Family caregivers’ itineraries of preschool children who survived leukemia: implications for primary healthcare nursing

ABSTRACT Objectives: to analyze the path taken by family caregivers of preschool children who survived leukemia and discuss the implications for primary healthcare nursing. Methods: the narrative interview guided by a talking map and body knowledge was used with family members of children who surv...

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Main Authors: Camille Xavier de Mattos, Liliane Faria da Silva, Tátilla Rangel Lobo Braga, Renata de Moura Bubadué, Adriana Nunes Moraes Partelli, Ivone Evangelista Cabral
Format: Article
Language:English
Published: Associação Brasileira de Enfermagem 2023-02-01
Series:Revista Brasileira de Enfermagem
Subjects:
Online Access:http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S0034-71672023000400155&lng=en&tlng=en
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author Camille Xavier de Mattos
Liliane Faria da Silva
Tátilla Rangel Lobo Braga
Renata de Moura Bubadué
Adriana Nunes Moraes Partelli
Ivone Evangelista Cabral
author_facet Camille Xavier de Mattos
Liliane Faria da Silva
Tátilla Rangel Lobo Braga
Renata de Moura Bubadué
Adriana Nunes Moraes Partelli
Ivone Evangelista Cabral
author_sort Camille Xavier de Mattos
collection DOAJ
description ABSTRACT Objectives: to analyze the path taken by family caregivers of preschool children who survived leukemia and discuss the implications for primary healthcare nursing. Methods: the narrative interview guided by a talking map and body knowledge was used with family members of children who survived leukemia, living in Rio de Janeiro (capital) and São Paulo (countryside). Conversation analysis was applied to the data. Results: five family groups (seven people) of five children started their journey in the professional subsystem of private services; four were assisted in the private sector since the onset of the illness; one was assisted in public and private services. Living conditions reduced barriers to accessing supplementary health, facilitating coordination, and listening to a reference professional. Final Considerations: the itinerary was marked by attentive listening to family caregivers by reference professionals, favoring early diagnosis, initiation of treatment, and resolution of leukemia with the cure of children.
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spelling doaj.art-8d1a679405c6418ca2b554c264c6f0bd2023-02-07T07:31:11ZengAssociação Brasileira de EnfermagemRevista Brasileira de Enfermagem1984-04462023-02-0176210.1590/0034-7167-2022-0193Family caregivers’ itineraries of preschool children who survived leukemia: implications for primary healthcare nursingCamille Xavier de Mattoshttps://orcid.org/0000-0003-0616-4471Liliane Faria da Silvahttps://orcid.org/0000-0002-9125-1053Tátilla Rangel Lobo Bragahttps://orcid.org/0000-0002-5956-3292Renata de Moura Bubaduéhttps://orcid.org/0000-0001-8121-1069Adriana Nunes Moraes Partellihttps://orcid.org/0000-0001-9978-2994Ivone Evangelista Cabralhttps://orcid.org/0000-0002-1522-9516ABSTRACT Objectives: to analyze the path taken by family caregivers of preschool children who survived leukemia and discuss the implications for primary healthcare nursing. Methods: the narrative interview guided by a talking map and body knowledge was used with family members of children who survived leukemia, living in Rio de Janeiro (capital) and São Paulo (countryside). Conversation analysis was applied to the data. Results: five family groups (seven people) of five children started their journey in the professional subsystem of private services; four were assisted in the private sector since the onset of the illness; one was assisted in public and private services. Living conditions reduced barriers to accessing supplementary health, facilitating coordination, and listening to a reference professional. Final Considerations: the itinerary was marked by attentive listening to family caregivers by reference professionals, favoring early diagnosis, initiation of treatment, and resolution of leukemia with the cure of children.http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S0034-71672023000400155&lng=en&tlng=enCaregiversChild, PreschoolLeukemiaPrimary Care NursingQualitative Research
spellingShingle Camille Xavier de Mattos
Liliane Faria da Silva
Tátilla Rangel Lobo Braga
Renata de Moura Bubadué
Adriana Nunes Moraes Partelli
Ivone Evangelista Cabral
Family caregivers’ itineraries of preschool children who survived leukemia: implications for primary healthcare nursing
Revista Brasileira de Enfermagem
Caregivers
Child, Preschool
Leukemia
Primary Care Nursing
Qualitative Research
title Family caregivers’ itineraries of preschool children who survived leukemia: implications for primary healthcare nursing
title_full Family caregivers’ itineraries of preschool children who survived leukemia: implications for primary healthcare nursing
title_fullStr Family caregivers’ itineraries of preschool children who survived leukemia: implications for primary healthcare nursing
title_full_unstemmed Family caregivers’ itineraries of preschool children who survived leukemia: implications for primary healthcare nursing
title_short Family caregivers’ itineraries of preschool children who survived leukemia: implications for primary healthcare nursing
title_sort family caregivers itineraries of preschool children who survived leukemia implications for primary healthcare nursing
topic Caregivers
Child, Preschool
Leukemia
Primary Care Nursing
Qualitative Research
url http://revodonto.bvsalud.org/scielo.php?script=sci_arttext&pid=S0034-71672023000400155&lng=en&tlng=en
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