Experiences of People with Kidney Disease Following the Implementation of the Compassionate Mindful Resilience Programme: Qualitative Findings from the COSMIC Study
Background: Kidney disease is a progressive, debilitating condition. Patients experience challenging physical and psychological symptoms and are at increased risk of anxiety, depression, and poor mental wellbeing. Access to specialist psychological or social support is limited, with inadequate provi...
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| Format: | Article |
| Language: | English |
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MDPI AG
2023-11-01
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| Series: | Healthcare |
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| Online Access: | https://www.mdpi.com/2227-9032/11/22/2926 |
| _version_ | 1797459133944823808 |
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| author | Anna Wilson Clare McKeaveney Claire Carswell Karen Atkinson Stephanie Burton Clare McVeigh Lisa Graham-Wisener Erika Jääskeläinen William Johnston Daniel O’Rourke Joanne Reid Soham Rej Ian Walsh Helen Noble |
| author_facet | Anna Wilson Clare McKeaveney Claire Carswell Karen Atkinson Stephanie Burton Clare McVeigh Lisa Graham-Wisener Erika Jääskeläinen William Johnston Daniel O’Rourke Joanne Reid Soham Rej Ian Walsh Helen Noble |
| author_sort | Anna Wilson |
| collection | DOAJ |
| description | Background: Kidney disease is a progressive, debilitating condition. Patients experience challenging physical and psychological symptoms and are at increased risk of anxiety, depression, and poor mental wellbeing. Access to specialist psychological or social support is limited, with inadequate provision of psychosocial support available across UK renal units. The COSMIC study (examining the acceptability and feasibility of the Compassionate Mindful Resilience programme for adult patients with chronic kidney disease) aimed to support a new service development project, in partnership with Kidney Care UK, by implementing the Compassionate Mindful Resilience (CMR) programme, developed by MindfulnessUK, and explore its feasibility for patients with stage 4 or 5 kidney disease and kidney transplant recipients. This paper reports on the qualitative exploratory work which examined the experiences of study participants, their adherence to practice, and the acceptability of the intervention. Method: Participants (n = 19) took part in semi-structured interviews, which were transcribed, coded, and thematically analysed. Results: Three themes (and nine subthemes) were reported: experiences of the CMR programme that facilitated subjective benefit, participants’ lived and shared experiences, and the practicalities of CMR programme participation. All participants reported that they found taking part in the CMR programme to be a beneficial experience. Conclusion: The CMR programme was found to be an acceptable intervention for people living with kidney disease and provided tools and techniques that support the mental health and wellbeing of this patient group. Further qualitative exploration into participant experience should be integrated within future trials of this intervention. |
| first_indexed | 2024-03-09T16:48:01Z |
| format | Article |
| id | doaj.art-8cbdab700a5b403ba92122ebce2a98b9 |
| institution | Directory Open Access Journal |
| issn | 2227-9032 |
| language | English |
| last_indexed | 2024-03-09T16:48:01Z |
| publishDate | 2023-11-01 |
| publisher | MDPI AG |
| record_format | Article |
| series | Healthcare |
| spelling | doaj.art-8cbdab700a5b403ba92122ebce2a98b92023-11-24T14:44:39ZengMDPI AGHealthcare2227-90322023-11-011122292610.3390/healthcare11222926Experiences of People with Kidney Disease Following the Implementation of the Compassionate Mindful Resilience Programme: Qualitative Findings from the COSMIC StudyAnna Wilson0Clare McKeaveney1Claire Carswell2Karen Atkinson3Stephanie Burton4Clare McVeigh5Lisa Graham-Wisener6Erika Jääskeläinen7William Johnston8Daniel O’Rourke9Joanne Reid10Soham Rej11Ian Walsh12Helen Noble13School of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKSchool of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKSchool of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKMindfulnessUK, Taunton TA3 7QY, UKSchool of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKSchool of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKSchool of Psychology, Queen’s University Belfast, Belfast BT7 1NN, UKResearch Unit of Population Health, University of Oulu, 90570 Oulu, FinlandPatient and Carer Education Partnership, School of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKPatient and Carer Education Partnership, School of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKSchool of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKDepartment of Psychiatry, McGill University, Montreal, QC H3A 0G4, CanadaSchool of Medicine, Dentistry and Biomedical Sciences, Queen’s University Belfast, Belfast BT7 1NN, UKSchool of Nursing and Midwifery, Queen’s University Belfast, Belfast BT7 1NN, UKBackground: Kidney disease is a progressive, debilitating condition. Patients experience challenging physical and psychological symptoms and are at increased risk of anxiety, depression, and poor mental wellbeing. Access to specialist psychological or social support is limited, with inadequate provision of psychosocial support available across UK renal units. The COSMIC study (examining the acceptability and feasibility of the Compassionate Mindful Resilience programme for adult patients with chronic kidney disease) aimed to support a new service development project, in partnership with Kidney Care UK, by implementing the Compassionate Mindful Resilience (CMR) programme, developed by MindfulnessUK, and explore its feasibility for patients with stage 4 or 5 kidney disease and kidney transplant recipients. This paper reports on the qualitative exploratory work which examined the experiences of study participants, their adherence to practice, and the acceptability of the intervention. Method: Participants (n = 19) took part in semi-structured interviews, which were transcribed, coded, and thematically analysed. Results: Three themes (and nine subthemes) were reported: experiences of the CMR programme that facilitated subjective benefit, participants’ lived and shared experiences, and the practicalities of CMR programme participation. All participants reported that they found taking part in the CMR programme to be a beneficial experience. Conclusion: The CMR programme was found to be an acceptable intervention for people living with kidney disease and provided tools and techniques that support the mental health and wellbeing of this patient group. Further qualitative exploration into participant experience should be integrated within future trials of this intervention.https://www.mdpi.com/2227-9032/11/22/2926mindfulnesscompassionresiliencekidney diseasetransplantqualitative |
| spellingShingle | Anna Wilson Clare McKeaveney Claire Carswell Karen Atkinson Stephanie Burton Clare McVeigh Lisa Graham-Wisener Erika Jääskeläinen William Johnston Daniel O’Rourke Joanne Reid Soham Rej Ian Walsh Helen Noble Experiences of People with Kidney Disease Following the Implementation of the Compassionate Mindful Resilience Programme: Qualitative Findings from the COSMIC Study Healthcare mindfulness compassion resilience kidney disease transplant qualitative |
| title | Experiences of People with Kidney Disease Following the Implementation of the Compassionate Mindful Resilience Programme: Qualitative Findings from the COSMIC Study |
| title_full | Experiences of People with Kidney Disease Following the Implementation of the Compassionate Mindful Resilience Programme: Qualitative Findings from the COSMIC Study |
| title_fullStr | Experiences of People with Kidney Disease Following the Implementation of the Compassionate Mindful Resilience Programme: Qualitative Findings from the COSMIC Study |
| title_full_unstemmed | Experiences of People with Kidney Disease Following the Implementation of the Compassionate Mindful Resilience Programme: Qualitative Findings from the COSMIC Study |
| title_short | Experiences of People with Kidney Disease Following the Implementation of the Compassionate Mindful Resilience Programme: Qualitative Findings from the COSMIC Study |
| title_sort | experiences of people with kidney disease following the implementation of the compassionate mindful resilience programme qualitative findings from the cosmic study |
| topic | mindfulness compassion resilience kidney disease transplant qualitative |
| url | https://www.mdpi.com/2227-9032/11/22/2926 |
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