Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis Program
Introduction: Paediatric post sepsis syndrome is poorly defined and causes physical, neurocognitive, psychosocial morbidity, and family dysfunction. Families of sepsis survivors report unmet needs during care. Worldwide, the provision of post sepsis care is in its infancy with limited evidence to de...
| Main Authors: | , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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Frontiers Media S.A.
2021-11-01
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| Series: | Frontiers in Pediatrics |
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| Online Access: | https://www.frontiersin.org/articles/10.3389/fped.2021.759234/full |
| _version_ | 1818404299385864192 |
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| author | Sainath Raman Sainath Raman Sainath Raman Alana English Alana English Meagan O'Keefe Meagan O'Keefe Amanda Harley Amanda Harley Amanda Harley Amanda Harley Mary Steele Jess Minogue Kate Weller Kate Weller Debbie Long Debbie Long Adam Irwin Adam Irwin Adam Irwin Paula Lister Paula Lister Paula Lister |
| author_facet | Sainath Raman Sainath Raman Sainath Raman Alana English Alana English Meagan O'Keefe Meagan O'Keefe Amanda Harley Amanda Harley Amanda Harley Amanda Harley Mary Steele Jess Minogue Kate Weller Kate Weller Debbie Long Debbie Long Adam Irwin Adam Irwin Adam Irwin Paula Lister Paula Lister Paula Lister |
| author_sort | Sainath Raman |
| collection | DOAJ |
| description | Introduction: Paediatric post sepsis syndrome is poorly defined and causes physical, neurocognitive, psychosocial morbidity, and family dysfunction. Families of sepsis survivors report unmet needs during care. Worldwide, the provision of post sepsis care is in its infancy with limited evidence to design clinical support pathways.Perspective: The Queensland Paediatric Sepsis Program (QPSP) developed a family support structure (FSS) to improve care during all stages of childhood sepsis. It was designed in partnership with consumers guided by information from consumers and it is partly delivered by consumers. Key areas include online, multimodal education for families and the ability to connect with other families affected by sepsis. The FSS is delivered by a multidisciplinary team (MDT) acting with clinicians local to the child. Families can join the FSS registry at any stage of their sepsis journey which connects them to our MDT team and opens opportunities to participate in future research and other initiatives. Improving public awareness is a critical outcome for our consumers and they have co-designed media and digital campaigns.Discussion: The ideal FSS for post sepsis syndrome management is a clinical pathway designed in partnership with consumers of interventions proven to improve outcomes from sepsis that meets their requirements. The QPSP FSS is novel as it is co-designed with, and partly delivered by, consumers with interventions aimed to improve the entire spectrum of morbidities suffered by survivors and their families, not just physical sequelae. Evaluation is embedded in the program and outcomes will guide evolution of the FSS. |
| first_indexed | 2024-12-14T08:37:57Z |
| format | Article |
| id | doaj.art-8bed8d444ff44f3d957232a3e524aa03 |
| institution | Directory Open Access Journal |
| issn | 2296-2360 |
| language | English |
| last_indexed | 2024-12-14T08:37:57Z |
| publishDate | 2021-11-01 |
| publisher | Frontiers Media S.A. |
| record_format | Article |
| series | Frontiers in Pediatrics |
| spelling | doaj.art-8bed8d444ff44f3d957232a3e524aa032022-12-21T23:09:22ZengFrontiers Media S.A.Frontiers in Pediatrics2296-23602021-11-01910.3389/fped.2021.759234759234Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis ProgramSainath Raman0Sainath Raman1Sainath Raman2Alana English3Alana English4Meagan O'Keefe5Meagan O'Keefe6Amanda Harley7Amanda Harley8Amanda Harley9Amanda Harley10Mary Steele11Jess Minogue12Kate Weller13Kate Weller14Debbie Long15Debbie Long16Adam Irwin17Adam Irwin18Adam Irwin19Paula Lister20Paula Lister21Paula Lister22Queensland Paediatric Sepsis Program, Brisbane, QLD, AustraliaPaediatric Intensive Care, Queensland Children's Hospital, Brisbane, QLD, AustraliaThe Faculty of Medicine, Centre for Children's Health Research, The University of Queensland, Brisbane, QLD, AustraliaQueensland Paediatric Sepsis Program, Brisbane, QLD, AustraliaQueensland Paediatric Rehabilitation Service, Queensland Children's