“It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission
Abstract Background Individuals living with a rheumatic pain condition can face delays in accessing pain clinics, which prevents them from receiving timely treatment. Little is known regarding their specific healthcare utilization in order to alleviate pain while waiting to obtain services in pain c...
| Main Authors: | , , , , , , , , , , |
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| Format: | Article |
| Language: | English |
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BMC
2022-09-01
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| Series: | BMC Musculoskeletal Disorders |
| Subjects: | |
| Online Access: | https://doi.org/10.1186/s12891-022-05808-6 |
| _version_ | 1828373238821945344 |
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| author | Nathan Blanchard Simon Deslauriers Jonathan Gervais-Hupé Anne Hudon Jean-Sébastien Roy Sasha Bernatsky Debbie E. Feldman Anne Marie Pinard Mary-Ann Fitzcharles François Desmeules Kadija Perreault |
| author_facet | Nathan Blanchard Simon Deslauriers Jonathan Gervais-Hupé Anne Hudon Jean-Sébastien Roy Sasha Bernatsky Debbie E. Feldman Anne Marie Pinard Mary-Ann Fitzcharles François Desmeules Kadija Perreault |
| author_sort | Nathan Blanchard |
| collection | DOAJ |
| description | Abstract Background Individuals living with a rheumatic pain condition can face delays in accessing pain clinics, which prevents them from receiving timely treatment. Little is known regarding their specific healthcare utilization in order to alleviate pain while waiting to obtain services in pain clinics. Hence, the aim of this study was to explore the perceptions and experiences of persons living with rheumatic conditions regarding healthcare utilization while waiting to access a pain clinic. Methods In this qualitative descriptive study, semi-structured interviews were conducted with adults living with a painful rheumatic condition that reported either being waiting for admission in a pain clinic, having been referred but then denied pain clinic services, or having received services during the previous six months, in the province of Quebec, Canada. The interviews were transcribed verbatim, and an inductive thematic analysis was performed. Results Twenty-six individuals were interviewed (22 women and 4 men; mean age 54 ± 10 years). Three themes were identified: 1) lacking guidance in identifying solutions to their complex and multidimensional needs, 2) struggling to obtain and maintain services due to systemic access barriers, and 3) displaying resilience through a search for accessible and sustainable self-management strategies. Conclusions The current approaches and structures of health services fail to adequately answer the service needs of individuals experiencing painful rheumatic conditions. Important shifts are required in pain education, in increasing access to multidisciplinary approaches at the primary care level and in breaking down barriers individuals with chronic pain face to receive appropriate and timely care. |
| first_indexed | 2024-04-14T07:16:08Z |
| format | Article |
| id | doaj.art-8d5f181c54c446e89898d022c6d31871 |
| institution | Directory Open Access Journal |
| issn | 1471-2474 |
| language | English |
| last_indexed | 2024-04-14T07:16:08Z |
| publishDate | 2022-09-01 |
| publisher | BMC |
| record_format | Article |
| series | BMC Musculoskeletal Disorders |
| spelling | doaj.art-8d5f181c54c446e89898d022c6d318712022-12-22T02:06:18ZengBMCBMC Musculoskeletal Disorders1471-24742022-09-0123111210.1186/s12891-022-05808-6“It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admissionNathan Blanchard0Simon Deslauriers1Jonathan Gervais-Hupé2Anne Hudon3Jean-Sébastien Roy4Sasha Bernatsky5Debbie E. Feldman6Anne Marie Pinard7Mary-Ann Fitzcharles8François Desmeules9Kadija Perreault10Center for Interdisciplinary Research in Rehabilitation and Social Integration (Cirris), Centre intégré universitaire de santé et de services sociaux de la Capitale-NationaleCenter for Interdisciplinary Research in Rehabilitation and Social Integration (Cirris), Centre intégré universitaire de santé et de services sociaux de la Capitale-NationaleÉcole de Réadaptation, Faculté de Médecine, Université de MontréalÉcole de Réadaptation, Faculté de Médecine, Université de MontréalCenter for Interdisciplinary Research in Rehabilitation and Social Integration (Cirris), Centre intégré universitaire de santé et de services sociaux de la Capitale-NationaleMcGill University Health Centre (MUHC)École de Réadaptation, Faculté de Médecine, Université de MontréalCenter for Interdisciplinary Research in Rehabilitation and Social Integration (Cirris), Centre intégré universitaire de santé et de services sociaux de la Capitale-NationaleMcGill University Health Centre (MUHC)École de Réadaptation, Faculté de Médecine, Université de MontréalCenter for Interdisciplinary Research in Rehabilitation and Social Integration (Cirris), Centre intégré universitaire de santé et de services sociaux de la Capitale-NationaleAbstract Background Individuals living with a rheumatic pain condition can face delays in accessing pain clinics, which prevents them from receiving timely treatment. Little is known regarding their specific healthcare utilization in order to alleviate pain while waiting to obtain services in pain clinics. Hence, the aim of this study was to explore the perceptions and experiences of persons living with rheumatic conditions regarding healthcare utilization while waiting to access a pain clinic. Methods In this qualitative descriptive study, semi-structured interviews were conducted with adults living with a painful rheumatic condition that reported either being waiting for admission in a pain clinic, having been referred but then denied pain clinic services, or having received services during the previous six months, in the province of Quebec, Canada. The interviews were transcribed verbatim, and an inductive thematic analysis was performed. Results Twenty-six individuals were interviewed (22 women and 4 men; mean age 54 ± 10 years). Three themes were identified: 1) lacking guidance in identifying solutions to their complex and multidimensional needs, 2) struggling to obtain and maintain services due to systemic access barriers, and 3) displaying resilience through a search for accessible and sustainable self-management strategies. Conclusions The current approaches and structures of health services fail to adequately answer the service needs of individuals experiencing painful rheumatic conditions. Important shifts are required in pain education, in increasing access to multidisciplinary approaches at the primary care level and in breaking down barriers individuals with chronic pain face to receive appropriate and timely care.https://doi.org/10.1186/s12891-022-05808-6Health services utilizationRheumatic diseasesPainAccessWait time |
| spellingShingle | Nathan Blanchard Simon Deslauriers Jonathan Gervais-Hupé Anne Hudon Jean-Sébastien Roy Sasha Bernatsky Debbie E. Feldman Anne Marie Pinard Mary-Ann Fitzcharles François Desmeules Kadija Perreault “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission BMC Musculoskeletal Disorders Health services utilization Rheumatic diseases Pain Access Wait time |
| title | “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission |
| title_full | “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission |
| title_fullStr | “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission |
| title_full_unstemmed | “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission |
| title_short | “It feels like an endless fight”: a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission |
| title_sort | it feels like an endless fight a qualitative study exploring healthcare utilization of persons with rheumatic conditions waiting for pain clinic admission |
| topic | Health services utilization Rheumatic diseases Pain Access Wait time |
| url | https://doi.org/10.1186/s12891-022-05808-6 |
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