End of Life Care: Healthcare Provider’s Mindset, Needs and Barriers
Introduction: In India, End of Life (EOL) care practice has gained momentum. EOL can have significant impact on physical, emotional and financial aspect. Care planning, coordination and good communication are important if the needs and preferences of people are to be met for their EOL care. The...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
| Published: |
JCDR Research and Publications Private Limited
2021-02-01
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| Series: | Journal of Clinical and Diagnostic Research |
| Subjects: | |
| Online Access: | https://www.jcdr.net/articles/PDF/14481/46832_CE[Ra1]_F[SK]_PF1(AD_OM)_PFA(KM)_PN(KM).pdf |
| Summary: | Introduction: In India, End of Life (EOL) care practice has
gained momentum. EOL can have significant impact on
physical, emotional and financial aspect. Care planning,
coordination and good communication are important if the
needs and preferences of people are to be met for their EOL
care. There is very minimal information available on awareness,
attitude, planning and provision of EOL care.
Aim: To assess the Knowledge, Attitude and Practice (KAP)
among hospital administrators, doctors and nurses on EOL
care and to the decision-making aspects and possible barriers
in the provision of EOL care.
Materials and Methods: A descriptive survey-based study was
conducted at the Department of Hospital Administration, Vydehi
Institute of Medical Science and Research Centre Bengaluru,
Karnataka. The questionnaire was distributed among 100
healthcare providers including hospital administrators, doctors
and nurses involved in EOL care. A structured questionnaire
containing 15 questions were used to gather data from the
respondents wherein question no. 1 to 5 were based on the
knowledge and question no. 6 to 13 were based on practice and
question no. 14 and 15 were based on the attitude. All data were
entered in MS Excel and statistical analysis was done using the
Statistical Package for the Social Sciences (SPSS) Version 20.0.
Results: Majority of respondents belonged to the group
ranging from 25-35 years of age, wherein 58 were males and 42
were females. Ninety participants out of 100 were aware of the
concept of “EOL care”, 59 were aware about the current laws
concerning EOL care and 17 participants had their medical
staff in the hospital being educated and trained on EOL care
(p>0.05). Around 29 participants have experienced lack of
communication while giving EOL care to patients; 54 out of
100 participants have experienced fury from patient/attender
during their practice and 66 participants felt that the hospital
should take into consideration of spiritual, religious and
cultural beliefs in dealing with EOL care patient. Furthermore,
Chi-square test revealed significant (p<0.001) relation
between the factors such as age of the patient, duration of
disease, economic factors, health insurance, patient suffering,
emotional distress among patient/attender and no hope of
good quality of life in making decision during EOL.
Conclusion: Along with improvements in rules and regulations,
there is an urgent need for increasing in awareness among
stakeholders who are involved in EOL care practice. |
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| ISSN: | 2249-782X 0973-709X |