Hospital, Brisbane, QLD, AustraliaQueensland Paediatric Sepsis Program, Brisbane, QLD, AustraliaPaediatric Intensive Care, Queensland Children's Hospital, Brisbane, QLD, AustraliaQueensland Paediatric Sepsis Program, Brisbane, QLD, AustraliaThe Faculty of Medicine, Centre for Children's Health Research, The University of Queensland, Brisbane, QLD, AustraliaSchool of Nursing, Midwifery and Social Work, University of Queensland, Brisbane, QLD, AustraliaDepartment of Emergency Medicine, Gold Coast University Hospital, Gold Coast, QLD, AustraliaIndependent Researcher, Brisbane, QLD, AustraliaCentre for Healthcare Transformation, Queensland University of Technology, Brisbane, QLD, AustraliaQueensland Paediatric Sepsis Program, Brisbane, QLD, AustraliaCentre for Clinical Research, The University of Queensland (UQ), Brisbane, QLD, AustraliaPaediatric Intensive Care, Queensland Children's Hospital, Brisbane, QLD, AustraliaCentre for Healthcare Transformation, Queensland University of Technology, Brisbane, QLD, AustraliaQueensland Paediatric Sepsis Program, Brisbane, QLD, AustraliaCentre for Clinical Research, The University of Queensland (UQ), Brisbane, QLD, Australia0Infectious Diseases, Queensland Children's Hospital, Brisbane, QLD, AustraliaQueensland Paediatric Sepsis Program, Brisbane, QLD, AustraliaThe Faculty of Medicine, Centre for Children's Health Research, The University of Queensland, Brisbane, QLD, Australia1Paediatric Intensive Care, Sunshine Coast University Hospital, Birtinya, QLD, AustraliaIntroduction: Paediatric post sepsis syndrome is poorly defined and causes physical, neurocognitive, psychosocial morbidity, and family dysfunction. Families of sepsis survivors report unmet needs during care. Worldwide, the provision of post sepsis care is in its infancy with limited evidence to design clinical support pathways.Perspective: The Queensland Paediatric Sepsis Program (QPSP) developed a family support structure (FSS) to improve care during all stages of childhood sepsis. It was designed in partnership with consumers guided by information from consumers and it is partly delivered by consumers. Key areas include online, multimodal education for families and the ability to connect with other families affected by sepsis. The FSS is delivered by a multidisciplinary team (MDT) acting with clinicians local to the child. Families can join the FSS registry at any stage of their sepsis journey which connects them to our MDT team and opens opportunities to participate in future research and other initiatives. Improving public awareness is a critical outcome for our consumers and they have co-designed media and digital campaigns.Discussion: The ideal FSS for post sepsis syndrome management is a clinical pathway designed in partnership with consumers of interventions proven to improve outcomes from sepsis that meets their requirements. The QPSP FSS is novel as it is co-designed with, and partly delivered by, consumers with interventions aimed to improve the entire spectrum of morbidities suffered by survivors and their families, not just physical sequelae. Evaluation is embedded in the program and outcomes will guide evolution of the FSS.https://www.frontiersin.org/articles/10.3389/fped.2021.759234/fullsepsispost sepsis syndromepaediatricconsumerfamily support |
| spellingShingle | Sainath Raman Sainath Raman Sainath Raman Alana English Alana English Meagan O'Keefe Meagan O'Keefe Amanda Harley Amanda Harley Amanda Harley Amanda Harley Mary Steele Jess Minogue Kate Weller Kate Weller Debbie Long Debbie Long Adam Irwin Adam Irwin Adam Irwin Paula Lister Paula Lister Paula Lister Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis Program Frontiers in Pediatrics sepsis post sepsis syndrome paediatric consumer family support |
| title | Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis Program |
| title_full | Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis Program |
| title_fullStr | Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis Program |
| title_full_unstemmed | Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis Program |
| title_short | Designing Support Structures Post Sepsis in Children: Perspectives of the Queensland Paediatric Sepsis Program |
| title_sort | designing support structures post sepsis in children perspectives of the queensland paediatric sepsis program |
| topic | sepsis post sepsis syndrome paediatric consumer family support |
| url | https://www.frontiersin.org/articles/10.3389/fped.2021.759234/full |
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