| title_sort | what does good community and public engagement look like developing relationships with community members in global health research |
| topic | patient and public involvement research relationships power dynamics research stakeholders respecting community |
| url | https://www.frontiersin.org/articles/10.3389/fpubh.2021.776940/full |
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